Endometriosis story

  These stories can help other women so they do not feel so alone when trying to cope with effects of this disease.

Endometriosis returned in less than 7 months

by Dee

I had severe cramps, heavy bleeding and other disabling symptoms while in the military (1986-1996).

They always told me my period was normal. Even though I wore a super plus tampon & a overnight pad, during the day. So I just lived with the pain for another 4 years.

I finally found a doctor to do a laparoscopy in 2001 and he found endometriosis. I went on depo for the next few years but it made my depression worse. I stop taking it in spring of 2003 and my endometriosis came back with a vengeance in a matter of months.

I ended up have a hysterectomy with a bilateral oopherectomy in May 2004. Things were good until December 2004 when I started having low back pain, low pelvic pain and painful intercourse. I went back to my doctor and he could barely examine me.

They did an ultrasound and found a cyst on my remaining ovary. It was an endometrial cyst the size of a raquetball. I had it removed March 2005. I went on HRT for a few months but didn't like the side effects so I stopped taking them.

It may not have any correlation but my symptoms seemed to get worse after my deployment to the Middle East during Desert Shield/Storm in 1991.

10 years later I feel as though I still have endo. Every surgery I've had since then has been laparoscopic and through my belly button. I still have low pelvic pain every now and then. I also have random pains around my belly button that they can't find the origin.

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