These stories can help other women so they do not feel so alone when trying to cope with effects of this disease.
(York, PA, USA)
I have struggled with endometriosis since the age of 15, I am now 43. As a teenager I had very bad periods that I couldn't go to school due to the pain and serve bleeding.
In my 20's things started getting worse. I then became pregnant with my 1st child, I actually felt wonderful due to not having my monthly period. I was surprised that I would actually be able to become pregnant due to the endometriosis.
Of course in the 90's not too many doctors in my area were aware of how to control endometriosis. They always wanted to put me on birth control, I never found a birth control that my body would except.
Had my 2nd child and then that's when the fun really began. I had several laparscopy surgeries to try to remove the lesions. During one surgery they had to remove a lot of lesions from my other organs. While still having issues I would bleed for weeks straight and became anaemic.
I have had so many procedures on my lower half of my body that it is unreal. Finally after switching to a female doctor I got some answers. She felt that it would be wise to remove my uterus, which was a great idea.
My uterus weighed more then 15lbs due to the endometriosis that had taken over my uterus. My doctor said it looked like an alien it was that deformed.
Two years later I had my ovaries removed due to endometriosis. I am now looking at surgery again due to a possible endo mass that was found on a ct scan. I am so tired of living like this that some days I just wish I could be normal.
Endometriosis has changed my life and I am grateful I am alive and never was diagnosed with endo cancer. but I just wish there was a way to have it go away forever.
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