Endometriosis story

  These stories can help other women so they do not feel so alone when trying to cope with effects of this disease.

second surgery for endometriosis

by Leanne

Considering having a partial hysterectomy because of endometriosis

I've been dealing with endometriosis since I was 16 and I was diagnosed at 20 with the disease. I am now 32 and 2 kids later still having mild/severe issues.

I'm having a laparoscopic excision of endometriosis next week, but considering a partial hysterectomy to actually have some relief. I have tried lupron shots for 6 months (awful), had a pre-sacral neurectomy in 06 (severed the nerve to my uterus), and have had issues with ovarian cyst and cervical cyst since then.

It's got to the point now where I have such pelvic pain and pressure it's becoming too much especially at night. I have to sleep with a heating pad, and sex forget it.

I'm done having kids, so I just don't know what my best option is as far as surgery is concerned. I should have talked to my doctor about this last week, but was too frazzled with everything else.

I'm tired of being in pain, I also have the mirena that was supposed to help, but actually it's not, and if they remove it I know I will be much worse. But I am still young and have a busy life, I'm ready for a steady relief.


Title: I feel the same about this disease

Name: Kirsty


I fully understand why you feel the need to have a hysterectomy to try and stop this disease, but I have read the stories on this site from other women, and many of them are seeing a return of this disease after a hysterectomy. For some of them it has come back within only a few months, so I know this is not the answer.

I too have suffered for many years, tried many different hormone drugs for treatment and most of them make me feel worse.

I will give the endo diet a try because I cannot take much more of this. I think anything is worth a try as there seems to be quite a few sufferers who are having success with the diet. I just hope it works for me because I am so miserable with these symptoms everyday.

I hope you find some relief and I am pleased to read that you were able to have children despite having endometriosis, it gives me hope. All the best, K.

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