Endometriosis story

  These stories can help other women so they do not feel so alone when trying to cope with effects of this disease.

Endometriosis at 23 and struggling with life

by Anonymous

Since I got my first period at age 11, I have had very painful periods that lasted for the full 7 days. During the first few years of my period I was abnormal.

I got my period every 3 months. I got checked out by a doctor and was told that if I did not become regular on my own that I would have to go on birth control.

Well luckily I did eventually get a monthly period, but still had painful, heavy and long periods. This went on for many years.

At the age of 19 I decided to go on birth control. It was mainly to try and decrease the painful cramps. Over four years of birth control I had to increase my dosage at least 4 times. My pain kept getting worse and lasted longer.

I would have to change my pad or tampon after 2 hours. At the age of 22 I started to notice a sharp pain in my right abdominal side. They did ultrasounds and said they could not see anything, but most likely it was a cyst.

The pain continued to increase. Eventually I could feel the pain if I touched where my right ovary was. Simply being in a car and wearing a seat belt would hurt.

Between the age of 22 and 23 I also started experiencing a lot of back pain and stomach issues. When I was 23 I found out that I had two herniated discs in my lower back. So I started to treat that.

My back pain and stomach pain only got worse when I was on my period. During the month of October 2011 (i was still 23) I told my doctor once again that my pain was getting worse. I mentioned endometriosis and he said he didnt think it was that, but he refered me to a "specialist".

Well I think this specialist was a cheap goverment doctor. All this gyno did was move his fingers around and push where it hurt the most. He gave me antibiotics which were intended for STDs.

I have never had and STD and have yearly check ups. I did not take them and found another doctor. I found a new gyno early December. By the first meeting and without mentioning endometriosis, she said it was most likely that. She was able to arrange my first lap within a week.

You can only imagine how little time I had to process all of this. I had my laparoscopy and then started lupron for six months. I ended lupron this past july.

Throughout this endometriosis journey, I have felt less of a woman. I cannot have sex without pain. I cannot use the restroom without pain. I cannot excercise without pain. I work and attend grad school.

Towards the end of my lupron shots, I was alone in dealing with this endo and my mixed feelings I had to go through, and upper and lower GI, and yet they can not tell me if my endo is affecting my bowel movements. I think it is.

I went through a break up with my 4 year boyfriend. I had to postpone working on my thesis. I had to take time off my part time job. My bills kept increasing due to all these medical treatments.

Its hard to explain to others how I feel, I can only tell them what endo is and what could happen. Its hard to tell someone that I might not be able to have kids. That I might have to get another surgery. That I always have pain.

I am now 24 and back on birth control. My pain is back with all my other back and stomach issues. I curl up at night and try to sleep with this pain. People have told me that its all in my head. Who would want to make this up?

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