Are my symptoms from endometriosis?

by Anonymous

Hello everyone,

I am 22 and wondering if my unexplained gastrointestinal symptoms could be from endometriosis. During the past year and a half (and worsening all time) I have been dealing with nausea (sometimes extreme) but no vomiting, sour/upset stomach, frequent bowel movements (now to the point of diarrhoea). I have had several test (abdomen ultrasound, upper endoscopy, HIDA scan) and the doctors haven’t found any reason for my symptoms.

I have always had painful periods usually slight cramping a few days to a week before bleeding. I have always had diarrhoea the first day of bleeding and constipation following (both creating pelvic pain during bowel movement), but I just thought that was “normal” now after reading up about endo I’m thinking otherwise.

I have had lower pelvic pain (right side only) on and off for the past few years, my primary doctor dismissed it as ovulation pain. I started on birth control pills about a year ago (because of getting married); the pill did help ease the period pain a little.

When I got married and started having intercourse I feel pain during and lasting about an hour afterwards. My GYN did a pelvic exam and said she didn’t feel anything abnormal, so she said it is probably is because I’m not used to it yet and have to get “broke in” and it will go away with time.

Then I switched pills (due to headaches) I was the same the first month on the new pill until I missed my period (not pregnant), then about two weeks before my next scheduled period I starting have extreme cramping and had the most painful period I have ever had.

After that period I went off the pill, I stopped cramping for about 10 days and I have been cramping ever since, my next period came and went and I’m still cramping every day (it’s been a month of cramping)! I have been having the pelvic pain more frequently; also still feel pain during/after intercourse (I’ve been married 6 months now).

Does this sound like it could be endometriosis?

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Find a good endo doctor
by: Anonymous

To the last poster, please check out and find a experienced excision surgeon. There is no way to tell for sure if you have endo without surgery. Don't be like me (and many many women) who have had numerous surgeries because of starting with a less than knowledgeable doctor.

Im very scared
by: Anonymous

I have always has period pains during my periods and will skip some months but there was a month were I felt that I was pregnant and missed my period, after a month to that I believe I had miscarriage because I had a big clot come out of me.

After that I started having severe pains to an extend that I feel I can pull my pelvic part out. I have been going to doctors for more that two years and no one see anything. They did blood tests, scans and pep smear. I'm out of options and I still feel the pain even now.

Endo confirmed
by: Anonymous

I am the original poster giving a follow up.
Well after having many other GI tests my GI doctor was at a loss, and agreed with me that I might have endo. My symptoms kept getting worse and my work made me go on medical leave, well then my GYN finally took me serious and I had a laparoscopy last week.

Sure enough I have endometriosis; my doctor removed what she could. I'm still recovering but not really having any relief from cramping and GI problems. Here’s to hoping it'll get better as I heal!

Not good
by: Maria


It does sound familiar to my case :( And sorry you're going through so much pain :(

I haven't got confirmed endometriosis but I never stopped looking for answers to my problems. Many doctors didn't believe me, and this is a big problem. Doctors tend to not take you seriously. You just have to keep looking for other doctors that are willing to listen and help. I finally, found mine, after 2 1/2 years.

Don't give up!

Here's my story if you want to read.

I believe you do have endometriosis
by: Elizabeth

Hi, my name is Elizabeth, I have a page it's called Living with a disabling disease! I don't know if you've read it but I think you do have endometriosis. I really think you should have a laparoscopy to see if you have endometriosis.

I had and still have the same symptoms and what's bad about it is that I still to this day I still have it even though I've had a total my advice to you, and you don't have to do it, but 1st get a laparoscopy to see if indeed it is endometriosis and if it is they (Drs) can clean you out of it!

2nd as soon as you can get pregnant! Cuz that's what my dr told me and I have two beautiful boys.....cuz if you wait endometriosis WILL come back and your not going to be able to have a baby....3rd please and I mean please don't get a hysterectomy unless you necessarily really really need to and you want no more babies cuz then you can't go back!!

If you do this I promise you won't regret it....but ultimately its your choice - no one else's remember that ok!! Hope I don't scare you but help!

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