These stories can help other women so they do not feel so alone when trying to cope with effects of this disease.
Self diagnosis of endometriosis
by Vanessa Andersson
After many years of silent suffering and things progressively getting worse, one particularly bad menstruation I really thought I was going to die from the pain. Eventually I passed out the pain was so intense. It went on for 2 days.
I got to the point where I would be out of action for 1 week of every month, something had to change. I had to change GPs to get a referral to a gynaechologist (from a woman GP whose name ironically was Dr Cramp to a male GP who couldn't argue with my predicament).
By this time I'd been researching for almost a year and had concluded I must have endometriosis. I've always had terrible PMT and took depo-prevera for 10years to help with the PMT. I also had been a vegetarian for 20+ years and had been using soya products.
When I eventually saw the male gynaecologist I sat down and said 'I think I may have endometriosis', without a blink of an eye he said 'No you don't'! I tried to protest and explain how awful my life was because of my periods and how much pain I had endured and the symptoms, but he kept saying no.
I couldn't believe it. He then said I'll give you a laparoscopy but you won't have it. I asked why when he thought I didn't have it, would he put me through surgery, not to mention the waste precious NHS money. He examined me, brutally I felt and said there was nothing wrong.
I know my own body well enough to know something was really wrong, he was clearly a god complex doctor that despises people taking responsibility for their own health and doing research on what they think may be wrong. I left his surgery thinking to myself I'm just going to carry on assuming it is endometriosis and I'll deal with this my way.
Endo Resolved changed my life. I was beginning to slide into a hopeless depression, dreading each menstrual cycle in case I couldn't get a handle on the pain. Endo Resolved gave me my power back. I was able after 4 months of following the advice at Endo Resolved to live a fairly normal life again. The pain still shocks me sometimes but mainly I can control my symptoms though diet and progesterone cream.
The kind lady that wrote this website is genius! Thank you!!!
Maybe I miss-read this, but did he ever give you the results to your laparoscopy? It sounds like you should get a second opinion. I've read online that sometimes endometriosis can be so small or hidden that sometimes it can be missed even during a laparascopy. Not to mention, your gyno didn't even care to look for it to begin with.
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