Endometriosis story


  These stories can help other women so they do not feel so alone when trying to cope with effects of this disease.





Endometriosis - the discovery

by Erin
(Spokane )

I am so glad everyone is sharing their stories of endometriosis. Your openness has helped me so much.

I have had painful periods since I was 13. I was always told that I have ovarian cysts and since they rupture and cause pain that must be what it is. There were months were I took regular trips to the ER to get my pain meds and a physical exam (just what ever virgin wants to be put through) and sent home with a shrug.

When I was 17 it got really bad. That is when my doctor put me on a strong birth control pill and things seemed to get better for awhile. Then when I was 20 the cysts were back and the birth control was changed.

During the change I got pregnant with my son. The natural cure worked for me for about 3 years with regular bc and heating pads. Once a month I was good to go, then just like before, the 'cysts' were back (I mean holly hulk hogan back), and I went to the doctor. This time it was an IUD for me.

4 weeks of non stop pain and bleeding and then nothing, I thought I was in heaven and I never thought about the painful 'cysts' I was having again.

Then 1 1/2 years ago I started having back pain, horrible back pain, and I went to my regular doctor (note to self always follow up with your OBGYN, let's face it ladies, they are the only ones who are even willing to accept that you even have a female reproductive system, let alone treat it).

I was told that I slipped a disk so the pain should go away. Well it didn't, so I had an MRI that showed I have budging disks and those could be pressing on my spinal column causing the pain. So to the spine doc I go. They burned the nerves in my back.

It was good for around a month then I was in the hospital. I thought my appendix had ruptured the pain was so bad. So did the ER doctor and I was rushed to the ct scan, and what do you know, nothing is wrong.

I got into a NEW OBGYN and once again it was called cysts. Well a couple of weeks later and bring on the pain (when they think you have a disk problem they supply you with pain medications - well there is not enough pain meds at the local pharmicy to even touch it).

I call my OBGYN, she came through, had me in the office the same day and did an internal ultra sound. What do you know - I have almost no blood flow in my right ovary and I am having surgery same week. Endometriosis!

I go in for surgery day after tomorrow I am hoping that this is going to take care of the pain once and for all. My sister (who is 34 years older than me) had a hystriectomy 2 weeks before her 31st b day. Well I turn 31 on June 3rd that is just 3 weeks away.

Join in and write your own page! It's easy to do. How? Simply click here to return to How endometriosis affects your life.




You might like these

  •  When Heather had surgery for endometriosis it was discovered she had a cysts the size of an orange and adhesions on her diaphragm and bowel and this is her story

    Adhesions on bowel and diaphragm

    When Heather had surgery for endometriosis it was discovered she had a cysts the size of an orange and adhesions on her diaphragm and bowel and this is her story

  • Sometimes many doctors will say nothing is wrong when it comes to endometriosis and tell you its all in your head.  This was Kate’s experience of dealing with medical ignorance till she changed doctors

    Medical ignorance and endometriosis

    Sometimes many doctors will say nothing is wrong when it comes to endometriosis and tell you its all in your head. This was Kate’s experience of dealing with medical ignorance till she changed doctors

  • It can take some women years to be diagnosed with endometriosis and this is Teresa’s story of heavy bleeding which finally led to a diagnosis of severe endometriosis

    Heavy bleeding followed by laparoscopy

    It can take some women years to be diagnosed with endometriosis and this is Teresa’s story of heavy bleeding which finally led to a diagnosis of severe endometriosis

  • This is a story from Heidi who cannot afford surgery to diagnose endometriosis having pain, fatigue and constipation and is using natural treatments to support her health

    Endometriosis fatigue and constipation

    This is a story from Heidi who cannot afford surgery to diagnose endometriosis having pain, fatigue and constipation and is using natural treatments to support her health

  • This is a typical story of repeated surgeries to remove endometriosis and the pain and disease kept returning and is now looking for an endometriosis specialist

    Eight surgeries for endometriosis

    This is a typical story of repeated surgeries to remove endometriosis and the pain and disease kept returning and is now looking for an endometriosis specialist




As featured in: