Endometriosis Stories - Page 21

Name: Kelly
Email: Kelly_babe83@yahoo.com
Location: United States
Date Oct 2008:

My name is Kelly I am 25 and have one child, I was just told that I have endometriosis I have been trying to have a other child for 2 years and have had more pain in the last 4 month then in my life I went to the doc and the only thing he could tell me is that I need surgery but my insurance will not cover it for other 10 months so I sit here is pain he wrote me a pain med that does not work and birth control that I wont take I miss a lot of work and time with my daughter and Husband because I am in pain the only way to describe my pain is at least 23 hour a day I fill like I am giving birth, I fill like the doctor did not listen to me or even understand what I am going thought I am trying to get a 2 option to see what I can do for the pain in till My insurance will cover it and reading all your stories make me even more upset with the doctor he never told me I would have this for life I really don’t even know what it is but if any one can help me out with the pain, what are something’s you might do to help it what kinds of meds have you found that work I don’t have the money to pay for the surgery my self or I would. Please if any one can let me know Kelly_babe83@yahoo.com


Name: PAM DAVIS
Email: b72kids@yahoo.com
Date: Oct 2008

I ALWAYS HAD BAD MONTHLY'S BUT ABOUT AGE 19 IT REALLY STARTED TAKE A HOLD OF ME. BUT EACH TIME I WENT TO THE M.D. I WAS BASICALLY TOLD TO SUCK IT UP. ONE M.D. TOLD ME TO SEE THE HEAD DOCTOR [ LOT OF HELP HE WAS ]. THEN IN MY EARLY FORTY'S I FOUND A DOC THAT SAID I HAD ENDO. I WAS GIVEN LUPRON INJECTION, WHICH LAST FOR 6-8 MONTHS THEN I WAS RIGHT BACK WHERE I STARTED AGAIN. THEN HE GAVE ME A SECOND ROUND OF INJECTONS. WELL THEN I ENDED UP HAVING A EMERGENCY [ H ] TOOK IT ALL WHICH BY THEN I WAS READY TO GIVE ALL FEMALE PARTS UP JUST TO STOP THE PAIN. I HAVE SOME VERY BAD SIDE EFFECTS FROM THIS MEDICINE. SO PLEASE BE CAREFULL WHAT YOU TAKE FOR THIS ILLNESS. I 'AM HAVING A HARD TIME GETTING M.D. TO BELIVE ME THAT MY NEW PROBLEMS IS DUE TO THE LUPRON. BUT I KNOW IT IS! IF ANYBODY HAS HAD LUPRON AND NOW FEEL IT CAUSED TROUBLE PLEASE CONTACT ME b72kids@yahoo.com


Name: Charlie Fisher
Email: charlotte.fisher.counsellor@gmail.com
Location: United Kingdom
Date: Oct 2008

I am 29 years old and live in Plymouth, England. I am sure I have Endometriosis, though I am not officially diagnosed since I declined the Laparoscopy. I didn't want an operation if it was purely to diagnose me. I was concerned about the "Lap" aggravating my condition and causing the spread of endometrial lesions/ growths/ whatever. I didn't want to undergo something that wasn't 100% necessary. Other tests that I underwent ruled out the likelihood of other possible causes (such as cancer), but did not confirm "Endo". My sore abdomen was examined by the GP, I had blood tests, a cervical pap smear, my vagina was physically examined. I had an ultrasound scan, an internal ultrasound scan and a sample was taken from my cervix with the help of a scalpel. This was all not very pleasant, as I'm sure most of you know from experience. My main symptoms have been pain and swelling around the time of my period to such an extent that I could not function most of the time. I would experience cramps that I’m sure are normally associated with childbirth!! My womb and large intestines felt very much as though they were tied up, twisted and blocked by swelling/ twisting during my period and the week afterwards. Trapped wind caused great pain and bowel movements were agony - to the extent where I have nearly passed out and screamed in pain. I also felt extremely tired, sluggish and bad-tempered due to the pain. I feared being on my own with the pain and I feared that my insides might actually tear or rupture. I have found ways of dealing with the pain and I want to share these with you all, since there are so many people who seem to be in so much pain and distress. We do not know what causes Endometriosis and this makes it really hard to then know how to treat it. It is a kind of Disorder in the body, where parts of our womb lining seem to have got where they shouldn't and cause all sorts of agony. The main question for me was, what can I do to help my body become more healthy and functional, to prevent what is there from worsening or even to heal? 1) Acupuncture - this requires patience, because it does not provide results straight away, but it did seem to help me, so I would recommend it. I did this for nearly a year. 2) Katsugen undo - this is hardly known about - it is a series of exercises designed to stimulate the body's own healing capabilities, by initiating a trance-like dance/ rhythm/ movements. I do this whenever I feel the need. 3) Evening Primrose Oil, which I take with Cod Liver Oil since I also struggle with aching joints and muscles sometimes. Evening primrose oil helps to regulate hormones. 4) Multivitamin and multimineral tablet. I do eat healthily, but I figure it can't hurt. Certainly, the stress of the pain I experience and blood loss is likely to take from my body's resources in some way. 5) Avoiding chilli. For some reason, this mimics the swelling that happens in my bowels and causes me pains that I normally associate with my period, so I stay well away from it. 6) Yoga. I do the Salute to the Sun series most days at present. 7) Being on the contraceptive pill or patch seems to reduce symptoms, though I do worry about what impact it has long term on Endometriosis. I cannot make up my mind on this one. The other question for me was, what can I do to help at the time of my period to reduce pain? 1) Mefenamic Acid (anti inflammatory drug) prescribed by my GP does work if I take it from just before my period all the way through. If I take it sporadically, it is not so effective since my body has then had a chance to swell and then gets to the point where I feel the pain too much. I have started substituting this for my own ginger tea (liberal amount of ginger grated into a teapot, sieved and served with Manuka honey) since ginger has an anti-inflammatory effect naturally and aids digestion. 2) Drink lots of water/ fluids. This seems to help my bowel function too. 3) Apply a heated lavender and wheatgrass bag to abdomen. 4) Doing yoga stretches (avoid inverted poses during menstruation) My Iyengar Yoga book has specific poses to help menstrual pain. 5) Exercise. Last time, after my ginger tea and my stretches, I headed out on a bicycle with a friend in the woods. Although I was nervous and I did have to stop a couple of times due to feeling faint, I do think it really helped me to get things moving. My period seemed shorter and really was less painful. I definitely functioned better than usual. 6) Calendula cream applied to abdomen seems to help calm. I hope this helps. I wanted to have something positive to give you all hope. I say: do everything you can to improve the quality of your life. Look for the long term, not just quick fix solutions. Look for the least disruptive, least risky, most natural route. I feel that I my bowels and womb have become less twisted and that my endometriosis is no longer taking over my life completely. I still get pain, but it is manageable and it passes. One other thing that concerns me is my fertility. I am 30 very soon and I do not know if I will be able to have children. So far, I have not tried since I have not been with a partner who was willing to commit on that level.


Name: Itumeleng Yimba
Email: tumiyimba@yahoo.com
Location: South Africa
Date: Oct 2008

I was diagnosed with endometriosis stage 2 on the 11th october 2008. It didn't come as a shock as already I felt that there was something wrong with me. I was constantly fatigued, had continuous irritable bowel syndrome, pelvic pain, back pain and headaches. It's been only a week and I'm still trying to figure it out. It's hard though, I'm trying to change the way I eat and recovering from the laparoscopy. My god has the answer.


Name: Natalie
Email: reception@waratahchambers.com.au
Date: Oct 2008

I have been suffering with Endometriosis since I was 16. It is so hard to describe to other people what that pain is like, it takes control of your life and it is so good to be able to hear other people share their stories, but mostly people who i can relate to. I am now nearly 19 and will soon be having my second Laparoscopy to remove the Endometriosis that has grown back, the medicine that i am on at the moment are so strong and make you feeling drowsy and sick, having endometriosis really takes over your life. I have just purchased the book on recipes to help people with endometriosis and I do think it will help me because there has been a lot of positive feedback. I hope things will start to change because i know it will keep on growing back and I am still very young, but I am sure there is hope.


Name: Anna Guzman
Email: annamichelle_guzman@yahoo.com
Location: United States
Date: Nov 2008

Pain....24/7 Hi My name is Anna and I’m 26 years old. I have a very large family. 3 brothers and my dear parents. My wish was to have kids....Unfortunately that has not happened. I suffer from Endometriosis stage 3. This disease is the most painful thing you could ever go through, i think the fact that you can’t get pregnant is more painful than anything. I have a wonderful boyfriend and he wants kids, but with this disease i don’t think is possible. I was diagnosed with Endometriosis when i was 22 yrs old. When i was young my parents use to take me to the hospital because i use to wake up screaming of pain.....they never found out what it was. Went to so many doctors visits and couldn’t find out what was causing the problem. i was 16 when i got my period that is very late..lol but i got it. So, i hope to god i have kids because this is killing me......all i want a child. Its to expensive. i will love my baby like i never loved anyone! Anna.




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