Endometriosis story

  These stories can help other women so they do not feel so alone when trying to cope with effects of this disease.

Pain and depression

by Lauren
(Lincoln, NE)

I was diagnosed with endometriosis when I was sixteen years old. My sister (who is 20 years older than me) was diagnosed years before me and it still took four years of pain for the right doctor to suggest endometriosis.

I began treatment which included depo lupron injections and very low dose birth control patch. I slowly became so ill that I would miss a week of school every month (during my period).

I was experiencing severe pain (lying on the floor in a ball crying), body aches, exhaustion, and flu like symptoms that would leave me basically immobile for the week.

Now, 7 years and one child later, my symptoms are returning. I have always felt like something was not right, that at my age there is no way that I should be experiencing day to day health issues that I have and no doctor seems to understand how terrible it is.

I'm not sure if it is from the endometriosis but I have :
-pain before and during periods in lower back, abdominal, and pelvic
-pain with intercourse (the hospital thought it was PID but there was not enough proof)
-chronic lower back and pelvic pain
-always thirsty and frequently using bathroom
-heavy periods that last two weeks
-bad blood flow to arms
-depression/anxiety/can't sleep
-body aches
-hypoglycemia/headaches/dizzy spells
-always getting sick
-my skin (everywhere) HURTS around the time of my period

I am 5'8" and 130lbs, I can feel that something is wrong and I shouldn't be having these daily health issues.

Someone please tell me that they experience these things too so I stop feeling like I'm a crazy person.


Name: Anonymous

Title: I understand

I understand and you are not alone. I'm 27 and I just got diagnosed the other day and I knew I had it for years because people would tell me that it didn't sound good.

I am also the only one in my circle of friends with this issue ,so reading your story and others has helped me feel like I am not alone as well. Right now all I can do is pray that God will fix things.

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