Your Endometriosis stories
Here you will find stories from other women who have Endometriosis. These stories can give courage to other women that they are not alone in their battle. Some of you may also have stories that can provide hope and inspiration, because you have found things that have helped in your own healing. You may also have some tips or snippets of advice you can leave here.
When posting your stories I am not including your email address as a live link, to prevent unwanted harvesting of email addresses. If you wish to contact someone who has submitted a story, write down their address and contact them through your own email server. Thank you.
To submit your own story use the form that you will find here
Your Stories - Page One
Endometriosis stories page 2
Endometriosis stories page 3
Endometriosis stories page 4 - starting with a VERY positive story from Ingrid
Endometriosis stories page 5
Endometriosis stories page 6
Endometriosis stories page 7
Endometriosis stories page 8
Endometriosis stories page 9
Endometriosis stories page 10
Endometriosis stories page 11
Endometriosis stories page 12
Endometriosis stories page 13
Endometriosis stories page 14
Endometriosis stories page 15
Endometriosis stories page 16
Endometriosis stories page 17
Stories of women from around the world who have Endometriosis.
Name: Katrina
Location: US
email: kjj_opiate_@hotmail.com
Date: July 2004
I am 29 years old, and was diagnosed w/ endo. almost two years ago. If it wouldn't of been for my husband, I never would of gone in. I went threw the laparoscopy and 6 long months of lupron injections,I had a second surgery to make sure that it was all cleared up, and it was, My doctor then suggested I go on hormone therapy w/ a depoprovera shot every three months, That failed I started bleeding again but it was not normal, sorta like old blood ranging in color from brown to black, At the appointment for my third shot I refused to take it, Leaving me the option to try a new pill called seasonal, This did work for a small period of time 3 weeks to be correct and then the bleeding started all over again, This has affected my entire life, not knowing from one day to another if the bleeding is going to be worse or not, not knowing if the pain and swelling is going to be there, My husband feels as bad, but yet our love life has suffered more than anything, sex can't even be considered w/out having bleeding so bad it is half way up my back, I feel like a science project gone aray, I f any one has gone threw some thing similar I would really like to know I feel as if my only option is a full and complete hysterectomy, and at 30 years of age it is a little scary. Sorry if theses are not the type of stories we are supposed to share but I feel at a loss....
Name: DeAnna
Location: US
email: hedonistd@yahoo.com
Date: July 2004
I will try to be brief. I was first "diagnosed" with Dysmenorea" (I spell poorly, ya know) when I was aged 15. I ALWAYS had BAD, BAD periods...(like the cramps you get when you have loose bowels). As I got older, the cramps got worse. I just took tylenol.....or whatever anti-inflammatory the doc gave me...I, by some miracle, got pregnant after having my FIRST lap w/ D and C...(I was told at 18 I would never have children, probably...and was sexually active (stupidly) without ever being protected...never got pregnant until they "lasered" off the "implants" (or endo...) I would have only about a year "remission" from the pain. I couldn't have sex without extreme pain (was called frigid by a now EX husband)Sometimes I couldn't even walk. I was labeled as a person with a "shady" work history because I frequently called in sick because of my pain. I was told I was seeking attention..I was told I was only wanting drugs, (this before the "cure" for my pain became my addiction.) I was told a million things except WHY I was hurting and HOW we could stop it...I had horrible PMS....bloating, headaches, backaches, cravings for fatty, starchy foods....you name it...and then the pain...the clots..the heavy bleeding (I cannot sleep on my back on on my stomach. I would bleed everywhere if I did...)By age 24, I was at my 3rd lap w/ D and C and lasering of my implants...the pain always returned. I got pregnant with my daughter after another surgery to clean out the endo. I had also run into my first bout with HPV caused cervical cancer. What a mess..by age 30, I was a wreck..addicted to vicodin...seeing a chronic pain specialist...minus a left ovary...my tubes tied....my gallbladder gone and now suffering intestinal infections that would shrivel me down 10 pounds by the time it was done with me....I have IBS...diverticulitis....somekind of small intestinal "abnormality"..and all I can say is that I live a living hell caused by wracking pain and a generally F**ked up body. I am having a sonogram tomorrow to find out what a mass is some quaky doc found (I hate doctors now). I am sure it will either be a "scar" or come up negative...another wasted test and the docs look at you like you are simply a "hysterical" female....I am sick on Neurontin and have now become vomitingly sick on most ALL narcotocs...the pain is endless and my life is wrapped up in my pain. I am not yet even 40 and can see where my life is going if I don't stop this disease.
Name:Lori
Location:US
email:Loricurtis@adelphia.net
June 2004
A comprehensive story/journal from Lori
My Story...to Relief!!!!!
Hi,
I am 42 years old & have had endometriosis for over 20 years.
Oh goodness, so much to tell! bad cramps when I first got my period 8th grade, but I thought everyone had cramps. Years went by with just period pain, could handle that, not too severe. Got married when I was 23 & could not get pregnant, so upsetting, but finally saw an infertility Dr. who suggested a Laporoscopy & was diagnosed finally. Many years of bad periods, extreme cramps & sick exhaustion with period & also VERY SEVERE PMS-no doubt that I was estrogen dominant. Many fertility Drs. for 10 years, oh my life was obsessed with this!!! birth control pills, clomid... hormones messed up & medication for this, every test in the world done & everyday thinking about how I wanted a baby so much. I was jealous of everyone who had kids(another chapter). Thought about adoption, but really thought "I want a baby to look like my husband" & not really that interested, but did apply for adoption anyways. Pain now controlling my life more, but never did I want to see another Dr. ever again! 10 years of it!!! no more Treatments!
It got worse- the pain & also the sickness with periods, anxiety - PMS was so crazy/manic crying fits, ask my husband about it-he has some stories, he says I hissed at him one night, just hated my husband for no reason a week before my period & then I would start my period & the pms would disappear & was left with guilt for treating him so horribly, but then I would be in so much pain I did not think of it that much. What a wonderful husband I have huh! it was not easy for him. The period ended, but then I had to recover from it, sort of like I was recovering from the Flu.
Adopted our kids during this time-oh what Blessings! the most perfect children in the world, I think of course. Such Joy!!!(another chapter) it was all meant to be this way & I am so glad now & thankful I never got pregnant. I would never Love children as much as I do, unless this all happened, waiting certainly makes you appreciate them more!
Anxiety attacks came because of my health, also hypoglycemic & worried so much about everything & how to take care of my kids, the future, being sick....years of this that no-one knew-I did not even relate any of this to my whacked out hormones at the time either, but played a big part. Won't explain all of it, but frozen in fear a bit, prayed so much" Lord help me" but really did not know him. The anxiety, endless same cycle every month continued for a while & panic attacks also but somehow everything remained together, my family, my business, everything! which makes no sense at all. I did come to know Christ at this time, I prayed non stop, read the Bible...which was my Peace. I feel he was calling me towards him, but I am very stubborn & it took a while for me to rely on him. He ended my anxiety & I was drawn to knowing more, was feeling different, felt more Peace & less worry, real strange how I felt better mentally, but physically did not.
I was complaining about cramps one day to my sons tutor & she told me her daughter also had endometriosis & is using Natural Progesterone Cream & gave me a bottle. Cramps got better & better month to month, some months nothing! I had not been to a gyno. for years, but felt I would try anything! & it worked so well! Having the pain gone was wonderful, but still left with sickness, fatigue, pms... better - but far from good.
Fast forward to October 2003: so fed up with the cycle of it all-pms 8 days before period, sick with period, recovery & with a 26 day cycle their were not too many good days left & most were filled with fatigue. Cannot handle it anymore! & slept everyday, but amazingly the best year of my business career, how did that happen? I had no help! & my family was doing very well. My 11 year old son was such a help with my daughter, but I was always sleeping. I broke down & went to the gyno. I needed a break, wanted to go on the pill. He said "the pill contains estrogen & estrogen causes endo to grow" I talked of a hysterectomy. He said "You should try Lupron 1st as a trial to see how you would feel without a period, some women are not helped by hysterectomy's" I said I will think about it, but No Way! researched Lupron on the ob-gyn site & then adamant about never trying it. I mean pain was not a major problem anymore with the progesterone cream that I continued. The periods were horrible though & stomach, bladder, bowel, major fatigue, body spasms at night, heart palpatations, pain at my belly button, pms, gas..their is more...seemed like every month I was worse. No way out~I thought at times. Prayed a lot!
Went a little crazy in a good way though, not too many knew about all of this except family of course & really they did not know the extent of it all, isolated myself, missed many events but how can you explain it all to people really and I am not a complainer. I had gone to a small church, but they did not know either, my fault, hard for me to reach out to people. Well like I said I went a little crazy outside of myself, prayed so much for help, researched endo & was shocked! I could have been so much worse off!. I wrote a letter to the pastor of my church explaining how bad my health was, I broke down at bible study, I needed to make a choice. I wanted a hysterectomy but could not chose it, wanted it chosen for me, somehow like a cyst bursting or some other emergency where I did not have to make a decision. I asked everyone to pray for me, something very hard for me to do! knew that this is what the Lord wanted from me- to reach out that is. I searched the internet & saw alternative treatments? what is this I thought, but worth a shot! I felt lead to a certain Dr. The treatment was unbelievable! Liquid horrendous herbal tonic that was like drinking gasoline, amino acids, vitamins, progesterone cream....27 pills a day, 9 tonics a day & not tasty! but I felt lead to him, so I continued the treatment. I knew it would work! just felt it, put " Lord Please Heal Me" on every herbal bottle & vitamin container. I felt some results in a week & continued to feel better until Christmas, just like the Dr said "You will feel so much better by Christmas" He was right! I had 3 great months! 90% better & so many symptoms gone. I was normal on my period, not tired, really cannot remember any health problems, if their was anything it was so slight, that is why I say 90% better. Incredible really how this treatment worked-nourished every gland in my body, detoxed the liver, balanced my hormones...
I got the flu in March 2004 after feeling great for months. I had not had the flu for 10 years. It lasted only 24 hours, but seemed to throw everything off balance, my period came early after the flu & it was bad, also at the same time, my Dr. changed the herbal treatment & we agreed to cut down further on treatment, as I was getting better, come to some maintenance plan. I explained which bottle of herbs worked & when I was the best, but he was not listening & sent me a different herbal combination...
I was getting worse again & did not want to continue with this Dr. who would not listen!!!I know my body come on. The prices were outrageous anyways, I could not afford it! Prayed so much what do I do? Felt the Lord leading me to another Naturopathic Dr., The nicest sweetest woman in the world she is & the price is amazingly low!!!! The treatment is easy compared to what I had done. She said mix the fish oil with cranberry juice, Hey no problem I can take this straight, nothing compared to what I had drank!!
5-19-2004 I have been seeing her for 3 weeks & incredibly feel an improvement already! period is not here yet, but am very hopeful. Less herbs, more vitamins, more progesterone cream, more diet...
I write this story & think wow I have been through a lot!!!! really don't feel that way though & everyone has always thought I am a very sunny person-they just did not see me in the down times I guess. One major difference is when I asked Christ in my life about 5 years ago, he is my true Peace, my Helper. I rarely worry about anything anymore & even though their are hard times in all of Life, I look back on all those years as a struggle, but not horrid or anything. Of course their are still emotional & physical down times, but what an amazing contrast in how I feel emotionally, to how I felt years ago without the Lord. This does not mean that my life will be perfect with Endometriosis, I am still having occasional pain & fatigue & do not know how this next period will be but I have Hope that he will pull me through.
6-8-2004 update: Doing pretty well, had 1 very bad PMS day, 1 extreme fatigue day & 1 bad sick feeling day & cramps were minor with the last period. The diet makes a big difference in energy-but hard to keep it up. Need to go to the store again for lots of fruits & vegetables. One problem is periods have gone to 21 day cycles-oh no!. This has been ever since I got the flu & stopped the major herbs from the 1st dr., I hope it balances out soon.
6-28-2004 period is back to 26 days yea! 2 days of pms but way better than last month, even so the depression is not fun, no sickness with period, but medium cramps (was on vacation & forgot many doses of progesterone cream) the homeopathic drops work great for pain, but very hard to keep up every 2 hours. New findings -adrenal gland fatigue (no wonder I am so tired!!!) diagnosed through saliva test & starting treatment for this which will take 6-12 months. Very glad to see results on paper that their is a reason for the fatigue- caused by stress & that this is treatable through my naturopathic Dr. Hoping to end this struggle with chronic fatigue soon.
Praise to you Lord Jesus Christ!!!!
Lori
www.theendoclub.com
Name: Heidi
email: hzartman@juno.com
Location: US
Date: June 2004
I always had very painful periods, and have also had years of chronic fatigue. I always thought these symptoms were due to my digestion, which is very bad. Doctors have never found anything wrong with me, though I have been to ER three times, unable to move or almost be moved. After having everyone refer me to a psychiatrist, I was through with conventional methods. Since I could not have a bowel movement without extremely high dosages of laxatives (causing more pain), and none of the natural medicines were making any difference I was advised to try taking enemas instead. I have learned to deal with the pain at my periods and other times by focus and breathing; and God has been good to get me through every time. A few days ago, I realised that it is ridiculous to continue expecting the rest of my life to be as limited as the last six years have been. I want to be a super wife to my husband: I want to have and raise children for God's glory. I want to do the grocery shopping regularly. I want to go to church more often than I miss! I have realised that all of my symptoms, including my digestion, fit with endometriosis. The Laparoscopy to diagnose is so expensive that I can't afford to find out for sure, but I am ordering the endo diet book, and I am absolutely committed to going through with it. I feel very hopeful that my body may, in time, recover completely: that in a few years I may be healthy. A few years isn't much if at the end you can be whole, as many of you must understand better than I do. The reason I'm sharing my story is because, after reading all these other very heartbreaking stories, (and stories from another site which was utterly depressing because of the lack of any success, or even many times hope-- lack of alternative medicine as well) I am extremely grateful for God's providence in keeping me from doing anything other than naturally. Otherwise I would have a bag instead of a stomach, and have psychological drugs messing with my brain and body chemistry; and I believe my symptoms would be much more acute. I am even grateful for the enemas, though I hope to be independent of them someday, because I think they have kept my body clean, which must have significantly helped me not to deteriorate to the point of emergency surgery. I hope everyone who reads this will try diet and natural remedies before resorting to things that have given so many women so much more pain, and haven't solved their problems-- that cut part of you out that you can't have back again when you realise that maybe, maybe you really can get well.
Name: Holly
Location: United States
email: holly@hermosa.ca
Date May 2004
I had a cyst rupture on one of my ovaries when i was 16. they removed the aftermath, i'm left with one ovary. i've had one laperscopy laser surgery to clean it up about 7 years ago. i'm 38 now, and took the pill on and off for 20 years. here's a question i would like answered: can endometriosis go away when you get older? i've been off the pill for 2 years now. haven't gotten pregnant, but i have regular periods, and no symptoms of endo any longer. i'm worried about becoming pregnant, but it seems like the female system isn't working, since i haven't gotten preggers yet...anyone had a similiar experience?
Name: Katrina Butler
Location: Austrailia
email: trina989@hotamil.com
Date: May 2004
I was diagnosed with Endometriosis about 3 years ago? One night i was in bed asleep when all of a sudden i woke up with this extreme pain, and i could hardly walk? the next day my boyfriend took me to the hospital where i was booked in to have a laparoscopy and that is when they found that i had endometriosis? I was only 20 at the time when they said i had endometriosis. i suffered extreme painful periods as well as pain i would end up in hospital for at least 1 week? i have had 9 laparoscopys already? In 2001 i was Booked in to have surgery in Sydney to get the endometriosis removed. i already have lost 3 children due to having endometriosis? and when i had the surgery in sydney the doctor told me that it would not come back for at least 4 years? But it was not exactly 12 months and the endometriosis had came back and now it is in the worst dtage that they have ever seen and i have to go back to Sydney in the next couple of months to have it removed again? i only want it removed so i can have atleast 1 baby. I have the endometriosis on my ovaries in my bowel, on my kidneys, and every where else you can get it? well that is all i can think of for now?
Name: Rocio Heil
Location: United States
email: Rocioheil@yahoo.com
Date: May 2004
I started having pain in my teens, but everyone would tell me that it was normal. It continued to get worse over the years and finally at age 20 I was diagnosed with Endo. Before I was diagnosed with Endo I saw so many different doctors and they treated me like an idiot, one even suggested that it was all in my head. I was misdiagnosed at first with ulcerative colitis then IBS, but the medication they gave me didn't help me and I knew that it was something that had to do with my reproductive system. I knew that there was something wrong because I couldn't handle the pain, especially during my cycle. I was missing work a lot, during my periods I couldn't even get up from bed; I would also bleed a whole lot. I have had two laparoscopies but the pain came back, then the doctor put in Lupron for six months, I took a five-month break and then re-started Lupron for another six months. So far Lupron has been what has worked for me; the side effects are awful but a lot better than the pain. I am currently seeing a fertility doctor and I am on Clomid, so far no luck though. I had an artificial insemination last month but it didn't work. I'm not even ovulating according to my blood tests. I think I will try for a couple more months, I don't think I can handle the pain much longer. I am going to start the Endo diet, hopefully that will help. I am willing to try anything because I am tired of being sick, I just want to live a normal life. The hardest thing for me is that my family doesn't understand what I am going through. I feel comfort knowing that other people on this web site know exactly what it's like. I exercise every day and that seems to help me with the pain, I have also lost 50lbs. and that minimized the pain too. Maybe the Endo diet will be the answer.
Name: Cher
Location: India
email: bcdm2000@hotmail.com
Date: May 2004
I am suffering from severe Endometriosis for several years. I have undergone nine unsuccessful surgeries. In Sept'03 I underwent a hernia surgery and after this operation the symptoms are scary. Like, uneasy feeling in the back and Renal area, feeling like worms moving around the body, bloating and fullness of the abdomen. I also feel like an un-easy feeling under the skin. Felt like something rolled and hit the left side of the abdomen. It is sad that doctors in Bombay are not well versed with this kind of a problem and I have to go thru' hell,pain and discomfort. I would like to come to Canada for treatment but, I do not know anyone there and where will I stay in case of surgery. I need the right doctor, right decision and right treatment. Do your doctor's come to India? What will the proceedures be to come to Canada. Looking forward to hearing from U soon. Thank U and God Bless.
Name: Barbara Paci
Location: United States
email: pacijoseph@aol.com
Date: May 2004
I am a 35 year old woman, who suffered terribly with endometriosis for many years. Ten years ago my doctors put me on a drug called lupron, as a treatment therapy for my endometriosis. This was the worst decision I had ever made. I turned into a person that not only I did not know, but that I did not like. I was newly married, and it became difficult on my new husband to deal with as well. I went through 2 rounds of lupron therapy, ending my last shot in august of 1995, at this time I was told to wait until my menstrual cycle returned naturally, before trying to conceive, and this would take anywhere between 1-3 months or in some cases up to 6 months. Being that my last shot was in August, I expected to get mine back approximately Nov. or Dec. In Oct, I began to get ill. I was vomitting, extemely tired, dizzy, and was missing a lot of work. I thought it could be coming off the drug, so I let some time pass,until the symptoms caused me to keep missing work. Then someone suggested to me to take a pregnancy test, and to myself I thought they dont know I cant be, because I had not gotten my cycle back yet, but it stuck in my head, and just befor Thanksgiving that November, I said could it be possible to be pregnant without having a cycle? So I stopped at the store, purchased a pregnancy kit, went straight home and took the test, and was shocked to learn I was indeed pregnant! My first thought was not one of joy, it was of total fear, how could I be pregnant, and was it going to be bad for the baby that I became pregnant befor getting my cycle back naturally, still obviously having the Lupron in my system? I ran to the phone and called my doctor, the assured me that it was not a problem, and scheduled me for an appointment. To make a long story shorter, my pregnancy was less than ideal, constant concerns over the health of my baby. Tons of sonograms, level 2 sonograms, amniocentisis, genetic counseling, and one of my last visits to a sepcialist, where the said they may have to take the baby early because he may not be thriving, his size seemed small, they called it inter uterine growth retartdation. My doctor agreed to the diagnosis but felt leaving him to term would be fine, and so we did. My son was born on July 9,1996, after an extremly difficult labor, everything seemed fine. Since an early age, probably 3-6 months I was told he was too small for his age, his growth was slow, so this kicked off a series of tests over a period of years, form minor to serious, all of which came back normal to our relief. When he was 18 mos. old he began with a speech therapist due to the fact that his skills were delayed significantly. He is now 7 years old and continues working with a speech therapist, he is diagnosed with a learning disability as well and his growth rate is still an issue, and he still undergoes testing in this area as well. At this time we are not sure if he has a disorder, or he was predestined to be small, we continue testing. My point to this story is that I truly feel that taking Lupron for my endometriosis may just have coused the many problems my son suffers from today. I welcome any information from anyone who could help me in my quest to uncover this. Or to hear from women who took Lupron for endometriosis (of other problems) and had a child directly following treatment, to see if any of there children suffer any problems, I am trying to see if there is a possible link involved. Please respond if any of this is you or your child, I feel deeply in my heart that the cause for my son's problems are due to the therapy treatment I chose, so many years ago to help my problem, which in hindsite, was not a problem compared to watching my son struggle everyday of his life, for the rest of his life. Thank you for allowing me the opportunity to tell my story.
Name: Sarah Fisher
Location: UK
email: N/A
Jan 2004
I am only 21 years of age and was diagnosed with endometriosis when I was 19. After suffereing from extremley painful periods from when they first started I was back and forth to the doctors for a long time. My mother was thankfully very persistent that I be referred to a specialist to my GP but the specialist was not very helpful either. I was advised to get myself more 'prepared' for my periods and try Evening Primrose oil!
The next period I had after this visit to the specialist resulted in me being taken to casualty in an ambulance as i could not move through the pain and i could not stop vomitting. I had to be physically carried I was in so much pain. After my visit in hospital I was booked in to have a laproscopy which found that I had an area of endometriosis cells on my stomach, this is what had been causing the vomitting everytime I had a period. I just thought I was unlucky that I always had a stomach upset at the same time as my period. I have been on various treatments for my endometriosis none of which I feel have been very successful as my periods eventually return to the normal level of pain.
I have been on hormonal treatments Provera and Zoladex injections. Zoladex injections were unpleasant as the injection tricks your body into thinking it is on the menopause. I suffered heavily from hot flushes, mood swings- I would cry at absolutly anything and the hot flushes were very embarrassing at times especially when i tried to explain to people why I was hvaing hot flushes when I was just 21. Before my endometriosis was diagnosed I had two colonoscopys as i was bleeding heavily from the bowel when i passed motion. I asked whether this could be related to my bad periods as I found that it happened when I was on my periods and the specialist said definetly not. But new research has shown that there is a link in some cases.
I also go through times when I cough I pass water which is very embarrasing and got so bad at one point that I had to make sure I did not wear light coloured trousers when I went out anywhere. Although I have had treatment for my Endometriosis I have recently just had another bad period and have decided to research into treating my endometriosis with diet. As I feel like I am at end of my tether, I am in my final year of university and cannot afford any time off with illness. I am currently taking the contraceptive pill continuosly but after coming across this website I have downloaded the Recipe book from the website and I am hoping that this will have some effect! So fingers crossed I am really hoping that it will improve my condition and way of life! I have written my story as I feel that not enough young girls/ women know about the condition and from my experience doctors are not very willing to send young girls/ women for a laproscopy.
I have found it very hard at times as none of my friends really understand what its like and It has been hard being away at university whilst trying to control my endometriosis. It has resulted in a lot of absence due to illness so I am hoping that in my final year I will be ok!
Name: SK Johnson
Age: 38
Location: UK
Email: N/A
Dec 2003
I have suffered from painful periods since my teens, I used to have to ask someone from my college class or my dad (who fortunately was self employed) to come and pick me up and take me home because the pains were so bad.
My doctor prescribed the pill, which did alleviate the problem for a few years. My PMS symptoms have increased, then in my late twenties I started to feel generally off colour all over and my PMS symptoms got very bad. After numerous visits to the doc for all sorts of ailments and each one being treated individually and with no real benefit, I decided to go to a homeopathic doctor to see if I could get a more complete picture and find out if there was a link to all these symptoms, (PMS, painful periods, tender breasts, headaches, painful intercourse, constipation, skin rash and spotty skin, indigestion, haemorrhoids, my hands going numb at night and waking me up with pins and needles and being generally very dry etc, etc.)
He diagnosed me with Candida. I didn't know an awful lot about it and continued to see a gynaecologist about the menstrual problems. She suspected Endometriosis and has suggested a laparoscopy and laser treatment to get rid of the endo. When I told my homeopathic doctor this he said of course Endometriosis is part of the Candida syndrome, but he warned that surgery on the endo does not always prevent it from returning if the original cause is not tackled, and that sometimes-unnecessary hysterectomies are performed.
I have spent two years having homeopathic treatment and there has been some good improvement, I at least felt that at last someone was treating the whole problem rather than each symptom individually. His treatment, however, is not that aggressive and from the research I have done so far I understand that when Candida overgrowth is very bad it needs to be treated in several different ways to really get rid of it totally. There is an awful lot of info on the net about Candida and Endometriosis is usually listed in the symptoms.
Candida is a very complicated disease and is the likely cause of a number of medical problems that are on the increase today. However unpleasant the treatment for it is (very strict diet and several types of medication) if it clears up the endo without having to have surgery it's got to be worth a try. Presumably when you have major surgery you probably have to have antibiotics afterwards and of course this is the worst thing to give a patient who has Candida.
I am not a doctor and wouldn't want to suggest that Candida is the only cause of Endometriosis, but I urge people to get different kinds of medical opinion, what I have learnt is that conventional treatment sometimes cures only the symptoms not the cause, and often causes the symptoms to become worse. I myself am about to go on a Candida elimination program and am also going to give acupuncture a try because I understand that that is extremely beneficial too.
So here's hoping!
S.K. Johnson.
Carolyn Levett
Dec 2003
Here is a brief account of my own story ……………………
The content and final outcome of my own story is a stark contrast from that of so many women around the world who suffer from this devastating disease.
The content differs because I did not go through the rounds of drugs, tests, operations, false hopes, mis-guided information, more drugs, more pain, worsening symptoms ….. need I go on; because so many of you know and experience this scenario - year in year out. It is utterly heart breaking.
The outcome of my story was based totally upon my absolute focus and conviction to get well, to get rid of Endometriosis, to banish this disease from my life. And I did. I took the slow, steady, gentle, and natural way using alternative therapies and LOTS of positive thinking. And the final outcome …… I did beat Endometriosis, and it never returned. It is nearly 10 years ago that I was given proof that I had beaten endo, by a visual inspection of my internal organs, with a laparoscopy, and the gyne said there was NO active endometriosis and that it had all dried up.
The reason for my second laparoscopy was based purely on a very strong intuitive feeling of the need to be checked internally. I felt something was amiss but I had no idea what, and I had no symptoms. In fact I was fitter than I had been in many years. During the operation one cyst was found on my ovary and treated, but like I said, all the other cysts and signs of Endometriosis had simply dried up.
My homeopath told me that this last cyst was the last physical evidence, the final manifestation of the disease. It was as though all the toxic debris and residue of endo had been moped up into one place, ready for the final treatment. My intuition to get checked internally despite feeling really fit and well, was so strong and would not go away. I tried to ignore it, knowing how fit I felt, but in the end my intuition was screaming at me.
I had worked with my homeopath for 4 years and together we went through ‘layers’ of healing, finally getting to the root causes of my ill health and Endometriosis. The disease was finally laid to rest with the support of homeopathic remedies and many steps I took to help myself. The final cyst on my ovary was the last ‘process’ in my healing, strange as that may sound. This cyst made my intuition kick in, which enabled me to get this last physical evidence cleared up once and for all.
Therefore, it wasn’t simply a case of ‘feeling better’ because my symptoms had subsided, and mine was not a case of simply going into remission, which is the term the medical profession would prefer to call it. I know at a gut level that I was healed. Totally healed.
When I had my first diagnostic laparoscopy, my gyne told me that I had the worst case of Endometriosis she had ever seen - so it is not as though my healing was easier or simpler or quicker because I had a mild case of Endo. No, quite the opposite. I had cysts all over my abdominal cavity and was advised to a have a total hysterectomy.
I have been reading so many desperate stories of women whose lives have been totally devastated by this disease. One woman had actually been omitted into hospital over 100 times. Women are cancelling entire chunks of their lives because of this disease. Many women are opting for a total hysterectomy in a last ditch attempt to gain relief from this disease. Millions of women are in despair of gaining any relief from the pain and agony associated with endo, never mind hoping to be cured or healed.
Which is why I am giving a brief insight into my own story - to give women hope and to spread the word that a ‘cure’, healing, remission, whatever you want to call it, can and does happen. There may be a few successes for women who choose conventional drugs and surgery to treat their endometriosis, but they are few and far between. The best successes are for those women who use natural and alternative treatments.
This is because using natural therapies are natural, and they enable your own body to do the healing by using your immune system to full force. Alternative therapies help you do this by strengthening your immune system. There is not one alternative therapy that does the healing for you - what they all do, without exception, is to help you to heal yourself. Ask any alternative health practitioner, and they will confirm this statement.
It does not matter if you use Homeopathy, Herbalism, Traditional Chinese Medicine, Acupuncture or whatever - they all work to the same basic ‘principle’; that healing comes from within, and any alternative therapy helps the patient to help themselves.
Deciding which alternative therapy to use is down to personal choice with a mixture of finding a practitioner you ‘click with’, combined with a therapy that suits you. For example, if you do not like needles then Acupuncture will not be for you; if you do not like taking strong tasting concoctions, then Herbalism may not be for you. Go for the therapy which ‘feels’ right for you, and it will be right for you.
The other reason why alternative therapies are superior to aid healing is because they are permanent, not temporary, as in the case of drug treatment. As soon as drug treatment is stopped then the symptoms of endo come rushing back with vengeance.
I do read stories of women who have tried different alternative therapies and have felt let down. They have only felt limited benefit from the therapy they have chosen. In every story I have read of women who have ‘tried’ one of the alternative therapies, and have not had total success, the limiting factor has been the time span. These women have not given the therapy a chance to work. They may have only tried a regime of homeopathy or herbalism or whatever, for a few months and then given up because they were not seeing significant improvements.
My own time scale with a homeopath was 4 years - not 4 months. I was committed and determined, and my homeopath forewarned me it could take a long time to get well. But I felt that the ultimate long term benefit of total healing was far better than temporary respite. Therefore, my advice is to see any treatment using alternative therapy for endometrisios as long term (but not permanent).
People are so used to the idea of a quick fix for things in life, especially with modern medicine. We are all so impatient. But if your body has taken years to become dis-eased then it will take a long time to repair the damage and get the body back into equilibrium and balance.
This has been more of a positive health and healing story rather then my own personal story of healing. The aim of my communication here is to provide hope that there are other possibilities to gain healing of Endometriosis. Evidence is mounting that it is possible, by the growing numbers of women who have achieved it.
The medical profession is not the ‘be all, and end all’ of health care for the human body. The medical profession is a relatively new phenomenon in the time scale of human society. Throughout history we have used herbs, healing, and essential oils. The practise of acupuncture goes back centuries; massage combined with oils goes way back in history.
Modern medicine is driven by pharmaceutical companies. There are very few doctors who develop new treatments for any of today’s illnesses and diseases. It is the drugs companies who develop new treatments in the form of new drugs. And guess what, that means more profits! I admit that there have been some wonderful developments in the field of medical surgery with the use of clever, and less invasive surgical techniques, like laser surgery and fibre optics, and many lives have been saved.
But when it comes to treating and healing diseases then modern medicine goes in with a sledge hammer, and does more harm than good. There are the dangers of side effects, some of which are permanent and very damaging to the body.
Your body chemistry is very delicate and the most delicate chemical system is the hormone system. We all know that endometriosis is fed and activated by hormones. In the human body, it takes only microscopic amounts of any given hormone to have a powerful and cascading effect in the body. These hormones are very potent, and yet the very treatment being offered for Endometriosis by modern medicine is synthetic hormonal drugs, which will obviously throw the body into disarray and upset a finely tuned orchestra of natural chemicals in the body.
Please be kind to your body. Healing yourself is simply a matter of being committed. A total commitment to change the way you are doing things. Do not leave it up to others; take control of your own health. I did, because after I heard my treatment options from modern medicine, and compared that to the treatment potential using natural therapies, I knew I had no choice.
Endometriosis stories page 2
Endometriosis stories page 3
Endometriosis stories page 4
Endometriosis stories page 5
Endometriosis stories page 6
Endometriosis stories page 7
Endometriosis stories page 8
Endometriosis stories page 9
Endometriosis stories page 10
Endometriosis stories page 11
Endometriosis stories page 12
Endometriosis stories page 13
Endometriosis stories page 14
Endometriosis stories page 15
Endometriosis stories page 16
Endometriosis stories page 17
Endo-resolved home
Articles | Your Feedback | Message Board | Resources and Links | Your Stories | Sitemap | Contact
Copyright (C) Endo-resolved.com
|