Endometriosis story


  These stories can help other women so they do not feel so alone when trying to cope with effects of this disease.





Full hysterectomy

by Kelly
(Mississauga, Ontario)

I was told I had endometriosis by a gynaecologist. I took his word for it and had surgery. My symptom was painful sex. My boyfriend could not enter. The doctor could not examine me at all.

Had a laparoscopy done to be examined and then was told I had the endometriosis. I was stressed out and confused believing what I heard to be true.

After the organs were sent to the lab and my results came back it read no endometriosis on every organ. I still have the pain when being intimate and no other doctor will give me the truth behind why I was given this surgery?

Now I am being told it is muscle spasm of the vaginal wall.

Join in and write your own page! It's easy to do. How? Simply click here to return to Your hysterectomy experience.




You might like these

  •  When Heather had surgery for endometriosis it was discovered she had a cysts the size of an orange and adhesions on her diaphragm and bowel and this is her story

    Adhesions on bowel and diaphragm

    When Heather had surgery for endometriosis it was discovered she had a cysts the size of an orange and adhesions on her diaphragm and bowel and this is her story

  • Sometimes many doctors will say nothing is wrong when it comes to endometriosis and tell you its all in your head.  This was Kate’s experience of dealing with medical ignorance till she changed doctors

    Medical ignorance and endometriosis

    Sometimes many doctors will say nothing is wrong when it comes to endometriosis and tell you its all in your head. This was Kate’s experience of dealing with medical ignorance till she changed doctors

  • It can take some women years to be diagnosed with endometriosis and this is Teresa’s story of heavy bleeding which finally led to a diagnosis of severe endometriosis

    Heavy bleeding followed by laparoscopy

    It can take some women years to be diagnosed with endometriosis and this is Teresa’s story of heavy bleeding which finally led to a diagnosis of severe endometriosis

  • This is a story from Heidi who cannot afford surgery to diagnose endometriosis having pain, fatigue and constipation and is using natural treatments to support her health

    Endometriosis fatigue and constipation

    This is a story from Heidi who cannot afford surgery to diagnose endometriosis having pain, fatigue and constipation and is using natural treatments to support her health

  • This is a typical story of repeated surgeries to remove endometriosis and the pain and disease kept returning and is now looking for an endometriosis specialist

    Eight surgeries for endometriosis

    This is a typical story of repeated surgeries to remove endometriosis and the pain and disease kept returning and is now looking for an endometriosis specialist




As featured in: