Endometriosis story

  These stories can help other women so they do not feel so alone when trying to cope with effects of this disease.

Endometriosis or Autoimmune?

by Ashlee

I will start with my symptoms - Let me start off by saying last year at this time I was having a lot of pain. I had pulling pains, painful intercourse, hip and leg pain and always tired. My hips, knees and neck were always popping.

My family doctor found that I had a cyst on my right ovary. He sent me to an OBGYN who put me on Quasense, that extended my cycle( she told me that it is the less invasive way to diagnose Endometriosis).

So I took it for 6 months, UGH! It did make the cyst and the pulling pain go away. But it really affected my joints so bad to the point that I could not even pick up my coffee cup with one hand and my joints were popping even more.

When I went back for the 6 month evaluation I told her how the birth control was making me feel. She said I would have to see an MD for the joint pain and she wanted me to continue taking the Quasence. I refused because I was feeling horrible. She got kinda snippy and replied that "If the pain came back they would have to put me back on the pills"!

But since then I have been getting my period on a regular basis. It lasts about 4 days with the first 2 being heavy. I am having chronic pain and tiredness all the time. Some days are better than others. About a week or so before my period comes the pain intensifies by 20. The past 2 to 3 months I have be getting chest pain, shoulder pain and my arms hurt and feel heavy. The first time the chest pain came about it scared me so much I went to the ER. They did blood work, EKG, and X-Rays.

Everything checked out normal. So after my period the pain sticks around some times for a week or two or sometimes until my next period. UGH!!!!!!

So I go back to the MD and he hears me out and takes a look at these spots I have randomly over my body diagnosing them as petechia. There is no family history of autoimmune that I know of. He ordered blood work. When the nurse called with the results she said that everything came back fine and that if I still feel the same way in a month to call and schedule an appointment because the Doctor said it may be an autoimmune disorder.

My questions were 'wouldn't that show in the blood work?' She said not all the time. So then my wheels start turning and of course what do I do - turn tho the internet! Scary Shit I have read! The most common thing with almost all of the autoimmune diseases is fever and I have not had any sign of fever.

I am really ready for some relief. This pain in consuming me. I also feel horrible that when we get home at the end of the day and my daughter is ready to play and have fun, or even do her homework, all I want to do is lay down and take a nap:(

I am very thankful for a great man who does most of the cooking cause my energy is shot!


Name: Anonymous

Title: My story regarding endometriosis

Oh my goodness. I just had laparoscopic procedure yesterday. My right ovary and Fallopian tube were removed. I have had mild issues with ovarian cysts for about 10 years.

This year the pain was excruciating. I was told I also had a lot of scar tissue from an appendectomy. Following the procedure the doctor also mentioned I had endometriosis. No one ever mentioned this before.

I am 46, I have have 5 children the last was born when I was 27. What scares me now is the mention of autoimmune disorders. I was diagnosed with Hashimotos thyroiditis last year after years of seeing doctors with classic symptoms. My TSH levels are still not stable after a year of treatment. Could all this be connected???? So extremely frustrated !!

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