Endometriosis story

  These stories can help other women so they do not feel so alone when trying to cope with effects of this disease.

Endometriosis returned after 35 years

by Elaine

When I was 35 years old, I started having a lot of sudden pain and bowel problems, especially during my periods, then all the time. This was not normal for me as I always had little discomfort during my periods. By the time my Ob/Gyn found the problem, it had gotten worst.

The good thing is that I had all 3 children by the time I was 25 years old so a hysterectomy wasn't out of the question.

Then one night I was woken up with severe pain symptoms, the type of pain as childbirth!

The endometriosis had caused one of my ovaries to rupture! That made my decision to have a hysterectomy soon. When I came out of surgery, my doctor told me that I had endometriosis over all my female organs as well as my small bowel.

He stated that he was trying to decide if he wanted to mix a dirty procedure (bowel section) with a clean procedure (hysterectomy). He chose the latter but said that 20 years or so down the road, I might start having problems again!

I was 38 years old when I had the surgery and started having the same sudden pain with bowel (diarrhoea) problems about 5 years ago! Now, it is getting worst.

I am now 70! After reading readers comments and experiencing the same type of pain, I know it is that dang endometriosis returning to make my life a bit of "hell!" I plan on living with this sudden pain & bowel situation as long as I can put up with it.

I do have a high tolerance for pain I have been told many times by doctors. The comment I wish to tell all of you is that I believe it can be hereditary.

In my immediate family, my sister, her daughter, one of my daughter's, and at least one of my granddaughters have had endometriosis. The fortunate thing for them was that it was caught in time to have it scraped off their female organs before it spread as far as mine, so I had to have a hysterectomy in 1980. Keep up with the situation
Don't wait long. My Ob/Gyn didn't figure out the problem soon enough!

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