Endometriosis Stories - Page 25


Endometriosis and Adenomyosis - I am 37 years old. I have never had any gyne problems until 3 months ago. I got a period and was very sick with it. Dizzy, nausea and very extreme tiredness. I am a nurse and I had to go to the emergency room twice. The doctor there referred me to a gynaecologist, which I saw the next day. I told him I had been sick for 16 days out of the blue and he went through a lot of questions.

I was getting some dark brown discharge before and after my periods, they were getting heavier and I was feeling more niggles in the pelvis than say 6 months ago. He did a physical exam and said I have endometriosis. I then had the symptoms again for 2 1/2 days at the next period and then 3 days later I had the laparoscopy and curette done.

He said I had moderate endometriosis, a chocolate cyst on the left ovary and a lot in the pouch of douglas. I then waited and at day 13 post op I got some pain in the pelvis, loose bowels and pain in my rectum and down my thighs. This lasted 4 days, I then had 4 days clear and then I got brown discharge for 3 days and then a period which lasted for 7. The last two days of the period I was sick again.

Then he inserted a Mirena. The sick days have lasted for 16 days even with the Mirena in. Some days a little better than others but I've had to have time off work, and find it so hard to do daily things. I have lost 3 kgs in two weeks (61 to 58kg), loose bowels, niggle pain on both sides in the pelvis, nausea with sometimes gagging, loss of appetite, dizzy, tired and ache in my rectum at different times.

So this time the symptoms have occurred after the period mostly. The doctor said I also have adenomyosis and the Mirena may or may not help and if it doesn't I have to have a hysterectomy. I have 2 children and have finished.

What concerns me are the symptoms I am having. Being a nurse I had some blood test done. Hormones ok, flood blood count ok, and an MRI to rule out any brain problem causing the dizziness.

Today is the better day of the last 16 and I am hoping I can work tomorrow but I feel week from the weight loss. My GP is organising a consult with the gastro-enterologist just to be on the safe side. 

United States

Im 17 Years old and I've been having extreme pain during sex. I've been with my boyfriend for 2 years and only about 5 months ago did I start experiencing this type of pain. I thought it was just due to having gas sometimes. Then it felt like maybe I have a growth, or he's hitting something because I'm starting to feel it in more than one position, and its getting worse and its every time.

I was reading cosmopolitan magazine about two weeks ago and saw a girl going through the same thing and they had given her advice it may be endometriosis. So I started looking things up and the symptoms match very closely.

I have pelvic pain throughout the month, I'm always very tired, I have some symptoms of IBS, I'm starting to get headaches every day, my periods keep getting more frequent. My PMS is outrageous and my periods are extremely painful.

Me and my boyfriend rarely use protection and I have that feeling I'm infertile. There's no way I couldn't have gotten pregnant all those times and we've had major slip ups. I had blood in my stool a week ago and my sister went to the ER with me. The doctor did a pelvic exam in 2 minutes, walked out and discharged me with pelvic pain for uncertain cause.

I was pissed so I finally scheduled an appointment with the Gyno, but it was supposed to be tomorrow and then i got my period today, but I just had it 2 weeks ago. It hasn't even been 14 days since it ended.

I'm always very timely and the time before that I was really worried because it was so late. I'm afraid that the doctor is going to call me a hypochondriac, and I know that’s what everyone is thinking.

My mom had a hysterectomy at 38. I don't know how to approach my doctor saying this is what I think it is, because I know something is wrong, but I'm afraid they're going to think I'm crazy.

United States

About three years ago, at the age of 26, I went in for a laparoscopy because I was having severe pain in my abdomen. The doctor believed I might have endometriosis. My family has a long history with this disease. I scheduled the appointment and went in for surgery. There was one problem, about 30 minutes into the procedure, my heart stopped on the table and it took them seven minutes to revive me.

I woke up in a different hospital, wearing a different gown and had lost more than just 45 minutes (the length of the procedure)of my life. I had lost half a day and almost my entire being. It took me a week in intensive care and 6 months of rehabilitation to get back on my feet, literally.

So now, three years later, I not only have a case of endometriosis that was not officially confirmed, and now have PTSD (post-traumatic stress disorder). To say the least, I am afraid to go back on the operating table to verify my illness and have it cleaned up. I do not know what to do and am truly terrified to have anything done to me.

My husband and daughter have been very helpful and patient with me but do not understand what I am going through. I am now, almost 30 years of age, wanting another child, and scared to do anything about it. I am thankful that I am alive but dont' want to live the rest of my life in pain and fear. Jaclyn Moser 

United States

Ever since I first had a period, I’ve been suffering from severe pains. I used to think the pains were normal because it was all new. I would hear from friends how bad their pains were too, but it never seems like they was going through the same pains I was. Family would tell me I was just over dramatic and all that would do is stress me out.

Deep down inside I always knew there was something wrong with me. I went to several doctors and all of them would tell me that I was fine and the pains were normal menstrual pains.

For 11 years years I had menstrual cycles every 2 weeks and they would last 7 days at a time, dealing with it like doctors told me, taking two 800mg Motrin’s at a time just to feel somewhat comfortable.

I started going to the emergency room often because of big clots and lots of blood loss. The doctors would just send me home saying that I was anaemic. Knowing that there was more to it, I stayed on my doctors, went to every appointment I was supposed to go to.

Finally I was referred to one of the “best” doctors in Los Angeles. He did a really good check and found that I had large cyst and he also saw polyps. He then scheduled emergency surgery.

Once I woke up from the anaesthesia, I saw the doctor standing over me explaining everything to me. He told me how the surgery went great and he removed the polyps, drained the cyst, he placed my ovaries in the right spot and then I learned at that time that I had a severe case of stage 4 Endometriosis.

Even though I didn’t know what it was, I was upset at the fact that all this time I’ve had it and none of the doctors saw it. He told me it was a surgery I should have had 4 years ago and if I ever decide to have kids I need to have them within the next year or two.

Now I feel like I’m stuck between a rock and a hard place. I’ve always wanted kids, just not this soon. It’s been 7 months and I’m still having a lot of complications.

Lately I’ve been feeling worse than I’ve ever felt. My dr. put me on the pill but it didn’t work, so he told me to take two at a time. It helps but it’s still very painful. I’m glad to have found this website and read other stories just like mine. I’m curious to know if any of you have any advice or know a really good doctor that can help. I’m willing to travel or do anything to get rid of this pain. 

Janice Crampton 

I was diagnosed with Endometriosis back in March 2007. For years I endured painful period pain preventing me from doing daily activities from cycling to taking the dog for his daily walk and also full time employment.

Day one of my monthly period I was in so much pain I would spend the day in bed curled up in pain and feeling as though I was going to be sick. I finely had enough and saw my general practitioner who gave me a referral to see a specialist.

My specialist recommended that I undergo a Laparoscopy / Hysteroscopy / D&C which I agreed to. Findings at laparoscopy revealed moderate/severe endometriosis within the left uterosacral ligament as well as disease in the pouch of douglas. Both of my ovaries were also stuck to the pelvic side walls and the endometriosis was partially ablated.

My specialist had told me that I needed further surgery as treatment to correct the problem. So I had my second procedure done and had a Mirena IUCD implanted to help prevent period pain and heavy bleeding in the future, and has helped me in the last two years. I recently saw my specialist again as the pain started again.

I am now booked in to have an ultra-sound done of the pelvis. My specialist has just informed me that I may have to go back into hospital to have another Laparoscopy depending on my results from the ultra-sound. Having a hysterectomy is my last choice of treatment. 

Katrena Hester 
United States

I thought periods were supposed to be painful. I had laparoscopic surgery because I had an cyst on my ovary and they had to cut off 70% of my ovary and my doctor told me that it was a "mess". This was my first time hearing about endometriosis. Another doctor told me it was all in my head. I was relieved! The pain was not all in my head and it was not normal!

I can not tell you how this condition has robbed me of my time but thank God for this site because I'm sure you all know. So to date I have had 3 laparoscopies, lupron, medroxyprogesterone, progestin, and I am so thankful because this will soon be over! I am currently seeking alternative treatments and cannot wait to incorporate things I learn from this site. 

Stacey Jean 
United States

I Finally Found Relief! I am 26 years old and have been suffering from endometriosis for as long as I can remember. My first period (when I was 14) started off horrid, it was 7 days long with heavy bleeding and horrible cramps. I have had multiple surgeries, 3 in the past 2 years alone, and even tried the lupron injections as treatment (which I only tolerated 5 months).

One of my clients was listening to me talk about my addiction to sugar and she suggested that I should look into having an overgrowth of Candida Albicans in my system.

I spoke with my acupuncturist, got a nutritionist and began the Candida Albicans diet that is tailored to someone with endometriosis. Within the first week I had NO cramps!!! I have not used a Vicodin in months!

I can't say enough good things about the Candida/endometriosis Diet and would encourage anyone who suffers with endometriosis to switch their lifestyle of eating...it has changed my life for the better. No more pills, surgery, hormones, etc. Oh, and I finally lost the weight that I had gained while being on lupron (I gained a total of 30lbs before I quit weighing myself). 

Katherine Tan 

I have had painful menses for years and the pain would worsen over time. The last couple of months, I still felt the pain even after the cycle is over. I have been on painkillers for years to suppress the painful menses cramps and I thought it was normal for a woman to have painful cramps during her menses. Sexual intercourse hurt too. I confided in a friend who told me to go for a scan.

I had the opportunity to attend a Talk on Fertility and it was during those 3 hours talk that I learned about cysts, fibroids, endometriosis and fertility. I went for a thorough scan after the talk and discovered I had all the 3 symptoms (cysts, fibroids and endometriosis) with high tumor marking which mean I had to remove my uterus if it’s cancerous. I had my surgery in March 2009 and luckily it was not malignant.

I am still on the road to recovery as I understand it will take at least 6 months for the internal to heal. I was given a jab to stop my menses for 6 months so that the internal can heal well. Of course, I felt the symptoms of someone who is having a menopause (hot flushes, moody, fatigue).

My gynae told me we will take a step at a time as I wanted very much to conceive having been married for 9 years. She told me a chance of me conceiving is slim as my left fallopian tube may be blocked and the right has a lot of scarring.

She can only determine when she does an x-ray when I have my 1st cycle again. I read endometriosis is cause by hormone upset (eg: when a woman is in a wrong relationship and is depressed). I have been depressed for the longest time (8 years) as my best friend and hubby betrayed me by having an affair. I am still in the same marriage as I love the man.

I hope to heal well and be able to conceive a child and it’s sad when I am currently surrounded by colleagues and friends who are pregnant. Having read the testimonials and articles, I am convinced there is help.

I will be watching my diet with high fibre food now and reduce my intake of red meat, chocolates, dairy food (all my favorite), go for acupuncture combined with Chinese herbs and sign up for yoga, to think positive and have an inner peace. I hope to have good news of having a child end of the year. 

Stories Page 26