Personal endometriosis symptoms stories

Personal endometriosis symptoms stories

Find out about the symptoms of endometriosis that are experienced by other sufferers ...

Read the accounts submitted below of the many and various symptoms of endometriosis that women deal with.


By reading of first hand experiences you can hopefully gain a better understanding of your own symptoms.


These are stories submitted by women, and they highlight the great variety of symptoms that this disease can cause. Some of the headlines may have been edited, as this may help to find a story similar to yours much quicker.


Share your experience of the most common or difficult symptoms with other readers

How have your symptoms affected your life? Share your experience of dealing with endometriosis.

Read what other women have said

Click below to see contributions from other women to this page...

Could I have endo??? 
I am 19 and only have periods once a year, if that. Between my first and my second one was 23 months, then it was 5 months, then 15 months. It has …

So Important: Find A Specialist! 
My daughter has been suffering for 18 months with severe lower abdominal pain, chronic nausea, and headaches, along with bouts of constipation, brain fog, …

Do I have endometriosis? 
Hi, I have just turned 21 years old, and I'm a second year university student about to take my summer exams. For many years now, I have had fairly …

Could it be endometriosis? 
I started having symptoms when I was 24 years old (I'm 28 now). It started as the usual menstrual pain though it would come 1-2 weeks before my period …

No period for 2 years 
I have always had horrible menstrual cycles, plus bleeding during sex, and in the middle of cycles too. The first time I was pregnant, I lost my …

What people who haven't been diagnosed with Endo should know 
Hi ladies. I have been diagnosed with a misunderstood diagnosis called endometriosis. I have been diagnosed for 6 years and have had a hard time with finding …

Could I have endometriosis? 
For the past several months I have been experiencing constant pain in my lower right abdomen. Ignored it for a little while but went to my Dr when it starting …

Possible Endometriosis?? Not sure 
Hello, I'm 23 years old and last year of 2016 in February I had this pain in my right pelvic area that was so bad I couldn't stand up straight, walking …

This Isn't Normal, Even For Me 
I got my period when I was 13 years old. I missed school every month because of the agonising pain. I never knew when my period was going to occur. I never …

Pain is never okay!  
I first heard about endometriosis from a friend in high school, but it seemed like a serious disease and it's normal to be in pain during your period. …

Intense Rectal and Abdominal Pain 
I've not been officially diagnosed with endometriosis, but I have been doing a ton of research on it ever since discovering such a disease exists. …

Still searching for diagnosis 
My symptoms began with a very painful sexual experience. My husband and I had to stop having sex and the pain was so bad I felt like I might pass out but …

Suspected Endo but Clear Laparoscopy?  
I started having SEVERE periods around age 14-15 (started my period at 12) and finally at 17 I sought treatment for what my mom thought was endometriosis. …

Are my symptoms from endometriosis? 
Hello everyone, I am 22 and wondering if my unexplained gastrointestinal symptoms could be from endometriosis. During the past year and a half (and …

Fever with my period 
For months I had a mysterious fever (along with extreme nausea and/or vomiting, splitting headache and sore throat feeling) with my period. It took a while …

Years of no answers and pain is making me feel crazy 
Since the age of 14 I have always had severe cramping and heavy cycles. Lasting anywhere from 7 to 13 days. Being unable to move or function and being …

Going to doctors to check for endometriosis 
I am 17 years old. I have had my period since I was 12 and it started getting bad at 14. My period lasted 9 days and I would often accidentally overdose …

Diagnosed with Endometrioma in 2013, severe pain the last week 
I was in and out of the Emergency Room back in September/October - December 2013. I was diagnosed with bi-lateral cysts, the one in my right ovary being …

Not sure if I have endometriosis, but a little scared... 
Although I consider myself relatively healthy, there are some symptoms I experience that I am concerned may be connected to endometriosis. I have …

I have no idea what this unbearable pain is?  
I've been experiencing extreme fatigue and muscle soreness in my legs, knees, upper thighs and what I think is the sciatic nerve, and my back, neck and …

Listen to your body  
Hi, I haven't been diagnosed with endometriosis but after reading almost every single article, story and wiki pages about this I am convinced I have …

Relentless symptoms 
Hello, I am very new to the site and have posted my story but really would like some insight from other endometriosis sufferers.. outside of my family. …

My symptoms significantly improved drinking 4 cups of tea a day 
I began to have bowel problems after delivery of my child at the age of 42. I had always been on birth control prior, but after the babies birth I was …

What is causing these symptoms? 
My story starts around 6 years ago. I was having a very hard time getting pregnant so I went in for a procedure a year later for the doctor to look around. …

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Chronic right pain & bowel problems 
I started my periods when I was 11, I don't remember them being painful (but how do you know what is a normal period?) As a teenager I've always been light-headed …

Do I have endometriosis? 
I've been dealing with bad periods since if first began menstruating in the 7th grade. I am now at the end of 10th grade, so I realize that this is quite …

Bladder endometriosis 
It all started with what my urologist thought was a bladder infection (which I had never had). When it was confirmed I didn't have one, he decided to …

Symptoms of endometriosis in the cul de sac? 
Hi all, I'm a 22 year old rough and tumble college student and I am not the type to fret over the simple aches and pains that accompany being a lady. …

I possibly have endometriosis and would really appreciate advice 
I've always had extremely painful cramps, bloating, and fatigue with my periods. I never thought much of it even though in college I would honestly skip …

Some coping mechanisms that may help others 
I have now been diagnosed with Stage 4 endometriosis. Here are some of the things I find helpful to do, although I appreciate they may not work for everyone. …

Endometriosis questions and concerns 
I remember back in high school, that my pains would be so severe that i would have to miss classes. As years went by I thought it was normal. I had two …

Lower back and rectum pain during menstruation 
I've been having pain during menstruation for years and I have really irregular periods. I was sometimes getting my period every 2 weeks, then I wouldn't …

Endometriosis and my story so far 
I have been struggling with Endometriosis and it's symptoms for two years now. I'm 21 years old and I've always been a healthy eater, athletic and full …

Itchy wrists as a symptom 
I was diagnosed with Endometriosis about 4 years ago. It's near my urethra so they couldn't laser it out. I was told to either get pregnant or take these …

second surgery for endometriosis 
Considering having a partial hysterectomy because of endometriosis I've been dealing with endometriosis since I was 16 and I was diagnosed at 20 with …

Experience with Endometriosis 
Query about endometriosis and gall bladder problems My pain symptoms started three months ago in my kidney area where I was experiencing flank pain. …

So many questions about symptoms 
I went to the gyno last summer for a regular pap and they found cin3 dysplasia and I had a follow up colposcopy. In September I had a leep done and …

Endometriosis pain in tail bone  
I've had 2 operations to remove endometriosis now and am positive it's come back. The last 2-3 years my pain and periods have changed a lot. The last 4 …

Symptoms worse after eating and with stress 
Symptoms which are caused by minimal endometriosis: I suffer from on-going pelvic pain ranging from sharp to stabbing to dull pelvic pain. This is in …

Bloating is the worst endometriosis symptom  
As many of you have experienced, I had seen many doctors prior to finally getting the diagnosis of endometriosis. At that point, this doctor recommended …

Should I return to specialist 
Have seen two specialists and now concerned. About a year ago, my doctor found a cyst (6.5cm) on my left ovary which I had removed. At the same time …

Symptoms worse after nuvaring 
My symptoms of endometriosis are now worse after using the nuvaring. Ever since I started my period at 13, I experienced migraines, severe cramps, heavy, …

Constant pain symptoms all day  
My symptoms of endometriosis have been so bad have had to go to ER. I have been reading through some of the stories on this site and have been taken …

3 weeks pain each month 
I am 16 years old and I live with endometriosis pain quite often, even in school. It makes it hard to keep focussed on my work or concentrate in class. …

Pain in pelvis 
I am a sufferer of extensive endometriosis found in fallopian tube previously removed. Ended up losing both due to damage and furring up. Lots of …

Pain and depression 
I was diagnosed with endometriosis when I was sixteen years old. My sister (who is 20 years older than me) was diagnosed years before me and it still took …

Main symptoms are pain and nausea 
I was just diagnosed with endometriosis. I have MS and was wondering if anyone in this group has any other disease besides the endometriosis. I think …

Symptoms of headaches and tiredness 
I was diagnosed with Endometriosis last year but I had been having problems way before being diagnosed. I just thought it was part of being so busy …

Adhesions fibroids and cysts 
I have been told I have endometriosis, this was 19 months ago, have had three internal scans, three ultrasounds, a colonoscopy, and an mri, have to go …

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Chronic pain 
For the last 3 months I have been suffering with severe lower back aches and lower abdominal cramps that really hurts when I move and cough or sneeze. …

Debilitating pains of endometriosis 
My endometriosis story all started a very long time ago. Looking back on my life, it seems so crystal, so inevitable - but at the same time, I have …

Endometriosis symptoms feedback stories 
Diagnosed with stage 4 endometriosis .... I started suffering at the age of 19 with very heavy periods, within 6 months I was being took home from work …

Confused and in pain 
My endometriosis story: I'm a 19 year old female, a daughter of a victim of severe Endometriosis (bounded her reproductive organs, bladder, bowel, pelvic …

Are these symptoms endometriosis 
I have lots of symptoms that make me feel like it could be endometriosis. I am 16 and about 2 years ago I got extremely severe period pains that began …

Endometriosis and chronic fatigue syndrome  
I have had endometriosis for 22 years. 16 years ago I got diagnosed with Chronic Fatique Syndrome. I haven't been able to work for four years now and I …

Doctors not helping with pain 
Concerned these symptoms are endometriosis. I've been trying to get the doctors to do something about my abdominal cramps for about 2 years now. I'm …

Living hell every two weeks 
I have always had a problem with my periods. I didn't start them until I was 16 and then every time has been like a miscarriage for the first few days. …

Symptoms not taken seriously - often misdiagnosed 
I had a hysterectomy, oophorectomy and removal of many egg-sized cysts associated with endometriosis For years I have complained of severe "tailbone pain" …

Finally found doctor who knew about endometriosis  
Years of my life wasted because of endometriosis and being female... For years I have been going to doctors to tell them I was having days off school, …

Stress caused by endometriosis 
When I first got married I was 20 and shortly after I was having horrible pain on my left side one night. It was so terrible my husband took me to the …

Endometriosis symptoms give me answers 
I have been searching for answers for a while now, I have had painful periods since day one (12 yrs) and always thought it was normal. Every now and …

Reduce symptoms and eat less white flour  
I too have endometriosis (16+ yrs) and the way I keep it at bay is to cut out any or most white flour/wheat products! I have noticed tremendous decrease …

May have endometriosis need answers 
Advice needed for possible endometriosis. I am a 27 year old, mother of three children. I have had my tubes tied twice within the past three years. …

Lots of symptoms 
I was "diagnosed" with endometriosis by a doctor who simply was doing a vaginal exam for constant, horrible cramps linked to menstruation. He said he felt …

Symptoms gradually getting worse 
I was diagnosed with Endometriosis at the age of 17 and I will be 38 in July. I have suffered so bad for 2 yrs with this terrible disease. I always felt …

MRI scheduled symptoms are baffling 
I have deep penetration of endometriosis and have very strange symptoms. My pain is very specific and very intense. It's getting progressively worse …

Right pelvic pinching symptom 
My symptoms of endometriosis appeared to start many years ago after an ectopic. I was told for many years I had IBS because of bowel, bladder and pelvic/stomach …

Immune system depleted with endometriosis 
Start of symptoms of endometriosis: I am almost 30yrs old, and I have a 2yr old. A year ago I was running 2hrs/day at least, 3-4 times/wk, with the …

Stage V endometriosis 
I was diagnosed with endometriosis age 30 after debilitating cramps and fever landed me in the ER, where doctors performed an emergency laparotomy to remove …

On the depo shots but still in pain 
I'm in the process of being properly diagnosed with endometriosis. I'm 21 and have had all sorts of problems and many symptoms. I started my periods …

Stabbing pain symptoms in lower abdomen  
I have severe stabbing sensations in lower abdomen due to endometriosis. I don't remember ever having problems with cramps during my periods, since …

Rectal bleeding and abdominal pain symptoms 
I think I have endometriosis but cannot get a diagnosis from doctor. For the last 3 years I have had sharp cramps in my lower abdomen, specifically …

Suffering from Endometriosis and IBS found relief 
This has helped my endometriosis and IBS symptoms ... I'm not typically a poster, but in hopes that I help one person, I had to share. I have been …

All these symptoms were endometriosis 
Because of endometriosis I have gone through so many procedures and surgeries, too numerous to list here, but the end result is it is all endometriosis …

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endometriosis destroying immune system  
Where to begin with my experience of endometriosis? I've had painful heavy periods from the beginning. The doctors told me I was crazy and that I didn't …

Endometriosis affecting bladder 
Because of endometriosis I feel extremely tired all of a sudden, so that one minute I'm fine, and the next I find myself asleep on the couch. My pain …

Do you have similar symptoms 
I am 19 years old and was diagnosed with Endometriosis last October when doctors suspected my symptoms were due to appendicitis. It was my second laparoscopy …

Need answers not diagnosed  
I do not know if I have endometriosis yet as I have not been diagnosed, but I am concerned with my symptoms. I am 21 yrs old, 2 children, and I have …

Dreadful digestive symptoms 
I get really bad symptoms with my diet causing many gastro problems. Since the age of eleven I have had really bad periods and I would be curled up …

Disabling symptoms 
Endometriosis started when I was 16. I would get so sick during my period that I would miss 3 days of school. My mom would tell me there was no way my …

Endometriosis on the kidney 
Endometriosis symptoms that I have suffered - I had extremely painful periods with back and groin symptoms that gradually disappeared when I stopped …

Endometriosis and looking for advice 
My personal endometriosis symptoms include: The week before menstruation I suffer shoulder pain, nasea every day almost all day, diarrhoea starts, …

Answers to my pain symptoms  
Suffering extremely painful periods, with a long time to get diagnosed with endometriosis .... Ever since I got my first period at age 13 I have suffered …

Severe symptoms 
I was diagnosed with severe endometriosis (stage 4) on November 2011. I am 30 years old and starting having symptoms since I was 19. When I was a teenager …

Symptoms so bad unable to walk 
My pelvic pain with endometriosis is constant most of the time and I'm bent over in pain. I hold out my underwear away from my stomach because even …

Symptoms worse with stress and certain foods 
I have noticed a link between my symptoms and what I eat. I have had endometriosis since I was 12 years old which was when my periods started, I didn't …

Painful urination symptoms  
Fatigue, painful bowel movements and urination are the worst symptoms of my endometriosis. Urinating while I have my period is agonizing. I will purposefully …

Symptom of pelvic pain 
I had symptoms of extremely intense cramps when I was young and during the first years of having my period. This seemed normal to me, being that my …

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