Endometriosis story

  These stories can help other women so they do not feel so alone when trying to cope with effects of this disease.

Endometriosis returned after less than 3 months

by Ashley
(Fort Lewis, WA, USA)

3 surgeries to remove endometriosis scar tissue. 2 surgeries to remove ovarian cysts. At least 10 different birth control pills, shots, patches, and rings. 4 rounds of Lupron. 5 years of physical therapy for my pelvic floor. 17 years of pain.

8 years ago I was diagnosed with endometriosis. I was told more times than not that the pain was in my head, or that I shouldn't be in as much pain as I was because my endometriosis wasn't too bad. Yet my pain was so bad at times I would go into a cold sweat and faint.

The symptoms effected my daily life. I couldn't hold a job due to the times I'd have to call in sick or leave. I was miserable. I just wanted to hear there was a possibility at normalcy, at being almost pain free.

Finally, February 7, 2013 I had a total hysterectomy. I still wanted my ovaries, I'm only 29. I was absolutely informed the surgery may not take my pain away. I knew that by keeping my ovaries, I risked it coming back if any endometriosis cells were still in my body.

About 4 weeks ago, I was informed that not only had I had endometriosis, I had had adenomyosis as well. The doctors were all smiles being able to tell me that I was right all along, pain wasn't in my head. I felt wonderful!

Then 2 weeks ago the pain started again. The emergency room doctor said I had a ruptured ovarian cyst. 1 week ago, the doctor on call told me my endometriosis was more than likely back.

I'm lost. I'm in pain and I just want it gone. I knew the risks, I did. I was just so sure, so damn sure that I would finally be pain free. I was wrong. Nothing works.

I go tomorrow to discuss my situation again with my ob/gyn and come up with yet another plan of action. I'm going to hear how ibuprofen or aleve should work just fine on my pain. I'll be told to take 3 gabapentin instead of 2 a day to help control symptoms.

I'll be reminded that narcotics are bad and I do not require them. Then it'll be suggested that I begin my 5th round of Lupron injections. They never worked before, "but please, just humour us" will be said on a sigh.

I wish all others luck. I hope your experiences with treatments are better than mine.

Join in and write your own page! It's easy to do. How? Simply click here to return to Your hysterectomy experience.

You might like these

As featured in: