Endometriosis story


  These stories can help other women so they do not feel so alone when trying to cope with effects of this disease.





Relentless symptoms

by Emily
(Manassas, VA)

Hello,

I am very new to the site and have posted my story but really would like some insight from other endometriosis sufferers.. outside of my family. I joined Hyster-Sisters but women there were very judgemental and not very friendly so here it goes..

I have stage II endometriosis and have had 5 surgeries for my endo and ovarian cysts and uterine nerve ablation. I had my last surgery 6/20/14 and am 6 months post op.

I was on Depo before surgery and only had two shots but had to stop because they induced daily, chronic migraines. I see a neurologist now and am on migraine preventatives and abortatives. My symptoms are:

-Constant,chronic, severe pelvic pain
-Chronic, lower back pain
-Chronic bleeding w/blood clots (feels like my period but it isn't)
-Chronic nausea
-Vomiting
-Migraines
-Insomnia
-Body Aches
-Twinges of pain/stabbing pains under old surgery incisions
-Painful intercourse
-Painful bowel movements
-Heavy vaginal bleeding after bowel movements
-Hot flashes

I haven't had a period before 6/20/14; my last surgery and I haven't had one since. At least not a normal one. My doctors, both actually, have said the bleeding is caused by Depo and will eventually stop but it has been 4 months and shows no signs of slowing or stopping.

So..
My pain is only getting worse and they aren't taking me seriously. I don't want kids and honestly a sixth surgery doesn't scare me but if there is a sixth, I want it to be the last.

I want a hysterectomy or at least another excision to just stop the pain. I know hysterectomy doesn't "cure" endometriosis but my doctor said it could considering mine is mild-moderate.

I don't want anyone to reply with, "Don't get a hysterectomy! That won't cure you!" I know that but I am considering it or anything like that. I just want to know if anyone else has experienced similar symptoms only a few months after surgery because I feel like I am going mad.

Thank you for reading my post.

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