Endometriosis story

  These stories can help other women so they do not feel so alone when trying to cope with effects of this disease.

Endometriosis after hysterectomy

by Linda Trigg
(United Kingdom)

I suffered from painful periods with endometriosis so as I was sterilised. I got offered a hysterectomy where my ovaries were left behind.

Ten years later I started having periods symptoms with some blood loss. It was then decided after courses of tablets to remove ovaries which turned into major op as they were stuck to my bowel and bladder.

After many operations I was diagnosed with endometriosis (it took 4 years ). I then had major operation to remove a mass of adhesions stuck to bowel, bladder and stomach. I'm still suffering, and have been for 8 years.

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Nov 18, 2013
I believe I have endometriosis again after total hysterectomy
by: candy

I am having lots of stomach and bowel problems and believe endometriosis could be the problem. What do I do to get the correct diagnosis? I too had total hysterectomy in 2009 and it was then they found this awful disease.

I was told by my gyn that I still had it all in my abdomen - well at least the white spots that indicate the endometriosis. I was also told that it could come back. I also had a girl I went to school with have it attach itself to her intestines and cause many problems for her and they ended up having to do a colostomy and gave her a bag.

She lost tons of weight and was very sick for a very long time -unable to eat or do much of anything. I am making an appointment today to go and see my gyn. He is a very understanding and caring doctor and I hope he does the tests and laparoscopy to see if this is my problem.

I have lots of health problems and would like to know if this is what is causing my bowel, bladder, and stomach symptoms. I take lots of medicines that can cause such problems but I would like to rule this out first or know for sure it isn't endometriosis.

I am so glad I found this website. It has really helped inform me of this horrible and painful disease.

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