Five years to get a diagnosis for endometriosis

Five years to get an endometriosis diagnosis followed by Lupron treatment and hormone treatment has led to long-term symptoms for Alisha


This is Alisha’s story ….


I am 22 years old and I was diagnosed with having Endometriosis in April. I started developing extremely sharp debilitating pains about 4 years prior to finding out about Endometriosis. It was making it really hard for me to do my everyday activities. It was getting worse as time went by.


I have a three year old daughter and is was getting to the point where my pain was getting worse and all I wanted to do was stay in bed and not move, but with having a child I wasn't able to do that, so I made an appointment with my Obgyn.


We at that time didn't know what was exactly causing my pain, so she had done many tests and still couldn't find what was causing it.


So finally she had discussed a procedure that was a Laparoscopy. When the procedure was complete, she told me that I had a very extreme case of Endometriosis. She tried to remove as much as she could, but she said that there was nothing that would get rid of it all, it would come back and she would have to go in again and remove what she could.


At that time she discussed on giving me treatment of Lupron Depot injection for a total of six months. This put my body is a menopausal state so I wouldn't ovulate. It was supposed to help with the growth of the endometriosis.


To me all it did was make me feel worse. I had really bad hot flashes and stayed nauseated


Once I had finished the Lupron we then tried different birth controls for treatment, and nothing worked. She then put me on the Ortho Evra patch, which I wasn't able to take off on the fourth week. I wore it continuously.

My doctor has now recommended me to go ahead and have another child so she can take my uterus to try to help with pain management. So if you don’t know for sure if you have endometriosis contact your Obgyn as soon as possible.


Waiting on getting checked can be very painful in the long run. I waited for 5 years before I had something done about it. I now am unable to work because the of the extent of the symptoms.


So do as much research as you can. It may save you from not missing out on the joy of life. I have spent so much money out of pocket and still have several medical bills to pay because of the Endometriosis.


I hope by telling you my story has been helpful and has given you just a little push in the right direction. I wish you best of luck, and I hope you will not have the burden of having this disease. Thank you for reading my story. 


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