Bladder endometriosis

by Lori
(Shorewood, IL USA)

It all started with what my urologist thought was a bladder infection (which I had never had). When it was confirmed I didn't have one, he decided to do a cystoscopy. I was so frustrated with the constant urge to have to urinate, that I didn't know where else to turn, so I did it.

He said I had cystitis. After about a month of never having relief of my bladder (even when it was empty), and visiting about 8 doctors, I realized that no one ever looked at the outside of my bladder. So I insisted that my gynaecologist perform laproscopic surgery, and they found tons of endometriosis on my bladder. In fact one piece was so embedded that they couldn't get it out without a urologist, so they left it in. (I personally think it became embedded when the urologist did the cystoscopy.)

Since my symptoms didn't subside after surgery, I went on Lupron to put me into a fake menopause. Since I still felt the urge to urinate constantly, and I wasn't getting better, I had to go on Paxil to deal with the symptoms. I couldn't take the constant feeling that my bladder was full even when it was empty.

Finally, after 2 months of being on Lupron, my symptoms began to subside. But after going off the Lupron they came back. So after the 3rd round of Lupron, I decided to have a hysterectomy to live a normal life. I couldn't be happier with the decision. If you know something is not right with your body, keep fighting, no matter what anyone tells you.

I was told by 9 doctors that I was going to have to learn to live with an irritated bladder.... nothing could have been further from the truth.

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Bladder endometriosis ?
by: Danielle

Could i get a exploratory surgery for my bladder to look and see if the endometriosis has spread?

Endometriosis on my bladder ?
by: Danielle

Pass 4-6 months I've had heavy bleeding and thick blood clots with dizziness and small black outs and can't have intercourse because I'm bleeding too heavily & painful. My irregular cycles bleeding will last for 2 months. My ovaries throb sometimes after sex. I've had past history of endometriosis & also had 2 laparoscopies. Had my baby year in half ago & I've been put on birth control ( nexplanon ). I've been put on antibiotics 4 different times for my bladder infections. Total I've had 4 bladder infections.

Its hard to empty towards the end during urination always and it gets frustrating. Now I'm put on estradiol (.05) for my cramping / heavy bleeding. No bleeding but still really intense cramps :( My back pain has gotten worse during the 4-6 months.

I have lumbar scoliosis ( painful bone spurs on my neck & hips are uneven. Back pain is manageable because I'm seeing chiropractor & recently diagnosed with slight arthritis & osteoporosis in my spine.

Bladder symptoms
by: Anonymous

I also have bladder problems, constant need to urinate without infection. Soon I will have laparoscopy, maybe it's also endometriosis.

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