Endometriosis story

  These stories can help other women so they do not feel so alone when trying to cope with effects of this disease.

My diagnosis took 11 years

by Kymberly Fergusson (nifwlseirff)

From the moment I started menstruating, I had debilitating pain. A wide range of doctors (and my family), kept telling me it was 'normal' and to 'put up with it'.

I was placed on birth control to try to reduce some of the heavy bleeding and pain, and cycled through about 20 different pills before my first diagnosis.

Even when I bled constantly for 2 years, bleeding through all the pills and the 3-month injections, endometriosis was not considered.

Finally, after visiting 5 gynocologists, one suggested testing for endo. It didn't appear on an MRI or ultrasounds, so referred for a laparoscopy, which showed endometriosis.

Unfortunately, this look-see lap was performed by a junior surgeon, who referred me to a specialist to remove the endo.

In my second laparoscopy, the specialist decided it was too risky to operate - if there was a level above the worst level 4, I had it. Smeared endometriosis and cysts covered all the surfaces in my abdomen.

Three months of Zolodex to shrink the blood flow, then a 3rd operation within 6 months, finally removed most of the endo growths.

The pain pattern changed but it was still there, and I was told by this endometriosis specialist surgeon, that 'it was all in my head', and imagined.

Horrified at her opinion, I decided to go private, with the best surgeon I could find in Melbourne, who found more endometriosis, more adhesions, and severe adenomyosis in my 4th operation.

The adenomyosis was caused by ignoring the severe endometriosis for so long. I was only 24 years old!

My plea to women, mothers and doctors everywhere - don't ignore period pain - it can destroy lives.

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