Endometriosis Stories - Page 13

Name: Lisa Kowalis
Email: k_oloughlin@hotmail.com
Location: United States
Date: April 2007

I'm 32 years old and was recently diagnosed with endometriosis March 2007. I had been ill for three years, the same symptoms pelvic pain, back pain and pain with sex. I went to my regular physician who had me go to every doctor ending in ologist. Nobody could help and even when I went to my OBGYN he would say I was overweight, needed to exercise, needed to buy a better bra. The fact was I had never weighed over 145 and I now was 215. I did exercise, I worked in a nursing home and was on my feet all day, I'm very active and have two girls 10 and 14. I was getting sicker, i would throw up, sometimes not eat at all because my stomach always hurt, but every doctor you can't be not putting food in and gaining weight. I ate less now than ever but continued gaining. Then I began with discharge from my breasts, they sent me to a doctor and nothing, all in my head, it could be the hot showers stimulating it or sex, I was only concerned because my grandma has breast cancer but nothing turned up. Everyone around me was beginning to think she’s crazy, they all have periods just get over it, if doctors couldn't find it, nothings wrong so I quit going to the doctor. But in April 2006 I found out I was pregnant and in July 06 I miscarried. I then began with a horrible cold I couldn't get rid of and in Oct.06 I still had this cold so I went back to the doctor nothing, again i was feeling worse my back pain was keeping me from getting out of and my periods were keeping me from work, family everyday life. i had fever, night sweats, vomiting and pain, severe pain. but nobody knew why. I was beginning to think i was crazy, we even thought it's our house, maybe mold, nope. Maybe I over do it, so I started doing less, maybe it's our mattress, bought a knew one, new bras, diets, exercise, yoga, nothing worked, I maintained 215 this entire time never losing or gaining. Then I went back to the doctor I couldn't get out of bed my back pain was so severe, he said I should see this gastro doctor, i'd seen him before like all the others he believed it was female related and I was sure he still would, but he said we need to do a colonoscopy and endoscope. That was on a Monday everything looked good with my colon great but he wanted to send on stuff to the OBGYN, I get the call that we need to come in and we do I'm being told I have to have surgery now to go in for possible staging of ovarian cancer, What??? This is on a Thursday, and I'm being told this by the same person who I've gone to for 11 years, delivered my child, but when I've come in for three years with the same complaint BACK PAIN, PELVIC PAIN< BAD PERIODS, I was told exercise, better bra, tilted uterus no big deal it's all normal. That following Monday they did a partial hysterectomy(RIGHT OVARY AND TUBE) I thankfully didn't have Cancer it was Endometriosis, It was so severe he had to scrap it off other organs, I had a chocolate cysts the size of a grapefruit on my right ovary, he had to call another doctor in to assist because it had imbedded itself and he could not remove it alone. He wanted to remove everything but my spouse didn't allow it. I will say when I awoke i was thankful no cancer but I was more thankful that right away NO Back Pain. All this time I was made to feel crazy and i had this little voice inside that kept telling me no something’s wrong but eventually i started to believe it. Now I'm just trying to deal with all of it one day at a time.


Name: Charonda Jackson
Email: dirtybutt0920@yahoo.com
Location: United States
Date: April 2007

STILL SUFFERING IM A 23 YEAR OLD FEMALE.I WAS TOLD AT THE AGE OF 19 I HAD ENDOMETRIOSIS.JUST MONTHS AFTER I HAD MY NOW THREE YEAR OLD SON.I'VE HAD SURGERY IN WHICH NEARLY TWO MONTHS LATER WHAT WAS SUPPOSED TO BE REMOVED GREW BACK.THE DOCTOR'S NEVER REALLY EXPLAINED MUCH TO ME,OR THAT THIS WOULD AFFECT ME FOREVER.I'M CONSTANTLY IN PAIN EVEN WHEN IM NOT ON MY MENSTURAL.AT TIMES THE ONLY COMFORT I GET IS IF I JUST HOLD MY STOMACH.MY CYST I GUESS THAT'S WHAT THEIR CALLED IS SO BIG YOU CAN ACTUALLY SEE IT.IT'S THE SIZE OF A GOLF BALL MAYBE EVEN BIGGER.AT TIMES I CANT WEAR CLOTHING OF MY CHOICE,BECAUSE CLOTHING OR UNDERGARMENTS CAUSE PAIN ALSO.I'M SORRY TO HEAR OTHER WOMEN GO THROUGH THESE PROBLEM OR DEAL WITH ENDOMETRIOSIS AS WELL.YET I'M HAPPY TO KNOW I'M NOT ALONE AND SOMONE CAN RELATE TO ME.SOME PEOPLE CAN BE INSENSITIVE TO THE PROBLEMS AND PAIN I DEAL WITH ON THE DAY TO DAY BASIS.


Name: Katie Fleischmann
Email: kfleischmann@charter.net
Location: United States
Date: Apr 2007

I didn't ever think I would have to look at another endo site again but I am here because it's back! I am 29yrs. old and I was told I had endo when I was 18 and since then I have had 5 Lathro's and a part hyster leaving my ovaries for my 24th Birthday. I have been on Lupron- don't ever take it, I don't care what your Dr. says and it does stop periods but I have gained over 60lbs. that I can't get off for 5yrs. now and that is exercising 2hrs. 5 days a week. I knew a District Manager for a drug rep co. and she herself a sufferer had said that Lupron has some of the nasties things in it and is a very bad drug, coming from a drug rep.! I have been on Depo and nothing has helped. I too take pain meds to make it through most of my days but I hate the way it makes me feel and some don't even work anymore. I had thought everything was fine but within the last month I am feeling that same old pain again. I had to stop going to school because of the surgeries and pain and had to work full time just to afford insurance to pay for all of my surgeries. I just started going back to school and have one more semester left all I want to do is finish school before I am 30. I have made an appointment today to see my Dr. to see if we can take out the ovaries. I am in a relationship and my boyfriend of 3yrs. would love to have a child but he knows my situation and the costs of having someone carry a child for us plus all the extraction and freezing fees would leave us with no home! I understand everyones pain and ask that everyone stick together because even though we are all in pain this is the only therapy-talk therapy that is of any comfort. So please do not take Lupron, Depo maybe and for God sake no inhalers, I have been there too and had a reaction so bad it blistered my face! Good Luck to everyone and think of the the ocean.....it's where we'd all rather be! ~Katie


Name: ChristiMarie
Email: Vosamormihi@aol.com
Location: United States
Date: May 2007

I just turned 20 years old not even a month ago. My period started when I was 8 or 9 and they have been heavy since the very beginning. I got on depo-provera when I was 12 just to stop my periods since they were so heavy that I would be soooo tired all the time and would go through 15 or so pads a day. Well, I got off depo when I was 15. My first period after that I felt so crappy in general. I remember going to the clinic, getting a tampon and going back to class to set my head down on my desk. The bell rang and I was so weak I could hardly stand up but when I did stand I collapsed on the floor in pain. 15 years old, screaming my head off and crying buckets in front of everyone... all the teachers were asking me if someone hit me or if I was on drugs... uhh no. I told them I thought I had TSS (Toxic shock syndrome) or something. But I really had no clue what was wrong with me. I was hospitalized for almost a week that time with no answers except "Menorrhea"... painful cramps. Yeah, this wasn't a case of bad cramps. I kept having pain and my OBGYN put me on Ibuprophen 800... which did nothing. Then Naproxin... nothing. My mom suggested endometriosis because it was something she had learned about in Nursing School. They scheduled surgery when I was 15, a laporoscopy. I went in, had surgery, woke up... apparently nothing was done. Not only did they find endometriosis, they found a huge tumor on my fallopian tube. So they just closed me up and were waiting to do an invasive abdominal surgery. Few months went by, I was staying home from school by now because the pain was so bad I couldn't stay an entire day without going to the clinic for a few hours. I had my surgery and they took everything out. The endometriosis had spread pretty bad, there was even some on my liver. The pain went away for a few months, I got on the pill, it didn't help, but it made it to where I knew when the pain would come and I would be prepared for it... but because of my age, I was never givin anything more than IB 800 for pain. I got off the pill because it just got too expensive and my insurance DROPPED me for using it too much. I eventually stopped having my periods but I would still have the pain once a month. Well... since December of last year I've had my period every month... and been in constant pain. THis month I've had it twice... GO ME! woo! I'm waiting on my boyfriend to get off work so he can take me to the ER once again for morphine and vicodin. It's the only thing that helps anymore. I feel like a drug seeker... I know I look like one. I'm typing this now hunched over and while not good for my back, it's allowing me to sit upright somewhat without crying. Oh and this period has already lasted 10 days and I go through about 20 tampons a day. I'm trying to figure out if I can collect SSI/disability because of this. I have been fired from so many jobs because I've had to call in sick and they said I was unreliable. I work from home but it's not stable at all and I feel horrible that my boyfriend might have to support me because I can't afford this stupid surgery or any of the treatment. 2 hospitals won't even see me unless it's through the ER because I owe them so much money. Insurance companies won't insure me because I have endometriosis... and if they do it's a 5,000 deductable and they won't treat gyno conditions for at least a year. To put it simply... this is BS. It really is. It's wrecking my life and I don't know what to do about it... It's making me depressed and all I do is cry anymore. This blows... royally.


Name:Rachel Matharu
Email: rach.matharu@sky.com
Location: United Kingdom
Date: May 2007

i have been suffering with my periods etc from the age of 13. in the last 5 years i have had 3 laparoscopies as a day case at my local hospital. Endometriosis has been found each time and lasered off but recurred. i then went to see an Endometrosis Specialist, Mr A Trehan who practices at Dewsbury & District Hospital, West Yorkshire. He is one of the best Endometriosis Specialists in the country and speaks at conferences all around the world about endometrosis and its affects. After consulting with Mr Trehan i was told "lasering" the endometriosis was basically a waste of time because it will just grow back again. After a long discussion i was placed on the waiting list for Radical Excision of Endometriosis. I had this operation in February of this year. It is a major operation and can last up to 8 hours. The endometriosis is not lasered off but cut out so it won't return again. After surgery Mr Trehan told me they and cut all the lining of my womb away because it was affected with endometriosis, some scaring also had to be cut away (that's where it was lasered off when i had previous laparoscopies). Cysts where also found on my ovaries and these were drilled. I know PCOS is an affect of endometriosis and this is what was with me. I had all the symptoms post op, weight gain, tiredness, stomach pain and infertility. i am now 3 month post op and i am so glad i had the operation. i was wary at first because Radical Excision of Endometriosis is a major operation and they have to cut close to other vital areas. Puffiness and weight dropped off me straight away, i no longer feel tired and my periods are now regular with virtually no pain. Before this operation i feel i have been passed around from Doctor to Doctor and had procedures and operations that haven't helped or been needed. i now feel so much better and the next step is trying for children which i have been told should be no problem because of the operation. before the operation i felt like no-one would listen but i just want people to know there is a light at the end of the tunnel and if you have any questions about this procedure (it is scary when explained to you by Specialists but worth it when it's done) or any details on how to contact the Specialist i had, Mr Trehan please don't hesitate to e-mail: rach.matharu@sky.com or rach.matharu@hotmail.com Endometriosis is a medical problem that affects so many different areas of the body, not just the reproductive system. Diets also help and i recommend Black Cohosh tablets (you can pick these up from any herbalist, Holland and Barratt etc). After my operation i noticed that my skin and hair were much better, i wasn't passing urine as much, my skin wasn't dry (on feet etc) and silly things like my eyes were whiter and nails were tougher. It really is unbelievable what this condition can do to you, hopefully my story could help a few of you out there. thanks.


Name: Shawntina Cox
Email: admired103@yahoo.com
Location: United States
Date: May 2007

I'm a "single" 24 yr old. I've read the Endo testimonies and the one thing I've noticed about these women is that 99% of these women have at at least 1 child. I have none. Yes, the pain is HELL...But for me, the emotional pain is even worst. I've always wanted to be a mommy. I think about it everyday. I've suffered from this disease for at least 3-4 yrs. I've went to doctors during that time with my concerns and my pain wasn't taken seriously by ANYONE. I did the research and I diagnosed myself. I finally found a doc that believed in me. Well, I just received a laparoscopy and as I suspected, I had endometriosis. They found fibroids, cysts, a rupture cyst, and a slightly damaged right fallopian tube. I thought my pain was over once the surgery was done. WRONG... I'm in pain as we speak. I too have had unprotected sex over the past yrs (in committed relationships of course) and I never got pregnant. I have 4 Aunts in my family with this disease. Due to pain, multiple surgery, and emotional stress, they all received a hysterectomy. I feel like my biological clock is ticking n I'm only 24. I know that it's going to return but before it does I want to try to conceive but what do you do when your a full time worker, part time college student, an emotional wreck w/o a guy to start out with? There's alot of pressure there. For those of you with children, please be grateful. I understand the pain can be horrible (trust me I know). But to know that its a sure possibility that you may NEVER get that opportunity is ALOT more devastating. Count your blessings


Name: Pooja gupta
Email: poojarajsh@yahoo.com
Location: United States
Date: May 2007

Hello Everyone, I am in a condition in which no one is able to understand my pain and I am really tired of bearing these pains in my lower area. I was diagnosed with endometriosis 2 years back and had 3 surgery since then. Both ovaries, uterus, gall bladder, appendix are out but still find myself in pain.I have pain at both sides of pelvic, back and hip pain is very bad, lower abdomen pain, pain in complete legs and is not even able to stand for very long and pain in arms too.Doctors here dont give any answers for my pains,and I really wonder can endometriosis reoccur after hysterectomy also. I don’t know these pains are because of endometriosis or something else is going on.All MRI of back are normal but with this much of pain I cant believe it can be normal. I am 29 yrs and have a kid of 6 years. I am slowly loosing my strength to cope up with these pains.If anyone can please advice me what to do.


Name: Michelle Carter
Email: michelle.carter@staubach.com
Location: United States
Date: May 2007

This story is actually about my 16 Year old daughter Allison. She has been in extremely bad pain and horrible bleeding for over 3 years. She started her periods when she was 13 and about six months into them she started having what we figured were just ovarian cysts. I took her to see her Dr. and he ended up finding Poly-Cystic ovaries...so at that point we started treatment for that. Allison just kept having problems. She has Never stopped with all the pain and clotting. Every month it just seems to get worse. I finally got her into see a specialist in Dallas, Tx. We tried different kinds of birth control all kinds of tests. She finally decided maybe we needed to go in and do surgery to look around and see if there was something else going on . Well, she went in thinking surgery would take about 1 hour. 4 hours later I find out that my 16 year old daughter has Endometriosis. She is at about a stage 3 in severity. They tell me that the Derpo-Lupron shot is her best treatment to start after the surgery. I am having a terrible time getting my health insurance to approve these shots. They say that they do not think it is medically necessary. My daughter has been in so much pain for so long and has missed so much school. We are looking for any ray of hope. Please let me know if you have any suggestions. Thank you





Name: Holly G.
Email: HopelessRmntc05@aol.com
Location: United States
Dare: June 2007

I was 15 years old and went to my pediatrician because I was having this awful pain before and during my periods. He asked me a few questions and said "It sounds like Endometriosis." To my mother and I this was a foreign language! So he referred me to a GYN who specializes in pelvic pain. After TWO YEARS of "Let's try this." and "Let's try that.", and getting to the point where I missed at least one day of school a month, I had a laparoscopy and was diagnosed with Endometriosis on September 24, 2004 at the age of 17. I also had a procedure done called LUNA - Laparoscopic Uterosacral Nerve Ablation - it simply involves cutting the nerves to help keep you from feeling the pain. A few months later I went back to my doctor and told him I was having pain again. He did an exam, internal and external, and said he couldn't feel a difference, so he wasn't going to do anything. About a year and a half after my initial surgery, in April 2006, I was in such pain, for over a week that I called my GYN for an emergency visit. It was at this visit he decided he wanted me to try a 6 month course of Lupron (Lupron Depot). This makes you go through a psuedo-menopause. MENOPAUSE AT 19 YEARS OLD!! But I was in so much pain - I agreed. First the hot flashes - I was MISERABLE. And I was moody - It almost ruined my 3 year relationship. And it made me gain weight. I gained roughly 60lbs in that 6 months. For a 19-year-old who has always been the "Skinny-Minny" of her family - can you imagine what gaining 60lbs. has been like? Even after all that - the Lupron didn't help. After the last shot I went back to him a month later and told him I was still in pain. So I had a second laparoscopy to see if it was really the Endometriosis that was back because my doctor throughout this whole ordeal insists that I should see a GI doctor because he thinks it's intestinal - even though I had NO GI SYMPTOMS! Also throughout all of this - I was on Naproxen first, which stopped working - and after multiple complaints and calls to his office my doctor finally called in a prescription for Tramadol for me. Unfortunately - that doesn't work either. And he won't give me anything else. He won't give me narcotics because he is afraid I become addicted. I spend a good amount of time wishing I could just give up - have a hysterectomy. How many 20-year-olds do you know who WISH FOR a hysterectomy. I don't know any. My doctor just says "You're not there yet." How can all these MALE doctors know what's best for me? They don't know how I feel - they never will. I spend the rest of the time wondering with all the problems I'm having if I'll ever be able to have kids anyway. For someone who loves kids as much as I do - that's a hard reality. I get so frustrated. And my poor fiancé (yes the same 3 year relationship I mentioned before! 4 years now.) has to deal with it all - we go out and have to go home early because I'm in so much pain I can't stand up anymore. As I type this I am in so much pain I wish I could leave work and go to bed, but as I am in a new job and am not allowed paid time off yet - I get to sit here and pretend to be happy. The average age of diagnosis for Endo is 27. 27. I'm not even 20 for another week. This disease has made me so miserable - I hope some of the other people on here have more successful stories than myself.


Name: Breanna
Email: bremiller@go.com
Location: United States
Date: June 2007

I am 28 y.o. and was diagnosed with endo in August of 2006. Things happened very suddenly and severely for me. On the 4th of July I experienced my first extreme pain. I had had only moderate menstrual cramps throughout my life and never anything significant enough to effect my daily activities. During college (97-01) I had a few bouts of what I called "death cramps". They would coincide with my period and would only last for and hour or so then go away not to return for another couple of months. I started taking birth control in 2002 primarily for acne control. In retrospect, this probably held my endo at bay for a little while. In September of 2005 I stopped using the pill in preparation for trying to get pregnant. My husband and I started trying in June 2006, about 9 months after stopping the pill. I didn't notice a change in my periods or cramps, everything continued status quo. That July of 2006 was the first pain that drove me to seek help. It was like nothing I'd ever experienced. The pain came out of no where and would stop me dead in my tracks. I went to my gynecologist who simply wanted to put me back on the pill. This is definitely not what I wanted considering that I was trying to conceive. I ignored the pain as long as I could, then after an almost crippling episode that occurred during work, I went to see my PCP (no longer trusting my gyne). He ordered an ultrasound immediately. He suspected either dysmenorrhea or endo. The results showed two large mass filled cysts in my left ovary and one in my right. My PCP referred me out to a gynecologist that he trusted so I went reluctantly but unable to handle the pain that was now coming daily and frequently. He ordered another ultra sound that showed the same results, each ovary was approximately the size of a softball. I was referred to an endo specialist (I felt very fortunate to have one in my hometown of Pittsburgh). He did an internal exam not believing that I was even a candidate for surgery because of how quickly my pain had developed. After poking around for a minute and almost getting kicked in the face for the pain he caused, he agreed that I was a candidate. I begged him to do what he could to preserve my fertility. I had laparoscopic surgery in October of 2006 that lasted almost 5 hours. The surgeon removed the endometriomas and all of the endo that had grown on my uterus, fallopian tubes, colon and in the pelvic cavity. He told me he had never seen a case that "sprung up" so quickly and that I was actually in Stage 4. I had been told by more people than I can count that I'd most likely never had children due to the severity of adhesions and damage that had been caused to my ovaries. Well, I am happy to report that doctors aren't always right! I am now 7 months pregnant! I conceived just one month after my surgery. I haven't had any major problems or complications thus far minus 2 severe pains lasting about a half an hour each when I was 5 weeks pregnant that took me to the ER for fear of miscarriage. Doctors assume that it was just some adhesions and scar tissue tearing. Just recently though, I've started to have what I think is ovarian pain that is very similar to what I had prior to my surgery. It's making me very nervous as the pain is severe and takes my breath away. It isn't frequent, but it's often enough to be scary. My midwife isn't concerned and thinks it is just ligament pain. I believe that it's related to the endo which I know is supposed to be kept at bay during pregnancy. I'm a little confused and concerned but feel so blessed to be pregnant that the pain just seems to be of less importance right now. Can endometriomas form during pregnancy? My thoughts and prayers are with those who are still suffering and those trying to conceive...don't give up!


Name: Abbey
Email: abcmillet@yahoo.com
Location: United States
Date: July 2007

I'm 27, and within the last three months, I have been diagnosed with endometriosis, had surgery to remove my left ovary, a grapefruit sized cyst and my appendix. I also had a few small fibroids removed. I had no idea I had endometriosis. I was in extreme pain, but stubbornly decided not to take an ultrasound because I didn’t want to pay for them to tell me what I thought I already knew. I thought my pain was from the "functional" cysts (if there really is such a thing!!!) I had been diagnosed with years earlier. How ignorant of me! Well, eventually the pain was so bad and went from occurring only during my period to all month long-which made me think something else was wrong. The pain was a terrible, intense, burning pain around my left ovary (which is where the cyst was attached), and I couldn’t sleep at night. My periods got increasingly worse. I eventually just quit sleeping in the room with my husband because all I did was keep him up all night. 'd usually cry myself to sleep somewhere close to when it was time to get up. Finally since the pain never went away, I decided I had to have an ultrasound. A little over a month later I had my surgery. I had to live on pain pills until then. For my surgery, I had to get a bikini cut because the cyst was so big. That hurt so bad! Now I am scheduled to get the Lupron shot so I dont lose my other ovary, and therefore my chance to have children. I dont know what to expect. I've read so many horror stories about Lupron. I am already suffering really bad from depression because of the change in hormones from losing an ovary, and dont know what to expect from the Lupron. It is as difficult on my husband as it is on me, although he tries not to show it. Don't be stubborn like I was. If it doesn't feel right, pay the extra money just to make sure. I probably could’ve caught this a lot sooner if I hadn't assumed I knew what was going on-and maybe my surgery would have been less serious and painful!


Name: Ashley Richardson
Email: lostinlove1919@yahoo.com
Location: United States
Date: July 2007

Ok I have read some of the stories here. They all make sense in what I am having. I have very painful cramping and sometimes it feels as though I can barely get out of bed. I have 1 child but recently got married we have been trying to get pregnant for almost 5 months now and nothing so far. I have a bad feeling something is wrong with me but scared to face the truth and scared of what the doctor will say. My periods are way different then they used to be. My oldest sister has cysts on her ovaries and I don't and can't imagine something like this happening to me. I wasn’t my husband to know that if anything is wrong I am sorry. He told me that if anything is wrong we will get through it but both of us have been very stressful. I started the pain like I wan't to say after getting off the birth control pill after being on it for a year or so. I have very bad cramping and sometimes I just get sooo stressed out because right when I think I am pregnant I take a pregnancy test and it comes back negative then I get my period. Out of 5 months I have only had my cycle 3 times at the most. I need to know how I can get courage to go to the doctors before it is to late. My mother had no problems getting pregnant and neither does my 2 sisters. My brother has been trying for a year and him also nothing. I don't want to go on knowing that I might have something wrong I want to find out as soon as I can. I did not have any trouble getting pregnant with my son. But now we have been unprotected for 5 months and have had nothing. I don't know if I should go with my gut instincts that something could be the matter with me or something could be the matter with him... But I have high instincts that something is the matter with me. I need someone’s advice on what to do and how I should react if I find out that I do have a problem? PLEASE HELP ME!


Lori B
zzpeachez@aol.com
United States
July 2007

WOW...not like i thought I was the only one with these problems but now I know I"M NOT ALONE! I got diagnosed when I was 19 (which seems to be a popular age from reading all the stories) I have had 3 lap surgeries and leap procedure and a chuck of cervix removed due to cervical cancer. I was on Lupron 3 of the past 10 years with hot flashes, night sweats, insomnia, mood swings etc.... After all this I was told I would never have kids, I have tried the pill, the patch, the ring, EVERYTHING and nothing helped my cramping and back pain etc...so while NOT trying to get pregnancy and esp after being told I most likely would never, I was pregnant and mind you I was all HAPPY and elated to be pregnant but my doctors were not feeling so great about it, with an incompetent cervix too they scared the LIVING CRAP out of me, telling me at almost every doctor visit which were weekly and weekly ultrsounds too that I would lose the baby. WELL I had a healthy 5 lb baby boy only 3 1/2 weeks early and he';s now 3 1/2. he had some minor issues along the way which they say could be linked to the pregnancy, but I just say HEY, he's alive and pretty healthy so I feel lucky. I would like to have another soon but thinking about going thru all that worry again isn't making me rush too fast! So to all the people out there that are having all these problems with endo...my best advice is to get a good DOCTOR one that'll listen to you every time even if they think you're nuts they shoudl still do what ever they can to help.. (mine does and I love her for it). I am now 32 almost 33 yrs old and even after having a baby I still have all the symptoms and I feel I will need another surgery soon unless I get pregnant again and if I do I will most likely get a hysterectomy afterwards...I was told at age 19 to get one and THANK GOD I listened to my heart and NOT a doctor! I was looking on this site becuase I can't stand the pains anymore...with sex, just day to day and the chronic back pains I'm about ready to cry every day.. I hope some day there will be a cure for this and that surgery isn't the only way to detect it! I just heard the endo institute in CHICAGO has a new laser detection system so I may call and see how that works, rather than an invasive surgery AGAIN.....good luck to all of you and hang in there..be persistent and take care of it...don;t let it ruin your life it really doesn't have to!




Endometriosis Stories - Page 14