Endometriosis story


  These stories can help other women so they do not feel so alone when trying to cope with effects of this disease.





No more endometriosis pain!!!

by Leslie
(Chicago)

I started having very painful periods at around 12/13 years old. They would be so bad on several occasions I passed out a few times at school, and once even in the shower. As I got older, they became worse, but I got better at managing the pain with massive doses of advil.

After I had my son at 25, the pain began to change. My ovaries would feel like two burning hot coals, and having a bowel movement during my period was so painful I can't even describe it.

I would see my doctor, and she would say the two options were surgery, or going on a pill that would completely stop my period.
Hormone pills would trigger my migraines, so that was out, and she said surgery didn't necessarily mean pain relief. I got very depressed for a while, at the thought of having to spend a week out of every month feeling so terrible.

I've always had a healthy diet and weight, but three months ago I decided to go wheat-free after reading about it on an endo board. I've had three periods now since the diet change, and I am freaking thrilled!! Each one has been better than the last. I actually went for a run on the FIRST day of my period this month, a day I normally spent writhing in bed in terrible pain.

My pain this month never went above a 2 on the pain scale, even through the night. The nights were always the worst, because at some point the advil would wear off, the pain would wake me up, and I would have 30-45 horrible minutes waiting for new advil to kick in. I can't believe it, but for three months I've taken no advil at all! I have NEVER had a not horribly painful period, so three in a row is definitely not a fluke.

I can't say it will work for everyone, but you couldn't pay me to take another bite of bread in my life! When I think of the 20 years of pain I've endured, I still can't believe that I've had three months pain free. It feels like a dream. My whole life revolved around planning around my period, I even work from home so I could work from bed when I needed to. I feel free! I've started wearing tampons again, something I had given up since for some reason the pain was worse with them.

I'm just so happy, and I hope others can find a path to healing through diet change and exercise. I know the pain is terrible, but keep trying and don't give up!

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