Endometriosis story


  These stories can help other women so they do not feel so alone when trying to cope with effects of this disease.





Still searching for diagnosis

by Kate
(Brasilia, Brazil)

My symptoms began with a very painful sexual experience. My husband and I had to stop having sex and the pain was so bad I felt like I might pass out but I had such intense rectal pain when I sat down that I had to lie down.


Thankfully this has only happened a few times because we are much more careful and avoid positions that we know cause pain. Unfortunately, just a few days ago yet another sexual position was ruled out by new pain.


I have light pain during ovulation its almost more of an awareness. For example in pilates class, during urination or getting in and out of the car I feel pelvic pain.


My periods have become super heavy, bleeding through tampons and clothing onto the bed sheets at night. This has happened the last two months but never before, let's see what this month holds for me.


My cramps and pelvic pain begin almost a whole week before my period. I feel like I spend half of the month with symptoms from endometriosis.
Currently I feel pain in my clitoris when I urinate but it is only on the right side.


I know this sounds strange. How can I tell, right because it is such a small organ, but I can tell. The pain radiates on the right side of my body too.


Everything for me is on the right side of my body except for rectal pain. Pelvic pain, clitoral pain are both on the right side.


I have seen 2 gynes that said it was probably endometriosis and have found a small mass in my pelvis upon physical exam that is very painful to touch but MRI and trans-vaginal ultrasound have shown nothing.


I was even referred to a proctologist who is now sending me back to another gynecologist and for another trans-vaginal ultrasound.

Join in and write your own page! It's easy to do. How? Simply click here to return to Your most common endometriosis symptoms.




You might like these

  •  When Heather had surgery for endometriosis it was discovered she had a cysts the size of an orange and adhesions on her diaphragm and bowel and this is her story

    Adhesions on bowel and diaphragm

    When Heather had surgery for endometriosis it was discovered she had a cysts the size of an orange and adhesions on her diaphragm and bowel and this is her story

  • Sometimes many doctors will say nothing is wrong when it comes to endometriosis and tell you its all in your head.  This was Kate’s experience of dealing with medical ignorance till she changed doctors

    Medical ignorance and endometriosis

    Sometimes many doctors will say nothing is wrong when it comes to endometriosis and tell you its all in your head. This was Kate’s experience of dealing with medical ignorance till she changed doctors

  • It can take some women years to be diagnosed with endometriosis and this is Teresa’s story of heavy bleeding which finally led to a diagnosis of severe endometriosis

    Heavy bleeding followed by laparoscopy

    It can take some women years to be diagnosed with endometriosis and this is Teresa’s story of heavy bleeding which finally led to a diagnosis of severe endometriosis

  • This is a story from Heidi who cannot afford surgery to diagnose endometriosis having pain, fatigue and constipation and is using natural treatments to support her health

    Endometriosis fatigue and constipation

    This is a story from Heidi who cannot afford surgery to diagnose endometriosis having pain, fatigue and constipation and is using natural treatments to support her health

  • This is a typical story of repeated surgeries to remove endometriosis and the pain and disease kept returning and is now looking for an endometriosis specialist

    Eight surgeries for endometriosis

    This is a typical story of repeated surgeries to remove endometriosis and the pain and disease kept returning and is now looking for an endometriosis specialist




As featured in: