Endometriosis story


  These stories can help other women so they do not feel so alone when trying to cope with effects of this disease.





Multiple operations for endometriosis

by Anonymouse
(USA)

I have had endometriosis since the age of 16. I was told I will never have children. By the Grace of God I have a beautiful little girl whom is now 5.

They told me after I had a baby I should not have it again. My daughter was three months old and I was back in hospital for the endometriosis again.

I ended up seeing a specialist in PTA and he said if they cut it out he said it wouldn't come back within 5 years, and if it does only a 2% chance.

He did the operation, it was on my bladder, kidneys, liver, vagina, vagina wall. I was relieved that it was gone, however nine months later it was back worst and with a vengeance.

The Specialist refused to see me when I ended up in hospital with severe symptoms. He just told my gynaecologist its impossibly for it to be back.

My gynaecologist did a laparoscopy and it was back worst than before. Even after proof that it was back the doctor still refused to see me.

I went on many different drug treatments to conceive again but without success. I have had 35 laparoscopies, colonoscopy 3 times and various gastrointestinal examinations due to this disease.

Eventually I had a hysterectomy at the age of 30 as the endometriosis was now on my intestines and my stomach/bowels could not work properly. I was lucky if I went twice a month.

I have a healthy life style and very fit, go to the gym and play netball. Its now 7 months later after the hysterectomy (still have my ovaries).

I am going into hospital in two weeks time as the endometriosis is back. I am heart-broken and devastated and my tears are uncontrollable at this stage.

I was certain that a hysterectomy was the cure for a better life and to be symptom free. I am at a loss and Pray by a miracle that it will go away.

But now I am desperately looking for way out and a better way of living pain and symptom free.

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