Endometriosis story

  These stories can help other women so they do not feel so alone when trying to cope with effects of this disease.

My diagnosis took 11 years

by Kymberly Fergusson (nifwlseirff)

From the moment I started menstruating, I had debilitating pain. A wide range of doctors (and my family), kept telling me it was 'normal' and to 'put up with it'.

I was placed on birth control to try to reduce some of the heavy bleeding and pain, and cycled through about 20 different pills before my first diagnosis.

Even when I bled constantly for 2 years, bleeding through all the pills and the 3-month injections, endometriosis was not considered.

Finally, after visiting 5 gynocologists, one suggested testing for endo. It didn't appear on an MRI or ultrasounds, so referred for a laparoscopy, which showed endometriosis.

Unfortunately, this look-see lap was performed by a junior surgeon, who referred me to a specialist to remove the endo.

In my second laparoscopy, the specialist decided it was too risky to operate - if there was a level above the worst level 4, I had it. Smeared endometriosis and cysts covered all the surfaces in my abdomen.

Three months of Zolodex to shrink the blood flow, then a 3rd operation within 6 months, finally removed most of the endo growths.

The pain pattern changed but it was still there, and I was told by this endometriosis specialist surgeon, that 'it was all in my head', and imagined.

Horrified at her opinion, I decided to go private, with the best surgeon I could find in Melbourne, who found more endometriosis, more adhesions, and severe adenomyosis in my 4th operation.

The adenomyosis was caused by ignoring the severe endometriosis for so long. I was only 24 years old!

My plea to women, mothers and doctors everywhere - don't ignore period pain - it can destroy lives.

Join in and write your own page! It's easy to do. How? Simply click here to return to Your length of time for diagnosis of endometriosis.

You might like these

  • Endometriosis returned after surgery

    Candice has laparoscopy surgery for endometriosis and both times symptoms soon returned and Lupron treatment did not help, but she was able to get pregnant.

  • Lupron and provera shots for endomettiosis

    Sometimes women try different hormone drugs which can have serious side effects to treat endometriosis and they still suffer pain and severe symptoms and this is Lisa’s story

  • Birth control for treatment and side effects

    Alicia tried various birth control treatments to help with her endometriosis and had many symptoms including weakness and fatigue and is using diet to try and help

  • Four surgeries and still in pain

    Chelsea has had four surgeries for endometriosis and is still in pain and dose not want to go on drug treatment due to her active life

  • Four hour surgery for endometriosis

    When Donnika was finally diagnosed with endometriosis she had a four hour surgery to remove the disease and was then put on Lupron and she if lucky to have minimal side effects

As featured in: