Endometriosis story

  These stories can help other women so they do not feel so alone when trying to cope with effects of this disease.

My diagnosis took 7 years lead to secondary infertility

by Pam

I experienced very painful periods since I was 13 (started my cycle at 11yrs old). Doctors over the years tried different oral birth control pills to help regulate and alleviate some of my discomfort & lessen the flow.

Motrin was prescribed regularly including while I was in the Navy. After 2 babies, I experienced daytime hot flashes as early as 30 years old. I had problems with bowel movements (always constipated) but BM's became painful during my cycle. Looking back, I realize I've always had these GI symptoms, including reflux.

I started asking my doctor about my hot flashes when I was 30. He ran some hormone levels tests and also referred me to an OB/GYN. My hormone levels were fine but my pain was very real. After relaying my problematic BM's to my GYN, she suggested a colonoscopy.

My Primary doctor did not agree, so it never happened because I didn't get a referral. I now know I should have pushed the issue. Six & half years later, after my husband & I had tried and given up on having a 3rd child, after my pain had ramped up to completely intolerable and my cycle was once again very, very heavy-coming every 2-5 weeks... I opted for a complete hysterectomy.

My nerves were frazzled from all the physical & mental pain that comes from bad cycles, hopes lost from a miscarriage & a diagnosis of secondary infertility. My complete hysterectomy (TVH-BSO) confirmed that "proliferative endometriosis" & uterine myoma likely caused my secondary infertility.


Name: Cheryl

Title: Sorry to hear you were not taken seriously

I am so sorry to hear that you were not taken seriously with your symptoms and not given a proper diagnosis.

There are so many of us endo girls having to put up with negative attitudes to our symptoms.

It took me over 2 years to get diagnosed and I thought I was loosing the plot at the time. None of my friends were suffering with their periods like I was and I could not understand why I had so much pain, and every single month would be the same.

I had to change doctors to be taken more seriously and she suspected endometriosis. After my first laparoscopy I finally had confirmation that I was not going round the twist and it was confirmed I endometriosis.

Join in and write your own page! It's easy to do. How? Simply click here to return to Your length of time for diagnosis of endometriosis.

You might like these

As featured in: