Endometriosis story

  These stories can help other women so they do not feel so alone when trying to cope with effects of this disease.

Struggle with Endometriosis

by Patty

From the time I was 16 I suffered with Endometriosis. I had my full hysterectomy at age 40. I had several laparoscopy surgeries and pelvis copy operations to remove implants from age 16 to 25. I was married at 23 and was told that if I did not conceive by 25 it wouldn't happen.

I had another surgery right before using fertility to help become pregnant. Thank god, it worked. I had 2 children by age 25. After this my symptoms just kept getting worse. The pain and agony was ruining my life.

I had to go in for another surgery to clean implants and remove my organs from each other. By some miracle I became pregnant again at 30 after this surgery. I had a beautiful daughter. I had my tubes tied right after this birth, so I was done having children. The only time I had a bit of relieve was when I was pregnant.

Between age 30 and 40, I tried all the medicines, Lupron, etc. Finally, a doctor said that a partial hysterectomy would work. Well, it doesn't, considering you still have the ovaries, which is the main reason for the problem. I do understand he didn't want me to go through menopause.

So, in 2009 I had a vaginal partial hysterectomy. This lasted 1 year. I developed a tumor on my ovary that landed me in the ER. I was having a full hysterectomy the following week. My organs were so stuck together, it took my doctor hours to pry everything apart. This surgery was done like a C-section. She tried to get all of the implants that she could.

I have to say my life is not as painful, but I do have spurts where the pelvic pain is there and I try to ignore. I thought I wouldn't have any more issues. Is this Endometriosis coming back? I just don't know.

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