Endometriosis story


  These stories can help other women so they do not feel so alone when trying to cope with effects of this disease.





Still fighting!!

by Ruth
(UK)

Hi. I was diagnosed with stage 4 endometriosis at 38. Apparently i had had it for a very long time. I know this to be true, but didn't know a name for it until under laparoscopy I was diagnosed with this horrid & destructive disease.

I had surgery to remove cysts from both ovaries. Both cysts the size of footballs. 6 months later a cyst returned on my right ovary already the size of a grapefruit. That was nearly 2 years ago.

I saw a specialist who advised 2 stage surgery with prostaglandins, bowel & bladder work was mentioned, possibility of a stoma bag & stent to kidneys. And above all else no cure.

Well i thought what the heck is the point of going through all that? For nothing? I started avidly reseaching as much as i could. Even reading specialists talking to specialists about the disease.

I decided after my appointment that I would start the endo diet on this site. After all what do I have to lose? I had had 3 major floor collaspes as i call them, my system completely shuts down because the pain is intense. I pass out, and then awake with my limbs all moving & twitching. It is very frightening.

I always am surprised to find myself alive after each one. I have now been on the endo diet for a year and a half. I noticed a huge difference after 6 mths when I cut the wheat & gluten out.

I then tested the theory by eating a wheat sandwich. The effect was immediate, huge bloating in the pelvic area & constant bowel movements the next day! Felt like I had been poisoned actually.

I am still carrying on with my fight against this disease. I have over the last 3 years managed to loose my weight, I am now 8 stone lighter and 10 dress sizes smaller. I shall fight & fight & fight. This is the only thing i can do to help myself.

I haven't seen anyone about my cyst or my disease for a long time now. I know I am taking my chances, but I shall trust in myself first & do everything I can to fight this. At least I know that I will have done what I can.

I not saying it is easy, because it so incredibly hard living with this disease day in & out. The pain, well personally for me.

Join in and write your own page! It's easy to do. How? Simply click here to return to How endometriosis affects your life.




You might like these

  • When Heather had surgery for endometriosis it was discovered she had a cysts the size of an orange and adhesions on her diaphragm and bowel and this is her story

    Adhesions on bowel and diaphragm

    When Heather had surgery for endometriosis it was discovered she had a cysts the size of an orange and adhesions on her diaphragm and bowel and this is her story

  • Sometimes many doctors will say nothing is wrong when it comes to endometriosis and tell you its all in your head. This was Kate’s experience of dealing with medical ignorance till she changed doctors

    Medical ignorance and endometriosis

    Sometimes many doctors will say nothing is wrong when it comes to endometriosis and tell you its all in your head. This was Kate’s experience of dealing with medical ignorance till she changed doctors

  • It can take some women years to be diagnosed with endometriosis and this is Teresa’s story of heavy bleeding which finally led to a diagnosis of severe endometriosis

    Heavy bleeding followed by laparoscopy

    It can take some women years to be diagnosed with endometriosis and this is Teresa’s story of heavy bleeding which finally led to a diagnosis of severe endometriosis

  • This is a story from Heidi who cannot afford surgery to diagnose endometriosis having pain, fatigue and constipation and is using natural treatments to support her health

    Endometriosis fatigue and constipation

    This is a story from Heidi who cannot afford surgery to diagnose endometriosis having pain, fatigue and constipation and is using natural treatments to support her health

  • This is a typical story of repeated surgeries to remove endometriosis and the pain and disease kept returning and is now looking for an endometriosis specialist

    Eight surgeries for endometriosis

    This is a typical story of repeated surgeries to remove endometriosis and the pain and disease kept returning and is now looking for an endometriosis specialist




As featured in:



Show / Hide