Endometriosis story

  These stories can help other women so they do not feel so alone when trying to cope with effects of this disease.

Endometriosis has taken over my life

by Safiyyah
(Chester, PA, U.S)

I have had chronic endometriosis symptoms including severe cramping during and after menstrual cycles to rectal pain & diarrhoea. It began so aggressive & severe that I instantly noticed there was a problem.

The cramping started very young & the chronic diarrhoea started during high school. I initially noticed that I would have daily bouts of diarrhoea accompanied with excruciating pain & yellow bile in my stool which instantly drew concern.

When I first addressed a dr about it, bowel specimens & several other blood tests were irradicated & lastly an unneccessary removal of my gall bladder at age 17. For a few years there was relief but unfortunately that didn't last. At about age 22, and a married college grad, I was more than eager to start a family, but despite all of my best efforts we weren't at all successful.

However, during this time we assumed we had found a glimmer of hope when I missed my menstrual cycle. Eager, I went to a free clinic because my husband's health insurance hadn't become effective. After having my hcg levels tested I sadly was informed that my missed period wasn't a pregnancy at all. My uterus had shut & refused to open resulting in a collection of blood.

Doctors decided to poke a hole in my uterus. I was misled to only find out later that this was a cyst! After the cyst had been improperly cared for my symptoms worsened & multiplied by ten, increasing my current pain from severly intense to crippling!

My marriage came to a screeching halt due to my infertility. The diarrhoea, the bile, the rectal & vaginal cramping, pains throughout my body, vomitting bile, heavy bleeding, increased pill consumption, depression, all took a toll on my life!

I was unable to eat without passing my food shortly afterward. My life had become a total nightmare, until the lupro depot shots. Consequently, the shots are administered over a six month period, during which my menstrual cycles are discontinued. I've just recently reached my six month limit, but the symptoms are returning one by one with a vengeance!

The first symptom to date is the rectal, vaginal, & lower back pain during defecation, cramping, & diarrhoea. This has made me very pessimistic where relief is concerned! I just don't believe that this is at all treatable anymore.

I'm losing hope with every returning symptom & future fertility! I am now 30 years old & I think they've incorrectly diagnosed me for much too long! I am a hopeless soul wishing miracles truly happened!

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