Pain and depression

by Lauren
(Lincoln, NE)

I was diagnosed with endometriosis when I was sixteen years old. My sister (who is 20 years older than me) was diagnosed years before me and it still took four years of pain for the right doctor to suggest endometriosis.

I began treatment which included depo lupron injections and very low dose birth control patch. I slowly became so ill that I would miss a week of school every month (during my period).

I was experiencing severe pain (lying on the floor in a ball crying), body aches, exhaustion, and flu like symptoms that would leave me basically immobile for the week.

Now, 7 years and one child later, my symptoms are returning. I have always felt like something was not right, that at my age there is no way that I should be experiencing day to day health issues that I have and no doctor seems to understand how terrible it is.

I'm not sure if it is from the endometriosis but I have :
-pain before and during periods in lower back, abdominal, and pelvic
-pain with intercourse (the hospital thought it was PID but there was not enough proof)
-chronic lower back and pelvic pain
-always thirsty and frequently using bathroom
-heavy periods that last two weeks
-bad blood flow to arms
-depression/anxiety/can't sleep
-body aches
-hypoglycemia/headaches/dizzy spells
-always getting sick
-my skin (everywhere) HURTS around the time of my period

I am 5'8" and 130lbs, I can feel that something is wrong and I shouldn't be having these daily health issues.

Someone please tell me that they experience these things too so I stop feeling like I'm a crazy person.


Name: Anonymous

Title: I understand

I understand and you are not alone. I'm 27 and I just got diagnosed the other day and I knew I had it for years because people would tell me that it didn't sound good.

I am also the only one in my circle of friends with this issue ,so reading your story and others has helped me feel like I am not alone as well. Right now all I can do is pray that God will fix things.

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Not crazy
by: Anonymous


I read your post and it struck a chord with me. A lot of your symptoms are the same ones I experiences daily. Before my diagnosis and even now, I still feel crazy even though I know I am NOT crazy. You certainly are NOT crazy.

Pain does awful, terrible things to you and makes you think things that aren't true. The pain you describes during and before your periods, in your pelvis, lower back, and stomach are (as far as I've learned) quite normal with endometriosis.

During my last surgery I actually had uterine nerve ablation done to help my lower chronic back pain and it has helped reduced my pain by 65%. I do suffer from chronic bleeding as well. I am always thirsty too. Chronic fatigue is also common with endometriosis and from what I have seen on other forums and have heard from other females in my own family who suffer from endo (sisters, mother, aunts, grandmas)they all suffer from severe fatigue as well.

The depression, anxiety, and insomnia seem to be nasty symptoms that I experience as well. Have you ever thought about an anti depressant or possible OTC sleep aid? I personally like Wellbutrin for depression/anxiety and Unisom for sleep aid. Its just Benadryl with a different name.

Anyway, I really just wanted to make the point that you are not alone and that you are not crazy. I hope you find some comfort in this post and that you find some sort of pain relief.

I would highly suggest considering talking to a therapist if you are really depressed. I didn't think seeing one would help, but it really has. All the best. Peace and love.

Endometriosis pain in back, pelvis and legs with chronic fatigue
by: Anonymous

I am 34 years old. I was diagnosed with endometriosis at 16 years old. I have one son 6 years ago and since have been on high blood pressure medicine. My doctor was worried about my birth control pills making my bp high so I took myself off the bc pills.

It's been 6 months since that and I am having all this pain and chronic fatigue with so much depression over it. I have pain all over my body. My gut tells me all of my issue stem from my endometriosis. I'm considering a hysterectomy. Any thoughts are greatly appreciated.

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