Endometriosis story

  These stories can help other women so they do not feel so alone when trying to cope with effects of this disease.

Not diagnosed with endometriosis yet....

by Chloe
(England )

For the past year or so, I have experienced many symptoms that my GP tells me are normal, but they really don't seem to be, and I am only 14 year old.

I have had very heavy periods. I mean, not just the first day, I have no warning, it's heavy from start to finish.

I have has periods that last up to 15 days. On average they last about 11 days.

I feel so sick and tired most of the time. I get such bad cramps starting a day or so before my period, they last all the way through my period. They are so bad I am bedridden.

I have had 3 previous ovarian cysts but not sure what type. I have really bad pelvic pain and lower back pain. Also when on my period, I have diarrhoea and constipation.

My GP told me it's just part of being a woman, but I don't feel normal. My periods are so heavy I soak up an extra thick pad in around an hour. I never knew that was normal....

Anyway I went to the GP ans she told me I'm fine and it's part of growing up. To some extent, I know that's true, but I hate having these symptoms.

I spoke online with a gynaecologist on a health forum and she said she thinks I have endometriosis. She says I need to be referred to a specialist and get some tests. However, I asked my GP to refer me to someone and she said it is a bit weird sending a young girl to a gynaecologist, so they wouldn't want to see me anyway. I'm so stuck and have no idea what to do....


Name: Anonymous

Title: See a gynaecologist

I would go see a gyn and you don't need a referral for that. My daughter was just diagnosed with endometriosis and they didn't do a pelvic exam but did an ultrasound and ct and blood work. Then they did the laparoscopy surgery to diagnose her and put her on a birth control pill that is supposed to help.

He didn't do a pelvic exam because she is so young and I'm sure that would be your case as well good luck.

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