Diagnosis of Endometriosis

The Undetected Disease

Obtaining a true and correct diagnosis for Endometriosis can be one of the most drawn out, frustrating, and distressing experiences for many women. These women know there is something wrong with their health as time goes by, but in most cases they are dismissed by their doctors as being neurotic, or told that their symptoms are normal, or they are given an inaccurate diagnosis, which in many cases is that of Pelvic Inflammatory Disease.

If you are suffering from any of the symptoms associated with Endometriosis, you need to get a diagnosis of what is causing your problems. If your doctor appears unsympathetic or dismisses your symptoms, then you need to assert your suspicions of the seriousness of your health problems. If you have no success then change your doctor or get a second opinion. The longer that this disease goes undiagnosed the more damage it can do. It is well documented that for many women, it can take anything up to ten years to finally get a true diagnosis.

Part of the problem that causes the delay in diagnosis of Endometriosis, is that many people in the medical profession are not fully aware of the extent of this disease today. It is suspected that between 10 to 20 percent of women of reproductive age have Endometriosis.

Also, many women have not even heard about Endometriosis, so they do not seek help when they do have symptoms, because many women think their symptoms are normal. In fact a lot of women have only found information on Endometriosis in magazines and from friends rather than from their doctor.

Another reason there is a delay in diagnosis, is that the symptoms may initially be attributed to a variety of other health problems like fibroids, kidney stones, irritable bowel syndrome, as well as pelvic inflammatory disease.

METHODS OF DIAGNOSIS

Diagnosis methods of Endometriosis can include:

A pelvic examination involves the physician feeling and looking for abnormalities that are associated with endometriosis. Physical findings depend on the severity and location of the disease. There may be palpable nodules or tenderness in the pelvic region, enlarged ovaries, a tipped-back (retro-displaced) uterus, or lesions on the vagina or on surgical scars.

Laparoscopy

A laparoscopy is an exploratory procedure that allows the physician to see inside the pelvic region to observe and check for endometrial growths. The procedure involves making a small incision near the navel and inserting a laparoscope (a long, thin, lighted instrument) into the abdomen. The abdomen is distended with carbon dioxide gas to make it easier to see the abdominal organs. Usually, the endometrial growths can easily be seen. Because Endometriosis implants or growths vary in appearance and can be mistaken for other conditions, the lesions should be surgically removed and examined under a microscope to confirm the presence of the disease.

Imaging tests

Imaging tests (e.g. pelvic ultrasound, magnetic resonance imaging) may be used to identify individual endometrial lesions, but they are not used to determine the extent of the disease. The implants are not easily identified using this method.

Biochemical markers

There has been extensive investigation of a membrane antigen called CA-125 in women with Endometriosis. Several reports suggest that levels of CA-125 are elevated in women with Endometriosis, particularly those in the advanced stages of the disease. A recent study of this antigen level, showed it to be high in 90 percent of women with Endometriosis. Possible diagnosis with a blood test to check levels of CA-125 could be used to check for Endometriosis.


There is a new and less invasive surgical method to diagnose Endometriosis. You can read a brief article that outlines this new technique HERE

Stages of Endometriosis

• Stage 1 - minimal disease, superficial and filmy adhesions
• Stage 2 - mild disease, superficial and deep endometriosis
• Stage 3 - moderate disease, deep endometriosis and adhesions
• Stage 4 - severe disease, deep endometriosis, dense adhesion

The stages of the disease do not indicate the level of pain, infertility or symptoms.

What does Endometriosis look like!