Endometriosis story

  These stories can help other women so they do not feel so alone when trying to cope with effects of this disease.

Struggled to get pregnant but have two children

by Lesley

I was diagnosed with endometriosis about 17 years ago, although after much research by myself I already new I had it. I was told I would find it difficult to get pregnant, which was hard to take at the time.

I was prescribed Danazol but didn't take it as I was told I couldn't get pregnant while having the treatment. It took me another three years after being diagnosed to get pregnant, and in hindsight maybe if I had taken the treatment it may have happened sooner.

I have two children now aged 10 and 13 and it is only recently that the endometriosis has returned. I was actually on the IVF waiting list when I found out I was pregnant with my son, but got pregnant with my daughter almost as soon as we started trying.

I also know somebody who had severe endometriosis and had to have a hysterectomy, but before this she had 3 kids. So there is hope its not a definite "you can't have kids" it may just take a bit longer.


Name: Anonymous

Title: You are lucky

I have been trying for two years, after seven months I went to doctor and she put me on cerophene. Which means that I actually had almost five months treatment for infertility without being diagnosed with endometriosis.

Now, I am on letrozole since five months on the hope that it might reduce endometriosis. I am thinking to go for IVF and your story is really moral booster.

Congratulations on two beautiful kids

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