Endometriosis worse months after hysterectomy

by Heth

I am 30, I have suffered from Endometriosis for over 15 yrs. I have had several cyst ruptures and the last one I had was unbearable and destroyed my left ovary causing me to be forced into removal.

Due to my constant endometriosis pain symptoms my doctor gave me the option of ovary removal and my normal Laparoscopy (that I seem to get every two yrs) or if I knew that I was not going to have any more children (4 yrs after my miracle baby), he suggested a hysterectomy, and leave the right ovary because of my battle with cervical cancer cells over the last 15 yrs.

I have already tried Lupron (HATED IT), every Birth control under the sun (never helped only fed the cancer cells), and even hormone shots (male hormones) to try to balance the estrogen (made me fat, hairy and mean).

So, due to the fact that I have exhausted all my other options I convinced myself to just give in to the hysterectomy. I healed very well, bounced back fast, I was pleased with my decision until about 3 months later.

The pain symptoms got worse, I had bowel and urinary problems worse than before. Sex was far too painful to bear and I honestly thought it was a complication from surgery. I thought I was over reacting but finally couldn't stand being stuck in my bed with a heating pad and pain medications making my bowels worse and not really helping my pain.

He ordered a CT scan and saw a cyst on my right ovary and said that even though rare, my right ovary is overcompensating for the loss of the left and causing my endometriosis to not only come back , but to full force.

It finally made sense. I wasn't crazy after all. Every time my step daughter was on her period I would be in serious pain. I think my husband thought I was trying to pity myself and I was over reacting, but after the Dr confirmed it, I am now trying to decide between the three options he gave me.

1. Lupron (NO) 2. Male Hormones (no thanks) and 3. 2nd surgery remove the right ovary and pray for the best. I am in a no win situation. Please don't rush into ANY decision.

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Oct 22, 2013
Hysterectomy at 28 due to endometriosis
by: Anonymous

I was in and out of hospital with cyst's on both my ovaries for 11 year's and 1 damaged my left ovary so had to have part of that one taken away.

Then last February I had another cyst on my right ovary so my gynaecologist operated then found that I had endometriosis covering my ovaries, tubes and was even stuck to my bowel. He wanted me to start having injections in to my stomach to start the menopause.

I had 6 months treatment but didn't help and was still in pain so he said the last resort was a total hysterectomy with I agreed at the time just to get rid of the pain, It was the worst pain of my life after I got out of surgery having my hysterectomy.

My heart went dangerously low and it took the doctor's and nurses 6 hours to stabilise my heart then I was loosing a lot of blood out my wound. The doctors didn't know where it was coming from and why, which ended in my having to have it stitched up.

But now after nearly a year I wish I didn't have it done as I'm still in pain. I'm in pain during sex and still get period pain's and the menopause is horrible, always getting hot flushes all through the night and going in moods.

I haven't got any children and just turned 29 when I had my hysterectomy. Think about having a hysterectomy before you actually go through with it.

Jul 24, 2013
An informed doctor is the way to go
by: Anonymous

I have thought that I was crazy for 3 years, but in April I found an awesome doctor who did laparoscopic surgery and discovered edometriomas on ovaries causing them to fuse together, and endometriosis and adhesions covering everything up to my kidneys.

Only 3 months later and is all back, the endometrioma on my ovary is the size of a grapefruit. I am lucky at 26 to already have 2 children so my husband and I decided since the doctor said it was inevitable, that this surgery will hopefully be my last with a complete hysterectomy.

I trust my doctor fully because all of the research that I have done, (yes we women suffering need to research extensively I recommend womenshealthdotgov) he has been already on top of the info. My doc said that leaving one ovary will cause it to return, so both are going....I am hopeful that it fixes my endometriosis!

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