Endometriosis Symptoms
The symptoms of Endometriosis vary from one woman to another but the most common symptom is pelvic pain.
One of the biggest problems regarding Endometriosis is that the signs of this disease in the early stages, appear to be the ‘normal’ bodily changes that take place with the menstrual cycle.
It is only as time goes by that a woman begins to suspect that what is happening, and the symptoms she feels are not normal. The pain of her menstrual cycle gradually and steadily becomes worse and worse as the months go by. This is only the beginning of what will become a gradual decline in a woman’s general health, as well as the health of her reproductive system.
Read what other women have said about their most common and difficult symptoms
Having said that, there are odd instances where some women do actually have Endometriosis, but they are nearly free of any symptoms. These women will only be diagnosed by default, for example when they have surgery for other issues, and only then is Endometriosis found. That is what makes this disease so enigmatic.Endometriosis does not follow any distinct pattern, which is why it is difficult for the medical profession to know that a woman has the disease. Some of the symptoms will mimic those of other health problems, including: - ovarian cysts
- ectopic pregnancy
- Pelvic Inflammatory Disease
- irritable bowel syndrome
- ovarian cancer
- fibroid tumours
- colon cancer
- appendicitis
The most common symptoms of Endometriosis are:
- Pain before and during periods
- Pain with intercourse
- General, chronic pelvic pain throughout the month
- Low back pain
- Heavy and/or irregular periods
- Painful bowel movements, especially during menstruation
- Painful urination during menstruation
- Fatigue
- Infertility
- Diarrhoea or constipation
Other symptoms which are common with Endometriosis include:- Headaches
- Low grade fevers
- Depression
- Hypoglycaemia (low blood sugar)
- Anxiety
- Susceptibility to infections, allergies
In the later stages of Endometriosis, adhesions usually develop in the pelvic cavity, which are caused by untreated cysts, which can ‘glue’ pelvic organs together. These adhesions will seriously interfere with normal functions of organs in the pelvis, causing bowel obstructions, digestive problems, infertility, urinary problems, agonizing pains when the adhesions are pulled, mobility problems. As Endometriosis develops a woman’s immune system becomes more and more impaired and this leads to further health problems. Due to increased research, as well as surveys of Endometriosis patients, it is now becoming clear that women with the disease are susceptible to other serious health problems including: - Chronic Fatigue Syndrome (100 times more common in women with endometriosis)
- ME Hypothyroidism - under-active Thyroid gland (7 times more common in women with endometriosis)
- Fibromyalgia
- Rheumatoid arthritis
Some of these findings are from data of the world’s largest research registry on Endometriosis, which includes figures for the women with the disease, as well as members of her family. These figures are not conclusive and do not give the whole picture to include geography, economics etc. They do show that women with Endometriosis are slightly more susceptible to these other diseases, but other members of their family seem to have a higher percentage of risk to develop these diseases. So we could be looking at environmental health issues here, rather than the results relating solely to Endometriosis.It does seem clear that as women with Endometriosis are more receptive to other health problems, then their immune system is the key to their problems. No two women will have the same symptoms for Endometriosis, and will not suffer the same knock-on health problems, but the most common symptom experienced among Endometriosis sufferers is acute pain.
In some instances the pain of Endometriosis can prohibit a woman to partake in every day activities as well as her ability to sustain a career.
What you can do to help yourself For advice on different ways to deal with the pain of Endometriosis read the advice here of the different things you can do.
Many women are seeing a great reduction in their symptoms by following the diet for endometriosis. You will find clear and comprehensive advice about the endo diet here
Possible Locations of Endometriosis

Endometriosis symptoms in relation to location of the disease in the bodyReproductive Area Endometriosis There are various areas where endometrial tissue can develop in the pelvic cavity including:
- Ovaries
- The outside surface of the uterus
- Fallopian tubes
- Ligaments supporting the uterus
- Internal region between the rectum and the vagina
- Lining of the pelvic cavity
- Intestines
- Bowels
- Other organs within the abdomen
Pelvic painPelvic pain is one of the most common symptoms of Endometriosis. The pelvic pain of Endometriosis can be excruciating and debilitating for many women. It may be experienced constantly, it may be intermittent or it may be related solely to the menstrual period. Pain can be provoked by certain activities such as walking, standing too long etc., or it may occur unpredictably.
Occasionally abdominal and pelvic pain may be caused by Irritable Bowel Syndrome (IBS). These two diseases are quite common together, so it is advised to take note of the times you experience pelvic pain, as it may coincide after meal times.
Lower Back Pain Lower back pain is another common but poorly recognized symptom that often accompanies period pain. It is commonly associated with endometriosis in the pouch of Douglas, uterosacral ligaments, and rectovaginal septum.
Ovulation Pain Ovulation pain can occur in women who do not have Endometriosis, but this pain will normally be a small twinge. In women with Endometriosis, ovulation pain can be rather acute. Pain usually begins 12-24 hours before ovulation and may last for a few days. It results from the normal enlargement of the ovary during ovulation which causes stretching of endometrial implants and adhesions lying on the surface of the ovary. The pain is often described as ‘stabbing’ and it may radiate throughout the pelvic area and into the buttocks and thighs.
The Main Reproductive symptoms of Endometriosis are:
- Chronic or intermittent pelvic pain
- Ectopic (tubal) pregnancy
- Dysmenorrhea (painful menstruation is not normal!)
- Infertility
- Miscarriage(s)
- Painful ovulation
Uterosacral/Presacral Nerve Endometriosis- Backache
- Leg pain
- Painful Intercourse
Cul-de-sac ("Pouch of Douglas") Endometriosis- Dyspareunia (pain during intercourse)
- Gastrointestinal symptoms
- Pain after intercourse
Gastrointestinal Endometriosis(rectosigmoid colon, rectovaginal septum, small bowel, rectum, large bowel, appendix, gallbladder, intestinal tract)
The bowel symptoms of endometriosis are often overlooked or dismissed because many people think endometriosis affects only the reproductive organs. Many bowel symptoms are caused by irritation to the bowel from endometrial implants lying on adjacent areas such as the Pouch of Douglas and the back of the uterus, but some are due to endometrial deposits lying on the outside of the bowel wall.
The gastrointestinal disorder which is most common with Endometriosis is Irritable Bowel Syndrome which can cause many of the bowel symptoms mentioned above. Candida has also been found to be prevalent in women with Endometriosis, and this too can cause many distressing digestive upsets and discomfort.
The main gastrointestinal symptoms of Endometriosis are:- Nausea
- Diarrhoea
- Blood in stool
- Bloating
- Vomiting
- Rectal pain
- Rectal bleeding
- Tailbone pain
- Abdominal cramping
- Constipation
- Sharp gas pains
- Painful bowel movements
For more information on Intestinal endometriosis read this informative article here
Other Locations and Symptoms of EndometriosisUrinary Tract (bladder, kidneys, urethras, and urethra) Endometriosis The urinary tract symptoms of Endometriosis are usually the result of endometriosis lying on the outside of the bladder or irritation from endometrial implants lying on the front of the uterus. The main symptoms of urinary tract Endometriosis are:- Blood in urine
- Painful or burning urination
- Hypertension
- Tenderness around the kidneys
- Flank pain radiating toward the groin
- Urinary frequency, retention, or urgency
Pleural (lung & chest cavity) Endometriosis Very occasionally Endometriosis can travel to the lungs, which will give rise to strange symptoms, and are usually relate to the menstrual cycle.- Coughing up of blood or bloody sputum, particularly coinciding with menses
- Accumulation of air or gas in the chest cavity
- Constricting chest pain and/or shoulder pain
- Collection of blood and/or pulmonary nodule in chest cavity (revealed under testing)
- Shortness of breath
Sciatic Endometriosis/ Hip painsHip pain or pain that radiates from the buttock and down the leg is common in women where endometriosis has affected the sciatic nerve. Also, endometriosis in the groin area can feel like hip pain.
On occasion endometrial adhesions can restrict the hip ligaments, causing pain and limping. Hip joint pain that worsens in a cyclical fashion in line with the menstrual cycle will usually be caused by endometriosis.
Surgical treatment to remove endometrial implants is sometimes undertaken in the hope of relieving the hip joint pain associated with endometriosis.
Skin Endometriosis- Painful nodules, often visible to the naked eye, at the skin's surface. Can bleed during menses and/or appear blue upon inspection.
Dyspareunia (painful sexual intercourse)Dyspareunia is a common symptom of Endometriosis. Pain may be felt during intercourse as well as up to 48 hours after sexual activity. It is often associated with endometriosis in the pouch of Douglas or adhesions in the pelvic cavity.
Fatigue Fatigue and Endometriosis seem to go hand in hand. No-one knows what causes the acute fatigue women suffer with Endometriosis, and is not often recognized as a symptom of Endometriosis. Fatigue can be one of the most debilitating aspects of the disease, and most women with endometriosis experience fatigue around the time of their period and some experience it throughout the month. The fatigue may be related to the constant pain and/or medication, or it could be the bodies reaction to the disease at a deeper level. For advice on how to cope with the fatigue of Endometriosis see this useful article on Endometriosis and Fatigue for advice.
Abdominal Bloating Abdominal bloating may be a sign of endometriosis. It is thought to be due to inflammation in the pelvic cavity caused by the endometriosis. As mentioned above, Irritable Bowel Syndrome (IBS) can cause pelvic pain, and can also cause severe abdominal bloating. With IBS, the bloating is usually caused by intestinal gasses which expand and distend the abdomen and can cause severe pain and discomfort. IBS is very common in women with Endometriosis. For further details of Irritable Bowel Syndrome read this useful article.
Share your experience of the most common or difficult symptoms with other readers
Have your symptoms totally taken over your life, or can you still cope? Share your own experience of your endometriosis symptoms.
Read what other women have said
Click below to see contributions from other women to this page...
Scared my symptoms point to endometriosis in my lung.
    
Endometriosis gradually getting worse ...
I can't take deep breaths and it feels like someone is sticking needles in my lung. I just don't know what ...
Left ovary removed 6 years ago due to endomettiosis
    
I have a 5cm cyst on my right ovary now & I might have to undergo a hysterectomy... :(
I'm 34 years old and have not been able to conceive. I want ...
Will my endometriosis return if I come off depo-provera injections
    
I have suffered from endometriosis for 12 years. Luckily I conceived my only child during this time. When I was 37 I asked for a hysterectomy and was told ...
Living everyday life with endometriosis!!
    
I found out I had severe endometriosis at a very young age. I have the disease on all of my organs. I have had 4 different surgeries. All of my organs ...
My symptoms are worse with stress and also with what i eat
    
I have had endometriosis since i was 12 years old which was when my periods started, I didn't know I had endometriosis until i was diagnosed which was ...
Symptom of pelvic pain since I was 16
    
I had symptoms of extremely intense cramps when I was young and during the first years of having my period. This seemed normal to me, being that my mother ...
Stressful symptoms of Endometriosis
    
Endometriosis sufferers share some of their distressing endometriosis symptoms
Diagnosed with endometriosis had no pain symptoms
    
I went in to see the doctor but I had no symptoms of endometriosis. I wanted to check to see if my Mirena was still in place. When the doctor did a sonogram,...
Started natural treatments and reduced my symptoms
Not rated yet
As many others have written, I had very painful periods as a teenager, but everyone said it was normal. I got married when I was 22, went on the pill immediately....
I have seen improvement with my symptoms with the diet
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My endometriosis symptoms used to be very, very painful with my periods and at other times of the month as well.
I would feel sick and nauseous before ...
My endometriosis symptoms are ruining my life!
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Suffering for 9 years with pain from endometriosis.
I have constant hip and lower back pain...not to mention the pelvic pain! I feel like little monsters ...
I finally have an answer to my pain symptoms and don't need to feel crazy any more.
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Suffering extremely painful periods, with a long time to get diagnosed with endometriosis ....
Ever since I got my first period at age 13 I have suffered ...
Many severe symptoms and 10 years for diagnosis
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I was diagnosed with severe endometriosis (stage 4) on November 2011. I am 30 years old and starting having symptoms since I was 19. When I was a teenager ...
Symptoms so bad I can't walk
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My pelvic pain with endometriosis is constant most of the time and I'm bend over in pain. I hold out my underwear away from my stomach because even that ...
Endometriosis symptoms all the time
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My symptoms of endometriosis are affecting my general health every day. I have all the main symptoms of pain with my periods which can be very, very severe....
Extremely Painful Urination Symptoms :(
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Fatigue, painful bowel movements, and painful urination are the worst symptoms of my endometriosis.
Urinating while I have my period is agonizing:...
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