Endometriosis story

  These stories can help other women so they do not feel so alone when trying to cope with effects of this disease.

Regrowth of endometriosis after hysterectomy

by Candy

In a way, you can say that endometriosis robbed me of the one thing that god blessed a woman with. The ability to have children. Thankfully in my case, I am blessed with the two best kids in the world, so it did kind of soften the blow.

Growing up with this disease was rough, especially since I thought I was just being whiny or the weak one. I actually just "toughed" things out the best I could in silence, until one night, when I woke up in the hospital fresh out of surgery.

Apparently, I had a cyst bust on my ovary, that caused some internal bleeding. But, after that point I knew I wasn't just the weak one who needed to suffer in silence. During that surgery I had quite a bit of endometriosis located and removed as well.

The next few years was a repeat of laparoscopies, and of course the arrival of my angels. When my daughter was 8 months old, the weight of the mass caused my uterus to prolapse, and they were forced to remove it. All was well until about 5 years ago when I started with some familiar symptoms in my abdominal wall. It almost felt like I was tearing inside every time I tried to stand up straight.

So, on Christmas Eve I go back into surgery to learn that not only do I have regrowth, but the scar tissue has started to fuse my intestines to my abdomen wall on the left side. So I guess I was tearing myself.

About 6 months after my surgery, I started having major pain in my groin and all down my left leg. There is major nerve damage confirmed by 3 different neurologists, but no obvious source that any of the bone doctors can find. I have been suffering with this for 4 years now, and every inch of me can't help but wonder if endometriosis has something to do with this too... Is that crazy??

Join in and write your own page! It's easy to do. How? Simply click here to return to Your hysterectomy experience.

You might like these

As featured in: