Endometriosis story

  These stories can help other women so they do not feel so alone when trying to cope with effects of this disease.

Helpful advice for symptoms

by Anonymous

I was diagnosed with endometriosis in 2002 when I had my first surgery and removed my right ovary. I was 26 at the time. Through the years the symptoms changed form, other times they became more severe and at times less.

Doctors said that they don't think this is endometriosis still, but of course there is no way to know without a labaroscopy been done. Mostly I get the IBS symptoms (constipation, bloating, diarrhoea),the hip pain, pulling sensation, the nausea, the skin sensitivity, blood in teeth, once in the eye, and recently severe gastrointestinal problems (acid reflex,allergies and asthma).

All these symptoms get worst around time of ovulation until my period begins. What I found helpful since the doctors only option is birthing or laparoscopy, is first and most important: Stay Positive and taking control of the situation.

1.Specific diet (research a lot about it)
2.Exercise (even more important)
3.As with every problem in our life, acceptance of a difficult situation and finding meaning in what we face and why, really helps a lot!
4.Remember those who suffer more and pray for them xxx(:

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Help from probiotics and digestive enzymes

by Anonymous

Probiotics are helping me a lot with my symptoms of endometriosis.

10-14 days each month I am taken over by endometriosis pain that is on par with Sciatica pain after rupturing L4 & L5 - horrific.

Have gone through so much ibuprofen for endometriosis pain. I now have tinnitus in right ear.

Started probiotics Feb 23, 2012 and got substantial relief from endometriosis pain. Take double dosage half the month to reduce endometriosis. I have also started both Nattokinase and Serrapeptase with good results.

I have not had surgery & prefer not to if possible. The pain attacks completely disable me and have shut down most of my life. Exhaustion & fatigue much of the time.

Might give another try at oral contraceptives but side effects for me are UTIs and up every hour in the bathroom interrupting sleep.

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Ibuprofen as anti-prostaglandin worked for my pain

by Barbara Terao
(Evanston, IL, USA)

About 12 years ago I had severe pain episodes from endometriosis. Doctors I consulted recommended surgery and most wanted to do a hysterectomy at the same time.

I wanted to explore alternatives before I did something that drastic. I found a gynecologist who worked with me on a plan to prevent the pain by using ibuprofen (Motrin was what I used) the week before my period, one in the morning and one at night.

That was enough to prevent the build-up of prostaglandins, one of the causes of pain, and I've managed well with that routine. I no longer have disabling pain.

I also made a point of listening to my body and honoring my feminine side, which seemed to be what my ovaries were telling me!

Now I am considering laproscopic surgery for the first time, because I have an endometrioma or "chocolate cyst."

I've been waiting for menopause to come along and take care of the problem for me, but that does not seem to be happening any time soon.

I hope you all find the best treatment that works for you.

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Laparoscopy with ablation

by Anonymous

Laparoscopy then pregnancy was best treatment for my endometriosis.

I was on the pill for 9 years solid. Infertility when I stopped - after home interventions (charting etc.) were unsuccessful & we were well past the year mark, I cried to my mother/aunt one day.

They both asked if I was having really heavy periods & mid-month pain since going off the pills. "Yes, why ...?" They both had hysterectomies in their 30s for severe endometriosis.

I called my GYN the next morning, had a laparoscopy with ablation to treat endometriosis a week later, had Stage II diagnosed/treated, was pregnant 6 weeks later.

Pregnancy/nursing kept it at bay for another four years (two kids), and I went right back to no-break pills.

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