Endometriosis story

  These stories can help other women so they do not feel so alone when trying to cope with effects of this disease.

Endometriosis returned in less than 7 months

by Dee

I had severe cramps, heavy bleeding and other disabling symptoms while in the military (1986-1996).

They always told me my period was normal. Even though I wore a super plus tampon & a overnight pad, during the day. So I just lived with the pain for another 4 years.

I finally found a doctor to do a laparoscopy in 2001 and he found endometriosis. I went on depo for the next few years but it made my depression worse. I stop taking it in spring of 2003 and my endometriosis came back with a vengeance in a matter of months.

I ended up have a hysterectomy with a bilateral oopherectomy in May 2004. Things were good until December 2004 when I started having low back pain, low pelvic pain and painful intercourse. I went back to my doctor and he could barely examine me.

They did an ultrasound and found a cyst on my remaining ovary. It was an endometrial cyst the size of a raquetball. I had it removed March 2005. I went on HRT for a few months but didn't like the side effects so I stopped taking them.

It may not have any correlation but my symptoms seemed to get worse after my deployment to the Middle East during Desert Shield/Storm in 1991.

10 years later I feel as though I still have endo. Every surgery I've had since then has been laparoscopic and through my belly button. I still have low pelvic pain every now and then. I also have random pains around my belly button that they can't find the origin.

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Mar 01, 2016
Endometriosis did not return
by: Terry

I guess I'm one of the luck ones. I had a total hysterectomy 28 yrs ago due to aggressive endometriosis. I had surgery to remove the endo but it returned shortly after my surgery. This is when I had my hysterectomy. After my hysterectomy, my doctor checked me every 3 mths, then 6 mths, then every year to assure I was free from endometriosis. That was 28 yrs ago. It is possible to go through the surgeries and be free of endometriosis however, I realize that is not the case for everyone.

Jan 06, 2016
Belly Button pain
by: Anonymous

Hi Dee, I do not think endometriosis really goes away no matter what type of surgery one has done. I also have been experiencing weird pains around the belly button area. I also believe that it is connected to endometriosis. Surprisingly it can be incredibly painful.

It always amazes me how much pain this disease causes, & also the destruction associated with this disease on other parts of one's body. It certainly makes us tough & strong though.

You are not alone Dee. There is alot of us out there that know what you are going through. Take care, Ruth.

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