Endometriosis story

  These stories can help other women so they do not feel so alone when trying to cope with effects of this disease.

Too many people ignore the signs

by Cam B
(Jacksonville, FL)

Another sufferer not having her symptoms taken seriously ...

I started my period at age 13, with no usual problems. I was lucky, I had no cramping, minimal bleeding, and my cycle was 35 days on the dot. But a few months after my 14th birthday I woke up at noon and I felt like I was dying. I had heard of appendicitis and that's what I thought it was until I started bleeding, which according to my father, was normal to have cramping.

I had never had much cramping, so I pushed it to the back of my mind and bought a heating pad and ibuprophen, although the pills never helped. I moved to a different state to live with my mom a year later, with the same problems, only with worse cramps.

I quit the swim team and was missing school because my cramps were so bad. My mom was getting mad because I was missing school. Days became weeks and my grades were plummeting. No one would believe me when I said this couldn't be normal, not until my periods went from every 35 days to every 2 weeks and lasting for 2 weeks.

My cycle would go for about 14-17 days, be clean for 2-3 weeks, then another 14-17 days. My mom took me to my doctor, who put me on 3 types of birth control pills for 8 months. When those didn't work, and ultimately made the problem worse, my mother took me to a gynaecologist, who gave me a CT scan.

When they couldn't find anything, my gynaecologist thought I was lying to him for attention, and "diagnosed" me with dysmennorhea, and gave me more birth control pills that didn't work.

It wasn't until I went to a few more doctors that I found one who actually put a name to what I had- Endometriosis. He said that it could only be diagnosed with a laparoscopy, and couldn't be seen through my previous ct scans.

After a painful bowel prep and my surgery (done yesterday, June 28, 2013) my doctor officially confirmed I had stage 2 Endometriosis. I am recovering as I type this and just want people to be aware of this (disease?) thing.

My mother sent letters to the doctors who had ignored my pleas for help and I am hopeful I will be able to join the swim team again.

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