Endometriosis story


  These stories can help other women so they do not feel so alone when trying to cope with effects of this disease.





Endometriosis worse months after hysterectomy

by Heth
(Indianapolis)

I am 30, I have suffered from Endometriosis for over 15 yrs. I have had several cyst ruptures and the last one I had was unbearable and destroyed my left ovary causing me to be forced into removal.

Due to my constant endometriosis pain symptoms my doctor gave me the option of ovary removal and my normal Laparoscopy (that I seem to get every two yrs) or if I knew that I was not going to have any more children (4 yrs after my miracle baby), he suggested a hysterectomy, and leave the right ovary because of my battle with cervical cancer cells over the last 15 yrs.

I have already tried Lupron (HATED IT), every Birth control under the sun (never helped only fed the cancer cells), and even hormone shots (male hormones) to try to balance the estrogen (made me fat, hairy and mean).

So, due to the fact that I have exhausted all my other options I convinced myself to just give in to the hysterectomy. I healed very well, bounced back fast, I was pleased with my decision until about 3 months later.

The pain symptoms got worse, I had bowel and urinary problems worse than before. Sex was far too painful to bear and I honestly thought it was a complication from surgery. I thought I was over reacting but finally couldn't stand being stuck in my bed with a heating pad and pain medications making my bowels worse and not really helping my pain.

He ordered a CT scan and saw a cyst on my right ovary and said that even though rare, my right ovary is overcompensating for the loss of the left and causing my endometriosis to not only come back , but to full force.

It finally made sense. I wasn't crazy after all. Every time my step daughter was on her period I would be in serious pain. I think my husband thought I was trying to pity myself and I was over reacting, but after the Dr confirmed it, I am now trying to decide between the three options he gave me.

1. Lupron (NO) 2. Male Hormones (no thanks) and 3. 2nd surgery remove the right ovary and pray for the best. I am in a no win situation. Please don't rush into ANY decision.

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