I was diagnosed with endometriosis in November 2002, at age 26, much to my surprise. I had severe menstrual cramps for part of my high school years that usually left me going home from the nurse's office once a month. At home I would take several Motrin at a time, lie in scalding hot water, get red welts on my skin from a too hot heating pad, and lie in bed in strangely contorted positions.
Whether or not these symptoms are a sign of endometriosis, I'll never know. From about 2000 to my diagnosis in 2002, I had experienced a dramatic increase in weight gain, and a decrease in energy and libido. I thought the weight gain was because I had started napping instead of exercising. I never thought that this may have any real hormonal connection. Then in 2002, I had recurring yeast infections that I never had problems with before.
I was still having pain-free periods since going on the pill at age 17. Then all of a sudden in Nov. 2002 things changed. I had a routine gyno appointment with nothing unusual noted. The following day I awoke with a dull ache in my left ovary area and lower back. I used a portable heating pad and the ache was gone by lunch. I also had another infection. The next week I began my period and upon waking I knew something was wrong. I had severe aches from my left hip to my toes, vomiting and diarrhoea.
I tried to wait it out but became so sure I was dying that I had my husband take me to the ER. There, my temperature was 94 degrees; I looked like a total strung out person, and whatever medication they gave me was useless. The ultrasound showed a very large cyst and fluid around the left ovary. I was freezing and shaking off the gurney. By 5 pm I was no longer in agony, but totally freaked out.
A follow-up with my gyno revealed his suspicions and he suggested a laparotomy ASAP. I'm thankful for the 5" scar on by abdomen. The Jan. 2003 surgery revealed severe scarring and adhesions to the abdomen, bladder, right ovary, uterus and intestines. The "chocolate cyst" on the left ovary required a complete removal of the ovary. He also noted extensive scarring in the right (good) ovaries fallopian.
A hysterosalpingogram showed complete blockage of the tube. How could this happen with no forewarning? I did 6 months of Lupron as treatment, lost tons of hair, had night sweats, hot flashes immediately. I started POP BCP once my cycle returned 8 months later. They made me miserable so I quit them. I was a hormonal, sad, irritated and hopeless wreck - all horrible symptoms.
I worried we'd have to pay large quantities of money to do IVF because of the scarring caused by endometriosis. I cried, why me and so on. However, in 2004, 4 months after the return of my period, I was thrilled to find out I was pregnant. I feel the Lupron had a part to play in it.
My son was born healthy. However, I still wonder if the hair I'm suddenly losing 2 years after his birth is normal, or is the other ovary being ravaged. I still have more cramps than I would expect, but nothing a couple Motrin can't handle. But, now I have bloating symptoms during ovulation, and periods coming a couple days sooner than expected.
My mood and irritability are often more than I can bear and I feel like a monster. Is it just me, or from what I'm learning, Endometriosis could still be festering, running my immunity down and compromising my health? Is my libido low because of my struggles with weight and is the discomfort during sex because of having a baby? Am I this tired for some other reason than Endometriosis?
I read others' stories and feel out of place, because I feel my symptoms experience has been minimal in comparison. But not knowing what's going on with me for certain is making me crazy. Will endometriosis come back, will I be able to have another baby, Will I be in early menopause?
One thing I do know, is that the sudden pain that led me to diagnosis is far greater than natural childbirth. Since Endometriosis seemed to come so suddenly for me and has yet to rear its ugly head again, I do wait in constant fear of what-ifs. These stories have given me the realization that Endometriosis is more complex for me than I think and there are different ways to cope and be proactive that I never thought or was advised of. For those suffering...My thoughts are with you.
Well its like most of the people on here, where do you start? I have tried reading through other peoples stories, trying to relate them to my own symptoms but each persons case is different. I am 22 and engaged to be married next year. I started my periods when i was 13, the same age as my mum. I always had irregular periods but whilst going through my teens I never really thought about it. When I met my partner I was in the Royal Air Force so I was fit and healthy with all the exercise I had to do, and I met my partner while I was in the RAF.
One weekend when I came home from base (I am sorry if this offends anyone, its not my intention) I was being intimate with my partner and I felt a stabbing aches near my left ovary. I am the type of person who just shrugs things off so I never did anything about it.
I left the RAF due to various circumstances and moved in with my partner, after that the symptoms got worse. After about 6 months I went to see my GP and he said to take some tablets and come back, I was back within 2 weeks as the pain was shocking. When I told the doctor were my symptoms were, he did an internal and said that it was bowel related. I explained to him that the problem was coming from the area around my left ovary. Well I presumed the GP was right and went to see a bowel specialist.
After numerous internals and a ultra sound scan they discovered I had a cyst about the size of a walnut on my left ovary. After finding this out they finally sent me to gyne and I had a laparoscopy done and that is when they found the endometriosis.
They said they had burnt it off and my cyst has disappeared so I was over the moon and glad that it was sorted, only my happiness was short lived. After 4 weeks my partner and myself were being intimate and I was nearly crying with agony. I never went to the doctors because I thought maybe I had rushed into it, but the doctor said we could after about 3-4 weeks.
It started to get worse, I started cramping over in pain at work and sitting on a chair brought the stabbing aches on. I went back to the doctor and he placed me on provera. Well after 3 weeks of taking them I was ready for jumping off a bridge so I told the doctor I refused to take them any more.
I am now back with gyne, waiting to go for another scan then waiting even longer for something to be done. I am wanting to start a family next year so I am getting nervous about the whole situation now. My partner is amazing he has been with me through it all, although we can't be intimate because the agony is unreal he says he does not mind, I DO.
I feel like I have been let down, I am back to square one and have all this on my mind while trying to sort out a wedding and working full time. I am so grateful to other people sharing their story of endometriosis because it makes me feel like I am not on my own.
I found out I had endometriosis 3 years ago. It all started when really I suppose from the age of 12, every month I was being sick and curled up in pain with my periods. This went on for years, in this time I was given the pill as treatment but it would make the symptoms worse.
I was always off school because of endometriosis. When I was in my twenties I would bleed so heavy it would come through my clothing, and my thirties was just as bad. When I got to 35 I started to get dizzy spells, it came to the point where I couldn't stand up and had to go sick from work.
At this time I was bleeding so heavy and I would only have 1 week free in between periods. I couldn't stand properly for 6 months because of the dizziness, my eyes also felt strange, I couldn't read, look at the telly or lights, my hearing was over sensitive, I couldn't bear any noise and I felt like I was walking on sponge everything felt strange.
After 6 months of rest I started to feel better and I was diagnosed with an inner ear imbalance and something called vestibulor ocular disorder. I don't think they really know what caused it. I started doing exercise like yoga then something happened the next day, my left side of my leg felt like it had been pulled out of its socket, I couldn't stand on it and it was really hot and had prickly and sharp stabbing aches which spread around my back and hip and underneath me.
I went to my doctor who said he could see nothing wrong but blood kept appearing in my urine samples. In the end I went private to a gynaecologist who said I had a small cyst on left ovary and fibroids in the womb, that it was nothing to worry about and she would send me to a urologist because of the blood in urine.
When I saw the urologist he did a scan and said I'm not happy about the cyst, it has grown very large and we think it could be a dermoid cyst, so I was referred back to my gynaecologist and she put me in for a laparoscopy. After the laparoscopy was carried out I was told that it was a chocolate cyst and they had removed it and that I was covered in endometriosis everywhere in my pelvis, and they said they had never seen anything like it.
They put me on zoladex analogues implants which I was on for 13 months along side HRT. I had my second laparoscopy which they said most of the endometriosis on my right side had died off, but my left side was still alive so they cut most of what they could away but I had a uterine nodule.
So they did what they could as endometriosis was on my bladder, behind the womb in between the womb, and the back on the bowel which they shaved and other areas. I was told that I would always have this disease, there is no cure from it, only treatment of hormone therapy and operations, which I have come to accept.
Apart from the symptoms of this continuous leg, inner thigh, pubic, pelvis and hip and under rib pain, all on the left side, it is a constant dull ache with hot stabbing symptoms which are prickly in nature.
Anyway I have been put on the Yasmin contraceptive pill and take it continuously so I don't have any more period. If I do stop it I get terrible symptoms still and bad PMT, so they have told me to stay on it.
I feel better for not having periods any more although I sometimes get breakthrough bleeding and bloated abdomen but I am now concentrating on my leg and hip symptoms, which is what I went to the doctors in the first place for. I do think that is connected to the endometriosis as it would worsen when I had my periods and so do my symptoms of dizziness.
Also I think that my left ovary may be the cause too but they say its okay. The only other thing I would say with this disease is you can get very tearful and feel depressed and have symptoms of muscular aches, sometimes feverish and suffer from severe tiredness.
Most doctors do not tell you that these symptoms come with endometriosis and sometimes you are just left feeling like its in your head, but believe me it's not, most women I have spoken too also suffer from this with endometriosis, so if you feel like this it is best to tell your doctor as there are medications to deal with it.
I'm 32 years old with four kids and a supportive husband which I'm very thankful for. He has been to all of my doctors appointments since my symptoms started. I was diagnosed with endometriosis a few months ago during a laparoscopic surgery to remove a cyst from my right ovary. I had never heard of endometriosis before this, so I have spent the last few months since my diagnosis researching it.
I have found this website to be the most helpful. It's very informative and easy to use. I have always had painful periods, but I just thought it was normal. About four years ago my periods started to become longer and longer. Eventually, I seemed to be bleeding most of the month. The unbearable symptom started about a year ago. I had an ultra sound that showed a cyst on my right ovary.
My doctor said we would just watch it since most cysts go away without treatment. The symptoms never went away though, so I had another ultra sound which showed another cyst. I was having sharp stabbing symptoms on my right side along with lower back ache that radiated down the back of my legs. I went to the doctor in agony 4 times before he referred me to a surgeon to remove the cyst.
I'm glad I was persistent. Otherwise, I wouldn't have been diagnosed. I'm experiencing bad symptoms on a daily basis, mostly in my lower back. I have a few days during my period in which the symptoms are debilitating. I'm always tired, and I'm thinking about starting an anti-depressant.
It's hard to talk to my family and friends because none of them really know what I'm going through. I feel alone when it comes to my endometriosis. I find comfort in reading other women's stories because I can relate to them, and it helps me not to feel like I'm crazy. I just got my first Lupron shot a week ago as treatment and I'm anxious to see how much relief I get from it. I would appreciate any info that anyone is willing to share with me.
Back in October 2003 I was told I had endometriosis by my OBGYN. I had laparoscopy done, then I had what's called thermo choice and a D&C. After the thermo choice and the D&C I started having severe lower back aches, told my doctor about it, all he could say is I assure you it was nothing I did.
I finally found a doctor who specialized in endometriosis and in January 2004 had a hysterectomy, needless to say my life has been hell since. The endometriosis had attached itself to the back of my belly and to my ovaries and my tubes as well. While still in the hospital my doctor told me she was giving me a shot called depo and that I had to have one more shot.
Needless to say my Insurance company would not pay for the second shot and I did not have the money to pay for it so never got the second shot as treatment. The doctor who did my hysterectomy retired a month after my surgery and now I cannot get a doctor to even talk to me, no one will see me or refuses to treat me while in their office when they find out I have endometriosis.
Even after having a hysterectomy I still feel like I have endometriosis, and since no doctor will talk to me I can not ask them. Do you ever feel like your up against a brick wall and no matter how hard you hit it you can not break it. That's how I feel lost and alone. The only relief I get from symptoms is medications, and I only get them because now my back is so screwed up I now have Dextroliosis of the lower lumber spine.
I never had any of this until I had the thermo choice and D&C done. And to add insult to injury I was hit from behind by a truck doing 50+ MPH while I was working, so needless to say I lost my job. And can not get SSI because no doctor will help me.
I can only hope there are no other women out there who has this much burden to bare, but I know better. I have read some of the stories. That is what made me write this, for the other women who are in my shoes and who know how hard this is. And I thank each and everyone of you, for your stories, as painful as they are, they do help women like me who feel trapped.
Hello, my name is Shari and I was diagnosed with endometriosis in 2002. Though I was diagnosed only 5 years ago with this disease, I have been suffering from it for about 11 years. I have always tried to keep up with this disease by reading any materials that I can find, and also keeping up on the latest news and treatment options. I have found that recently I have started to suffer a lot more from this disease though.
I have other symptoms recently and started to feel very sick, tired, and weak basically all of the time. I have also noticed that daily activities that I once did without thinking about them have become much more difficult for me to complete. If anyone has any advice for options that I may try, I would greatly appreciate it. I am blessed to have a doctor that is always willing to listen and has been supportive of me every step of the way.
I am currently looking for a new doctor though because I moved to a different state. Finally, I wish all of the best to others who are also suffering from this disease. All the best, Shari
I am writing my story for all those women who, like me, have gone through the painful journey of having endometriosis. Even though millions of us suffer from this disease, it continues to be misunderstood in terms of its physiological and psychological impact on our lives, even among doctors. But most importantly, there appears to be little knowledge with respect to the type of treatment options that are available.
In fact, many of us go from doctor to doctor looking for a cure or simply relief, but often the answers are not helpful. As the years go on, the suffering become worse and the frustration and fear about what to do next only grows. By telling this story of my own personal journey, I hope that this will enlighten other women that they are not alone and that there is a lot of work that needs to be done on educating the public about this dreadful disease.
My journey began when I started to have my menstrual cycles as a teenager. My mother told me not to worry, because I was becoming a woman. However, the cramps were so excruciating that it became some of the worst times of my life. While most of my friends had light and relatively painless menstrual cycles, I didn't have it so easy.
I always experienced severe cramping and bleeding, headaches, fevers, cramping and nausea, which lasted for almost a week. Even at that early age, there were times when I just couldn't go to school due to the debilitating symptoms. As a result, I had to take several pills each day of Tylenol, Motrin, and Ibuprofen, often in combination.
As I look back, I cannot tell you how I didn't overdose on these pills. I also had to go to the emergency room several times. Despite my obvious agony however, the doctor would either treat me with more medication, or would tell me that I didn't have anything because it was all in my head. Of course, as I continually suffered from Endometriosis, I quickly developed a very sceptical relationship with my gynaecologists. I say gynaecologists in the plural sense, because I have probably seen over 30 of them throughout the course of my life.
In my experience, the problem with gynaecologists is that they often misdiagnosed me with some other ailment or disease. Even when they did correctly diagnose me with Endometriosis, many of them simply didn't understand how to treat the disease. The first couple of times I went to see a gynaecologist no doubt epitomizes these problems.
I was 17 and living abroad in Costa Rica. After my gynaecologist took an Ultrasound scan of my abdomen, he somehow came to the shocking conclusion that I had a cancerous tumor in my ovary called a Teratoma. He told me that I had to immediately have surgery to remove my ovary and any other surrounding tissue that may be cancerous. Here I was, a young girl faced with the prospect of not only losing my womanhood, but possibly my life!
My father, who is a physician in New Jersey, told me to come back to the United States to get a second opinion from another gynaecologist. When I went to see the other gynaecologist, he told me that I didn't have a Teratoma, which was a great relief to hear. However, my relief was short-lived, as he further explained that I had Endometriosis. He then recommended that I needed a hysterectomy since I would probably never be able to become pregnant and would live in terrible pain the rest of my life if I didn't have the surgery.
For me, though, the thought of having a hysterectomy at my age simply wasn't an option for me. So, I decided to continue to live my life with the terrible symptoms, with at least the understanding that I knew what I had. As the years went on, the symptoms only became worse, as with the treatments I received from my gynaecologists. Most of them recommended that if I didn't want a hysterectomy, I had to take other medications or undergo other surgical procedures, the effects of which were often worse than the Endometriosis itself.
The most common solution was to take birth control pills, but I couldn't take them because I always experienced terrible symptoms, such as constant migraines, swollen legs, and nausea. I also came across one gynaecologist, who after my first visit, recommended that he “burn” my Endometriosis through a laparoscopic procedure. He also told me that this procedure would help my chances of getting pregnant.
I was 24 at the time and recently married. So, although it seemed like a hasty decision, I felt desperate to follow his advice. However, after the procedure, I had a burning sensation in my pelvic area that never did go away until many years later. No doubt the worst treatment I ever received was taking Lupron, a medicine that caused my body to go into menopause. As my gynaecologist explained, the reason for taking this medicine was that it would stop my menstrual cycles, which would relieve me from the pain and other symptoms caused by Endometriosis.
My gynaecologist recommended that I should have this treatment for one year. After only a few months, I developed severe menopausal side effects, such as hot flashes, night sweats, mood swings, hair loss, insomnia, migraines, and vaginal dryness. But most significantly, I lost my peripheral vision in both eyes, and I had symptoms that mimicked Lupus, such as loss of muscle control and constant achiness all over my body.
Of course, my gynaecologist and the other specialists I saw each denied that Lupron was the cause of my symptoms, even though I had read otherwise. So, against the advice of my gynaecologist, I decided to stop taking the medicine. Although I never regained the loss of my peripheral vision, most of my other symptoms thankfully resolved. But as I felt better from the terrible effects of Lupron, my Endometriosis symptoms had quickly returned. As the Endometriosis developed further, I started to experience more residual effects, such as stomach or intestinal pain. This meant that I had to see the gastro-enterologist almost as frequently as my gynaecologist.
Unfortunately, they too knew very little about Endometriosis and how it could affect my body. As a result, I had to undergo several gastro tests in order to look for suspected diseases like colon cancer, irritable bowel syndrome and Crohn’s disease. In the end however, none of these gastro diseases were ever confirmed, and I was left with even more questions in my mind as to what to do next.
Perhaps one of my saving graces from Endometriosis was that I was able to become pregnant in 1999, which for me was nothing short of a miraculous gift from God. Throughout the pregnancy, my Endometriosis symptoms had completely subsided as if I never had the disease. Of course, I experienced the usual symptoms of pregnancy, but these were tolerable compared to my Endometriosis symptoms.
On August 2, 2000, God blessed me with the birth of my beautiful baby girl named Juliana. For me, having my daughter after all of the pain and suffering, as well as doubt in my mind to even think I could have a child, is something no words can truly describe. Fortunately, I was also blessed with good health even after the next few years of my daughter’s birth.
However, like all good things, they must come to an end at some point, as my symptoms started to reoccur around 2004, almost without any prior warning. Most of all, they became worse than before; I menstruated heavily every two weeks, and experienced high fevers, terrible cramping, and was not able to eat at times due to the nausea. It was almost as if the disease had a mind of its own – that my pain-free symptoms were now over and it was coming back with a vengeance!
When I went to see my gynaecologist, he recommended that I undergo another exploratory surgery. Sure enough, the surgery confirmed what I had already knew -- I had Stage IV endometriosis. But most frustrating, he did not remove any of the disease. Instead, as I was laying in the recovery room, he decided to inject me with another shot of Lupron despite my prior reaction from the medication!
When I told him to stop giving me the medication, he recommended that the only other option I had was to have a hysterectomy. Even my father recommended that it was probably time to have this surgery. By this point, I felt helpless and stayed away from my gynaecologist as well as any other doctor. Could you blame me?!
Of course, even though I stayed away from doctors, I couldn't stay away from the disease, which by 2006, progressed to the point that I could not function on a daily basis. In fact, I had lost 30 pounds over the course of just a few months because I felt terrible abdominal pain and cramping whenever I ate solid foods.
So, I was restricted to a liquid diet, such as soups and protein shakes. I also visited the emergency room almost twice a month due to the pain. On one particular occasion, I had collapsed on my bathroom floor because I felt like something was ripping inside of my stomach. Luckily, my daughter, who was 6 years old at that time, was able to call 911 to get help.
As the pain increased, so did my medications. I had to take stronger medications, such as Percocet, Vicodin, or Tramadol, often in combination, just to obtain some form of relief. But taking these medications came with a serious price. I felt drowsy and weak all the time, and they caused severe constipation, which prevented me from eating anything at all, even liquids. So, there were times when I couldn't eat anything for days, with the exception of taking my pills.
As I struggled with Endometriosis, particularly within the last year, nobody really understood how it took a toll on my life, especially with the everyday demands of my family and work. Because of my pain and the side effects from the medications, I couldn't do most of the things that I use to, such as performing house work, exercising, playing with my daughter, or even having the desire to go out with my family. I often came home from work and simply collapsed on my bed from the exhaustion and pain. On the weekends, all I wanted to do was to stay in bed and not move a muscle.
When I was at work (working between 60 to 70 hours a week), I had to somehow make it through the day, which was nothing short of a difficult challenge. On one occasion, I spent most of the day at the office vomiting in the bathroom. Although I told my boss how I felt, he gave me my garbage can to vomit and proceeded to reiterate how he needed me to complete my work. Thankfully, a co-worker saw how badly I was doing and took me to the hospital.
On another occasion, I had spent the whole night at the emergency room. Due to an important meeting I had to attend at work the next day, I informed my doctor that I needed some pain relief so that I could be at the meeting. My doctor gave me morphine, but told me that the effects would wear off just in time so that I could get to work. The next thing I remember, however, was that I was lying in bed at home, and it was 11:00 A.M.; I had missed my meeting! Although I had immediately contacted my boss to explain what had occurred, he nonetheless gave me a written warning for not contacting him earlier.
Ironically, my road to recovery began in the emergency room, where I had previously ended up so often without obtaining any results or answers. After explaining my nightmare to a medical resident, she recommended that I see an “endometriosis specialist.” My husband and I incredulously looked at each other and could not believe our ears. My husband then said to her, “What do you mean an endometriosis specialist? Does one actually exist?” She explained that while there weren't too many, there were specialists who could offer many other options besides having a hysterectomy or taking medications, such as Lupron.
So, over the course of the next several days, my husband performed research to learn more about the disease and the other options to treat it. During his research, he found out that a hysterectomy did not always cure it. Of course, no doctor had ever explained this to me. Rather, they always told me that unless I had this surgery, I would always live with the symptoms.
He then found out that Endometriosis might be successfully treated through excision surgery. Luckily, he came across a website called, “Endometriosis Victims,” which provided, among other things, a list of Endometriosis specialists. It was at this site that my husband learned about the doctor that would do the surgery. When I went to see Dr, I felt sceptical because I didn't want to put myself in a position where I would be let down, as I had been so many times before. Also, after having the disease for so many years, I didn't even know if I could be candidate for excision surgery, or whether it would even work. But the Dr. tried to quickly gain my confidence. He explained how all of the conventional treatments I had received over the years essentially did nothing for me, because they did not take out the problem.
Most importantly, he was confident that he could do the excision surgery, and that I would feel much better afterwards. Today, it has been only a few weeks since my surgery, but I still can’t tell you that everything is ok. It seems like I've developed scar tissue from the surgery which now has caused me to be in even more pain (who could’ve ever thought). I will let you all know how it goes being that I have another appointment with another specialist to make sure that nothing else is going wrong.
Anyways, after this long journey, I now feel compelled to help other women who suffer from Endometriosis. By helping to provide comfort to others that they are not alone in their journey and if we speak out about our agony, maybe congress will recognize endometriosis as a debilitating disease in which we need to find a cure for the women who suffer and continue to suffer this disease.
Bladder Endometriosis/Pelvic aches - I started having terrible periods as a teenager (you know, the usual problems, hot flashes, nausea) and as a result was on oral contraceptives until I got married and tried to have children. My husband and I tried for 2 and 1/2 years with no success.
Meanwhile, my periods got worse. I was literally on my hands and knees in the kitchen trying not to throw up and pass out from this agony each month. Then another fun symptom cropped up. I had extreme urinary urgency and terrible abdominal cramps and bloating all of the time, along with constant vaginal bleeding.
I saw my urologist and gynaecologist. First I was sent to the ER because they thought I had appendicitis which was NOT the case. Then I was put on antibiotics for 4 months straight even though all of my urine cultures were negative for infection. After listening to several urologists tell me it may be interstitial cystitis or "all in my head", I found a gynaecologist that told me I probably have endometriosis.
He did a laparoscopy and found it all over my bladder, uterus and utero-sacral ligaments. He only burned the surfaces of them though so the surgery was a failure. He tried to get me to take Depo Lupron and I refused. Depo Lupron is NOT a cure for endometriosis, and the side effects and cost are not worth wasting your time. It is used to treat symptoms temporarily and does NOT make the disease go away.
I am still having terrible urinary urgency, pain and am very depressed. I am now going to see a specialist that is going to cut out the endometriosis as well as the cyst on my bladder. I have been to many doctors in this whole process and have been very sad and frustrated.
I have found that diet, massage therapy and exercise are the only things that help me right now. My heart goes out to every woman that suffers with this disease and those that don't know they have it yet. You need to be persistent with your doctors and if they are rude or won't treat you, GET A SECOND OPINION. Most gynaecologists are not properly trained to deal with endometriosis. They are paid 2 to 3 time as much money to deliver babies than to do endometriosis surgeries and would rather not "deal" with patients like myself.
Just don't give up, find a specialist and you will eventually find the answers you are looking for. I will add more after my second surgery.
I'm 19 and was diagnosed with endometriosis at 14, although they think i have had it since I was 11... I have had 5 operations in 5 years. Each was the "last resort". I have constant symptoms, and I'm in the ER every few months because the cramps are so bad I can't stand.
I have tried everything (except those they wont give me because of my age) even natural therapies and nothing has worked. Doctors have now given up even trying to look for something to stop the constant agony and the only suggestion they have is to have a family as soon as possible.
I go to work every day and try to put on a smile. They tell me that I should go home when they see the agony show through, but I know that if every day I was in pain I stayed in bed, I would never get up. So now I spend my nights surfing the web, trying to spot some "new developments" that may actually work for me..
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