Endometriosis Stories - Page 3

Sherry Ramirez
March 2005 

I am now 33 years old. I was diagnosed with endometriosis at the age of 30, right after the birth of my last child. I started to notice spotting when ovulating and menstruating. It worsened with aching radiating from inside out on my right side and out my lower back on the right side.

I sometimes describe it as a feeling that something is eating away at my insides. I had a laparoscopy done in jan. 2003. Then endometriosis was confirmed and lasered off. A few months later symptoms returned. I had tried 3 different birth control pills and had the laparoscopy, and it still returned. I decided to have a hysterectomy. I knew we were done having children, thankfully. I had it done in Jan. 2004. 

They did ultrasounds and vaginal ultrasounds and showed nothing. My doctor decided to try me on the pellet injected into my abdomen to put me in menopause. It lasted a few months and I started having symptoms again. He decided to go in and remove my ovaries, fallopian tubes, and a 1 1/2 inch section of my vaginal cuff. When he got in there he discovered, even after having had a hysterectomy a year prior, my appendix was attached to my right ovary, and my intestines were wrapped around my left ovary.

He was shocked at what a mess it was in there. None of the ultrasounds had shown any of this. He removed all he could see, along with my appendix, ovaries and fallopian tubes, and section of my vagina. I had this surgery in Jan of 2005. It is now March and I have begun, once again, to have symptoms. My doctor thinks I have microscopic endometriosis cells and the only way to treat them is with the depo shot. 

I feel this has consumed my life and want nothing more than to have this monster out of my body. My doctor is now treating me with depo provera shots, in addition to my estrogen pills. I have heard bad things about depo and I am worried about side affects. I just got my first shot 3 days ago, and though I am worried about the side affects, I pray this combined with the estrogen will make me normal again. For my sake and my family. I truly feel for all out there who are living with this disease. 

Magdalene Joubert
South Africa
April 2005

One cannot believe there are a lot of woman suffering from this chronic disease, I am here to also tell you my story: It all started from 14 years of age, at school I would also have these huge cramps that would make me scream for days and it did not get any better. I am 26 years of age and have been married for 5 years. We have decided together that after we got married that I should go off the pill and that if the miracle happens so be it. Well after 4 1/2 years still no baby, something told me there must be something terribly wrong. 

Endometriosis was diagnosed, and in the last 2 years I have had 2 Laparoscopies and one laparotomy (to remove a huge growth off my left ovary). The end of the story is no new active endometriosis only blocked and damaged Fallopian tubes with no function any more, adhesions/scarring almost all over due to previous surgery.

The only option that they have given me is to try the IVF, as you know this is very costly probably all over the world. I underwent another Laparoscopic procedure on the 2nd of March 2005 with two professors and it seems like most of the scarring has been removed and the Fallopian tubes, and they are now clear and free from growths. Thank you for all your stories, it makes one feel not so alone. Will keep you updated as I need to see my Gyne that did the last op to discuss the way forward. 

Nariah Davis
April 2005

Where do I begin with this nightmare. I started having my cycles at the age of 10. By the time I was in high school I noticed I was having very heavy bleeding and quite a few blood clots, my doctor said 'oh that’s normal'. My mother bless her heart would say lay down with a heating pad and take a couple of aspirins. So I just paid no attention and kept suffering with severe cramps, blood clots and bowel troubles and irritability and depression at times.

My mother died after I finished high school, I was only 18 at that time, and all hell broke loose. I thought it was because I was struggling to get over her death that was causing me to be sick but it wasn't. I thought I had some kind of food poisoning, went from doctor to doctor, checked my colon for polyps, nothing, just stayed sick. I thought I was going to die at one time because I couldn't keep any thing down. People even accused me of being pregnant. How in the hell can I be pregnant when I was still a virgin (no lie). I knew something was not right. 

I started having bloody stools, nausea, vomiting, huge blood clots, and very bad cramps. It got so bad that one day while driving home from school I had to pull over to the side of the road because I was in agony, oh by the way I was 22 years old at the time, so that meant more time had been wasted. Needless to say I went to ob/gyn at women’s hospital and he ran some tests, ultrasounds and the like, and he could not find my left ovary because it is the size of a baseball, he scared me because he 1st thought it was cancer; I cried like a baby. Well any way after performing surgery he discovered it was endometriosis. 

And now I am 28 years old and the treatment option is estrostep birth control pills. Thank God the only side effect has been my blood pressure has increased. But I exercise regularly, eat right to help control that. I felt like I was the only one in the world that this has happened to, but since doing research it’s comforting to know that you are not alone. The only thing I regret is that no one told me about these kinds of disorders earlier in my life.

Maybe if I could have started taking the pills earlier I would have never gone through all this misery. Anyway I feel a lot better since taking the pill. I never knew that you could take the pill for medicinal purposes but I'm glad to know. You know the strange thing about it is, one of my cousins has the same damn disorder and we are the same age. I wonder if it hereditary. 

Christine Taylor
April 2005

About a year ago I began having yeast infection after yeast infection and constant vaginosis. Then about six months ago I started having constant abdominal cramps, which felt a lot like my right ovary was swollen. It went on for about three months and has now mostly stopped. Just the other day I experienced a stabbing sensation on my right side, somewhat in the appendix region, that lasted for over 8 hours and made it almost impossible to walk and made it impossible for me to straighten my stomach. I used to have this same type of pain when I was 16, and I am now 20.

I have had an ultrasound and a cat scan of my stomach and they both have come back normal. I am devastated at the idea of not being able to have children and it has made this last year of my life horrible. I keep going to the doctor and there is nothing... they don't know anything. Endometriosis has been mentioned as a possibility. I feel as though I have to be in constant pain for anyone to take me seriously, even though I know something isn't right. I have been on birth control since age 17 and have had regular periods. 

Sharon Tudor
April 2005

Well it all began when I started my periods at 9. Yes I know I was very young, but I can remember even before starting being in and out of hospital for stomach cramps. After many years of pain and numerous amount of hospital appointments, I was told that I had IBS, cysts on my ovaries and that it was all in my head, I was diagnosed in 1990.

I was told that there was no chance that I could have children and the best option was for a hysterectomy. I decided to suffer and before you know it I am 30 and have three children, one 8, 4 and 1. I have suffered for too many years and tried every medication going and am now scheduled to have this operation in August 2005. I am hopeful and I know that there are a lot of factors that this might not cure this horrible condition, but I will give anything a try not to go through this 3 weeks out of every month. I am so sick of being tired all the time and having no energy. 

K Ramlall
South Africa
April 2005

Hi there, With regards to endometriosis my doctor advised inserting the Mirena is the wise option for treatment. I was suppose to have this done 3 years ago but heard some negative stories hence left it. A recent visit meant him reiterating the same advice. However, I have been looking up info & it seems many people had some terrible experiences.

I have no kids but plan to have in the next 2 yrs. I’m' 27, medium built, height. Can anyone out there give me some advice please if you had it? I will really appreciate it. The side effects are worrying me as it incl. headaches, weight-gain, vomiting etc. I see it hasn't happened to everyone however its common yet I was told the mirena has little to none side effects. 

Julie-Louise Simoneau
April 2005
I am a 30 year old stay at home mom with 3 young children, 6 Jessica, 5 Alicia, and 4 Pacey. I am very lucky that I got pregnant. I was told when I started my period at age 13 that I was a person who just had bad menstrual cramps, until the day that I was in the shower and passed out, my older brother came in picked me up and brought me into my room and covered me up and kept me warm.

I had already been on the pill for almost a year. This was a normal thing for me. Dizziness, bloating, mood swings, the heavy periods with big clots that were sizes of eggs. I had to wear 2 pads at a time to cover the back and front and this was during the day.

With time and being on the pill for many years, In 1998 my boyfriend and I were talking about having a family and I stopped the pill and the first month I was pregnant. Still not knowing all this was endometriosis I gave birth Dec 24 1998. I was breast feeding when I got pregnant for Alicia, Jessica was 3 months old.

Alicia was born January 7 2000. She was now 3 months old, Jessica was 1 year and 2 weeks and Pacey was announced to be coming. After the Birth of Pacey February 3 2001, the pain was unbearable.

Now that I was older I couldn't take the symptoms. I would feel my ovulation and could tell what side I was ovulating, then I would start 1 week before with the very bad mood swings, the bloating, clothes would not fit.

One day my yearly check-up with my doctor who followed me for the pregnancies came up, and I asked him for something stronger than the tylenols and he sent me for an ultrasound which came back positive for endometriosis.

The person doing the ultrasound found it a miracle that I had had 3 children. I had many cysts. With these results my doctor wanted to try and reduce the cysts with medication. I tried the Depo-provera which made me depressive, at first it was working so I thought even if I am feeling down at least the symptoms are no longer there.

But then one day I wake up and it started again. This period lasted 4 weeks, and when I went to get my shot, the doctor giving the shot sent me home without the shot and said wait until your time is up. Since September 2004, (we are now end April) I have been on a pill that I take every morning called megestrol which has not made me have 1 period since.

But the weight gain is 25 pounds so far, the cravings for sweets, food chomping just to have something to put in my mouth. I saw my doctor last month and he laughed and said it is normal, 'I told you there would be weight gain like the other medication'. When he came to write up the prescription he looked at the name and said this medication is also used for anorexics and bulimics (sorry if misspelled). It activates the cravings, keeps fluids so I can drink my 6 glasses of water a day but hardly go to the bathroom. 

April 2005

I am sixteen years old and I started having symptoms in the pelvic region. I went to the doctor and I had some simple testing done, like urine test and an ultra sound. He told me my tests were fine and the symptoms were most likely caused by ovulation.

When the symptoms didn't go away for 2 months and my period didn't come one of the months I didn't understand. At track one day the pain was so bad I had to leave to go home. The next day my mom took me back to the doctor. He referred me to another doctor.

So now it is believed I have endometriosis, and in 3 months I go back and see how its coming along. So far nothing has gotten better but only worse. Each day I seem to develop another symptom. All I have to say This Sucks! I’m a little worried about it too. Well in 3 months I'll let you all know how it went. 

April 2005

I have been suffering from chronic pelvic symptoms since I was 16. At that time I had my first laparoscopy which found ovarian cysts and endometriosis, although the ultrasound had shown almost nothing! Since then I have had three other laparoscopies to remove everything, and each time the ultrasounds showed nothing at all and there was less to remove inside!

So frustrating! It is so hard to have everyone think it's "in my head", and to get annoyed by me always saying "I'm so sick!" During this time I have been pregnant five times, three miscarriages and two beautiful children, I'm very blessed. But my pain still continues! I had my second child just four months ago, and I swear she wasn't a week old and the pain symptoms all came back.

Fullness in my lower abdomen, constant aches on the right side, sometimes shooting down my leg or into my hip! And once again, the ultrasound was NORMAL! So, I declined another laparoscopy and have pretty much given up on ever treating this. My doctors have all basically said I just have to live with it! 

Abbey Gear
May 2005

My name is Abbey and I have suffered with severe endometriosis since I started menstruating, I am 23 y.o and got my period when I was 11. We went from doctor to doctor with all the symptoms but they kept on telling me I would grow out of it cause I was too young. When I was 17 I had a laparoscopy to diagnose the condition. It was classed as severe with nothing they could do with surgery to treat it (the surgeon actually told them to sew me straight back up) only hormone drugs.

Well as many of you who have been on hormone drugs know, its like a roller coaster ride that you can't get off. My partner has been very supportive, but I know there are days when he would like to put me on the roof! I finished a hairdressing apprenticeship a few years ago and just recently quit my job due to the endometriosis. My boss was at his wits end with me taking time off, squatting out the back in pain, and generally not being well enough to cope with the 9 hours on your feet and no lunch work schedule.

I now do some hairdressing from home but I have to be flexible to fit around the condition. Today I am having another operation as treatment for endometriosis and hopefully I will still have my fertility intact afterwards, as now I contemplate the likelihood of early motherhood (if any). I needed to get out my story to: 1-keep me occupied before my op and 2-to let women know that your never too young for endometriosis, no matter what the doctors say.

They didn't think it was possible at my age let alone severe, but I have it and now they must deal with it. Most of the time I get sent from specialist to specialist because nobody knows how to treat endometriosis, and they keep telling me I'm a textbook case, so if anyone out there has had anything that has worked for them I would love to hear from you as I am willing to try anything. Every time I get sent to hospital they threaten me with a hysterectomy.  

Michelle Lonergan
May 2005

Since I was 16 years old I've had major pelvic disomfort. I went to the doctor who told me that it was all in my head. NICE! Then when I was 21 I had my first child. Of course I had problems. Went into premature labour when I was 6 months. My child was born 6 weeks earlier. Then I got pregnant with my second child.

Come to find out that my placenta was ageing faster than the baby. Then when I was 28 I got pregnant again. I had to have a C-section because my baby was breech. During my C-section the doctors started taking pictures of my insides. When I asked them about it, they said that they seen something and wanted to get another opinion about it.

Well after my forth child I had my tubes tied. Then at 30 my period had gotten really heavy, the symptoms were really bad. So I went to another doctor. She told me I was going through my change. That I didn't believe. So I got a second opinion. This doctor told me I had a cyst on my left ovary.

So I was fed up and thought I will just deal with the symptoms. But after 2 years it was getting worse!. Next I went to see the specialist. He did an exam which I almost punched him cause of the pain. He wanted to do a laparoscopy surgery for treatment. After I went through that, he told me that I have Adenomyosis and that I also have endometriosis on my uterus.

He said that the only way to treat this problem is to remove my uterus, or if I can deal with the symptoms to let it go. If I let it go my uterus will continue to grow from the Adenomyosis. Plus he forgot to mention the endometriosis will continue to spread. He put me on nothing and basically said to get a hold of him in 2 months if I decide to get it done. 

Barbara Austin
May 2005

The first time I got my period, I was 11 years old. I had pains so terrible, I was doubled over. My paediatrician thought I had appendicitis, and almost admitted me to the hospital... and then, I got my period. I've had severe cramping every month since then. I get diarrhoea when I get my period.

My physician diagnosed me with IBS. I experience frequency, and incontinence. I have trouble breathing and shortness of breath. I suffer from fatigue and anxiety. Endometriosis had never occurred to me as a possible cause. I thought I was just depressed. Then, my sister was diagnosed with endometriosis a few months ago. She's 17. I'm 20, and I also have endometriosis... I was just diagnosed.

The first gynaecologist my sister went to told her that she was too young to have it, and she refused to do a laparoscopy, citing my sister's young age. I believe I've been suffering from endometriosis for the past 9 years.The moral of this story is that no one is too young to get endometriosis. If your doctor doesn't listen to you, find a new doctor, get a second opinion. 

May 2005

Hi my name is Bethany and I am 18 years old. I found out I had endometriosis about 8 months ago but I've always kind of known I had it. I've read about the symptoms from other women and I had very similar symptoms. The horrible cramps, the long periods, and heavy.

Once I found out I had it the doctors and I scheduled for me to have surgery. It took about a month to get everything in order. When I had the surgery (aka laparoscopy) they said they found a lot of it. They lasered it out and said it should get easier from then on with my period.

Well it's been about 4 months and still no ease with my periods. I don't know for sure but I think it's going to be hard to have kids, not to mention that I missed so much school I had to go into a special program so I didn't fail. I'm looking around to get a grant because there is not a chance that I can get a school scholarship now. I hope there is one out there I can get for having this horrible disease. Bethany 

June 2005

I was diagnosed with Endometriosis in 1994 (Had BSO 2003 that wound up being only one ovary and HRT reactivated my Endometriosis and gave me cyst and made me very ill). I have been on Synarel in the past and several versions of BCPs on/off for years.

Over 1994-2003 span I exercised and practised low fat diet (which I think has helped my endometriosis not get too out of hand = I do not eat RED MEAT at all. 2003, told I had a mass and unfortunately did not seek out 2nd opinion. The Gyn told me she was sufficient to do surgery and found TWO tumours and thus told me after Laparotomy my tumours AND my ovaries were gone and she slapped an Estrogen Patch on me and gave me Prometrium as she left my uterus.

After July 2003--Dec 2004 and a whole year & half of MIGRAINES, Heart Palps, LEG THROBBING and UTIS and horrific PMS and BLOATING, I sought out 3&4th OPINIONS, only to find out had the first gyn woman doctor not slapped me with HRT and WAITED 8-12 weeks after surgery and ran a Blood TEST she'd had found out I DID not NEED HRT, as I have OVARIAN REMNANT SYNDROME (portion of Ovary Left. And due to the HRT fuelling my body with an EXTRA HIGH DOSE of OESTROGEN I now have a COMPLEX ENDOMETRIOMA CYST that is being watched by OF COURSE my 3rd and 4th Doctors.

The HRT that the GYN administered to me I even debated with her and she got belligerent and told me "THE OVARIES ARE GONE AND THEY WERE THE CULPRIT, This amount of oestrogen will not hurt you". Funny that somehow she learned of my Ovarian Remnant and my MIGRAINES and Pain and left me messages saying she was sorry and wished me GOOD HEALTH.

I wound up being helped more by Family Doctor and the other 2 last Doctors (who are ANGELS in my BOOK). Be careful if the Doctor doesn't have YOUR BEST INTERESTS at heart then FIRE THEM. THEY WORK FOR YOU. I learned this the HARD way. I learned that Doctors do not ALWAYS know what they are doing. 

June 2005

I am 21 years old and have had this disease since I was probably 13. I always went to the doctor because I had horrible cramps, bleeding, constipation/diarrhoea, nausea, etc. during my period. They told me that I just had IBS, but I didn't.

Then when I was at 14 days (ovualtion) I would get stabbing pains on my right side like appendicitis. Whenever I went to the doctor they would tell me maybe, but pretty unlikely. I went to the doctor at least twice a month with these symptoms and pretty soon they told me that I just had an anxiety disorder and that I should go see a psychologist. I knew that I wasn't anxious, there was something wrong with me. Why couldn't the doctors figure this out?

Then when I was 19 I began having sex with my fiance, but the pain and bleeding was just too unbearable. Not to mention, I never got pregnant. So, once again I went to the doctor. Finally I was getting somewhere. I was referred to GYN who suspected endometriosis. She told me to come back to have a laparoscopy done. I was not raised in a family where we believe in surgery, so that was not an option for me.

I have tried the birth control pill, Vicoden (which just made me more nauseous),and eating better foods. I haven't been able to get any relief from this horrible disease. My family doesn't understand. They think that I am just a big baby or that I am over-reacting. With every period the agony just keeps increasing. Sometimes I get this paralysing feeling in my lower back and I cannot walk. 

Mariska Erasmus
June 2005
South Africa

I am a 23 year old female with endometriosis. I have been diagnosed at the age of 16. At that age I was experiencing symptoms about seven days before menstruation till about three days afterwards. My cramps gradually started to get worse and my gynaecologist suggested I had laser treatment to remove the endometriosis.

I ended up having four laser treatments (laparoscopies) done before the age of 21. I changed my gynaecologist because I felt that he was doing nothing to prevent it from coming back as he has not explained to me that this is a chronic disease.

My new gynaecologist explained the disease in detail to me and recommended that I go onto the Nur-isterate (hormonal two-monthly injection) to prevent menstruation from taking place. I have been on the injection for about two years now but sill experience pain with ovulation, and on the days my menstruation were supposed to be. I saw my gynaecologist on the 27/06/2005 because I started having constant severe cramps, and getting married in April 2005 did not help because I now experience distress after intercourse, and sometimes with.

He did a sonar and found that there are some growths again and that my uterus was the cause of pain. He advised me to take anti-inflammatory tablets at night and if the symptoms continue, that I will have to get another laparoscopy and take it from there then.

He also advised me that if I stopped with the injection that I will then have no chance of falling pregnant. He talked to me and my husband and told us that if we still wanted children that we should think of having them soon. 

Donna Randall
June 2005

I was diagnosed with Endometriosis in Aug 2000, although I know I've had it since I was 18, I am now 36. I self diagnosed my disease by reading info on the web and told my doctor I wanted to be tested for Endometriosis. Finally I was sent for a Laparoscopy and Endometriosis was diagnosed. I was then admitted to hospital in July 2004 for laser off the adhesions. I was in pain for a fortnight after surgery and my stomach was black and blue, it looked like they had a wrestling match with me on the op table.

Anyway the heavy and frequent periods (20 days a month) eased off and I was only having 2 periods a month. Although they were still heavy I was only bleeding for 10 days which was such a relief although I still felt mega tired and exhausted all the time due to the blood loss, I was happier.

Then 6 months on I started to feel all shaky and no matter what I did I could not warm up. I would shiver and the aches in the tops of my legs made me want to cry. I had symptoms of lower back ache and it felt as if someone was squeezing my ovaries in and out. My periods haven't changed but are so much more painful it's become unbearable, and to top that off I now have irritable bowel syndrome as well.

2 weeks before and after my periods I want to just curl up and die. If I'm not on the loo all the time I'm in bed. My relationship of 8 years is under a lot of stress due to the lack of sex and the fact I'm ill all the time. My 4 children don't really understand what's going on and think I'm just a moody mum all the time, I have no energy left in me by the time I do the everyday chores of a mum, I'm totally exhausted, but when I go to bed I lay awake all night in pain.

I went back to my doctor in December last year and demanded to see a gynaecologist. Jan this year I saw the gynae and it was decided I need a full Hysterectomy. I'm due to have this on the 21st of July so wish me luck and I’ll be in touch to let you all know how it goes. bye for now. 

June 2005

I was diagnosed with endometriosis in October of 2003 so I was only 15 when I found out. Prior to that I had pains for as long as I can remember. At first my family doctor was at a loss as to what was wrong with me. First he thought it was a urinary infection, then my gallbladder, finally he suggested I see a gyn.

After 2 months of non-stop tests to try and get a diagnosis and after changing birth controls 4 times, she suggested a laparoscopy surgery. I was 15, my first surgery (in December of '03). She found 3 large cysts, and tissue, I had a severe case of endometriosis. I continued taking the bc but 6 months later I was in more pain than ever before.

Needless to say I went back to my doctor for the second time, now being 16 (June '04), I went in for another surgery. This time the endometriosis was worse. My doctor even suggested I get pregnant, said it would help get rid of the tissue. But only being 16 neither my mom or I was up for that.

This time I was put on the Depo-lupron shot for treatment. It worked for a while. All good things come to an end. Come January 12, 2005 (my B-Day of all damn days) I went in for my third surgery. This time it wasn't so bad. My mother, doctor, and myself were relieved. We thought finally it would go away. I was doing great until recently. In May my doctor took me off the shot and back onto the pills to treat me endometriosis. BIG MISTAKE!!!

Before, on the shot, I was fine. Now, I'm miserable. Terrible symptoms of stomach crams, painful bm's, back aches, and shooting pains all over in my nether regions. I am only 17 and have dealt with it for the past 2 years. I hate to think what the rest of my life will be like living this way. 

Date: July 2005

My heart goes out to all the women who have shared their stories. I was diagnosed with endometriosis at age 34 after undergoing a laparascopy. At that time, some of the endometrial cells were removed. Prior to age 34, my menses had always been normal and I never experienced any cramps. I am not sure what suddenly happened at age 34, but it totally wrecked my life.

The symptoms were SEVERE cramps during menses, especially the first day. It was so severe and constant that I would black out. During my menses, there was a constant jabbing sensation in my rectum. I had back ache and pressure in the vagina, anus, and lower abdomen. The pain was most severe right after a bowel movement or urination. PMS involved flu symptoms so severe that I would be in bed for a couple of days. I was completely exhausted. Often sleeping 12-14 hrs per day during PMS.

During PMS, I'd experience flu symptoms such as aching all over, chills, swollen glands, and even a cough. I thought I was coming down with a bad cold. Finally, at age 36, I had parts of my fallopian tubes removed due to the endometriosis. This was devastating. However, the procedure put an end to the endometriosis (or so it seemed). I was symptom free and PMS symptom-free from age 36 until age 42.

Then my digestive system became a wreck with severe heartburn, bloating, constipation. I would often experience flu symptoms about a week before my period. The symptoms were same as before - exhaustion, chills, aching all over, sore throat, cough. Again, I thought it was the flu or cold; but these symptoms would completely disappear once my period started.

At age 43 (I'm now 44) I saw a Naturopathic doctor who treated me with supplements for the digestive problems and Chinese medicine for the flu symptoms and constipation. I felt MUCH better in just one week! My PMS symptoms disappeared for several months. I'm still being treated by the naturopath. Sadly, my endometriosis symptoms have all returned this month. I cannot explain why. I will see my naturopath this week.

Although the PMS symptoms are not full-blown as in the past, the severe symptoms of endometriosis during my periods has completely returned. I am so discouraged. I thought I was cured of endometriosis. This month I have lived a nightmare once again with my period. I don't know which is worse, enduring the pain or being 'cured' for about six years. My heart goes out to those with similar experiences. You are in my thoughts and prayers. 

Lola Lediard
July 2005

Hi, my name is Lola and I'm now 34 yrs old. I've had endometriosis since age 19, at age 21 I had a partial hysterectomy, then at age 23 had a cyst removed, then at age 25 due to adhesions and endometriosis. It also block my bowel wall, had a complete hysterectomy, they left 1/3 of an ovary left.

I cannot have children as it was too late when I was diagnosed, and I would have loved to have children. Now at age 34 I have endometriosis again, they say they can't operate cause it's in the lining of my uterus wall in major organs parts. So now I take lupron, I had my first shot 2 weeks ago.

Still not feeling good, my bowels aren't working great, the more I walk the more I swell up like I was 4 mths pregnant. I also had surgery in January of this year to remove a cysts and endometriosis. I've had so many laparoscopies in the last 10 yrs it's ridiculous. They've also cut the nerve endings in the stomach long time ago but it didn't work.

Right now I'm on estro-sense, it helps endometriosis and I'm trying the diet. Also I find taking a bath in Epsom salt helps a little. I'm still trying to work while going through this. I hope to find a proper doctor soon hopefully, but I take it day by day and put a smile on my face. I've been through a lot in my life, all this stuff is just the tip of the iceberg. I'm lucky to have wonderful people around me but sometimes they don't quite understand. 

August 2005

I first started having problems with my periods on my 13th birthday, also the same day I got my first period. My step mom told me it was normal, cramps and heavy bleeding. I went through my first two years of high school being told I should be able to deal with cramps and that I couldn't keep going home because of them.

One day my step mom decided to take me to the doctor and she put me on birth control. About that time my biological mom called to say she had been diagnosed with Endometriosis. My doctor told me that I had all the symptoms and that birth control was how they treated it.

After a year on birth control I began to have problems again. My doctor told me that some people reject birth control after a while and switched me to another. For the next 3 years I went through several birth control pills. 6 total. I gave up and stopped taking the pill. About 6 months after going completely off the pill and my second year in college, I began to get really ill with my period.

I was engaged at this point and my fiancé had a hard time watching me go through the pain, upset stomach, fatigue, and the emotional toll I was going through every month. He tried to get me to go to the doctor but I was sick of being put on another pill.

A year later I finally went to another doctor who told me it was all in my head. I left in tears from that doctor appointment. She wanted to put me on birth control as treatment, the exact same pill I had been on before that didn't help. Another year went by with the symptoms getting worse. I went to yet another doctor who again was going to put me on birth control even though it hadn't help.

I was once again devastated that know one was listening to me. A co-worker who had endometriosis gave me her doctors name and number. Desperate I made an appointment. She gave me an option of going on a different form of birth control other then the pill or having surgery. I opted for the surgery. I had the surgery last Thursday. They found endometriosis, a lot of it, scar tissue, an ovarian cyst inside my ovary, and my ovary had grown attached to my uterus.

I am glad I found someone who would listen to me. I am still recovering from my surgery but for the first time in a long time I have no pain. I know that this surgery won’t cure it but at least I know its not in my head and have a doctor who will listen to me and not just send me out the door with birth control pills. 

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