Diagnosed with endometriosis at 14 years old

by Jennifer
(Atlanta, GA)

I haven't seen anyone contribute with this type of history, so I'm hoping to help young women who may have this disease.

During my first cycle at 14 years old, I was hit with pain that literally put my body in shock and I was rushed to the hospital. They initially thought that my appendix burst and, after many tests, found that the pain was coming from an ovarian cyst.

When I had a laparoscopy done a few months later, they gave the official diagnosis of ovarian cysts with endometriosis. I am now 28 and have obviously had a long, complicated history with this disease.

I will say that during the years, I have found out that both my mother and grandmother had the disease. As I'm nearing the age of having children myself, I can only pray for a boy so that my child does not go through the same debilitating pain. Unfortunately, I am at the end of possible treatments.

I was on birth control for over ten years, which I have discontinued due to high blood pressure problems, and have had three laparoscopies done in total. I haven't given up hope though and have decided that after I have children, I will immediately schedule a hysterectomy.

My mother had one in her late 20's and has never looked back. This disease, as we all know, is extremely frustrating but can be dealt with. For those able to take birth control, I highly recommend it as it helped manage my pain levels.

Also, make sure to get regular uterine ultrasounds, this helped me a few times when ovarian cysts became too large to let them resolve themselves. (I know this is an endometriosis site, but ovarian cysts often coincide with endo too.)

Another tip is to visit a fertility doctor or obstetrician. Since they are helping women with infertility, often caused by endometriosis, they can spot the symptoms much quicker. I wish you all good luck and that you are able to get the right diagnosis.


Name: Sarah Rose

Title Diagnosed at 12 years old

I was about 9 when I first got my period and had extreme pain and heavy bleeding. When I was 11 I saw a gynaecologist and my mother pushed and pushed for an exploratory operation.

I was 12 when he finally agreed to it and he did the exploratory to find I had endometriosis. I am now 15 years old and going to an endometriosis clinic to see if I can have another exploratory because I'm in extreme pain even though I am on 2 types of ''the pill'' for the pain. I believe its better to get on top of it before it gets much worse.

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Apr 25, 2018
Help me please
by: SoIAmConfused

Hi, so at the moment I am 14 years old. I started my period when I was around 10 years old and since then I have had very heavy bleeding during periods and nowadays it comes to the point where I have to use a few really thick pads at once, and they barely last over an hour. My periods usually last 8 days and come regularly however my cramps are absolutely unbearable. I mean I take pain killers and they do NOTHING so I can't even do anything I even nearly passed out last time.

Since the summer holidays, I have also been getting really strong pelvic and abdominal pain (especially on the left hand side but also right and centre) and the other day it was so bad that I took a strong painkiller but still didn't sleep the whole night because the pain was so strong-it wasn't the first time. This happens outside the menstrual cycle. As well as this, I find it very painful to go to the toilet for whatever reason and I have been producing a LOT of discharge.

Previously, I went to my GP because of the heavy periods and they gave me a prescription which was supposedly meant to make the periods smaller. This however, messed things up entirely and then my periods would go in a way that it would be 3 days bleeding 2 no bleeding and then 5 bleeding, so I stopped taking them. And since then, the periods are still seriously heavy and then the cramps outside the cycle came along with the other things described above. I have lost 11kg of weight since last year and then regained 2kg, however I am never hungry anymore and I also have strong, persistent headaches, which are confirmed not to be migranes. My hair is falling out and I feel sick a lot of the time. My question is, could it be endometriosis?

No one in my family has been diagnosed with it. When I was younger, I used to have frequent kidney infections but I don't think this is anything to do with it. I need help because even as I am typing it is unbearable. My parents will just think I'm making it up and I just want some clue as to what is going on.


Dec 26, 2017
by: Georgina

I first started my period at 10 and I would get cramps before, after and during my period, my period alone would last 7 days. It got to the point where I was taking 12 days off school each month and the school didn’t understand and confronted my mum saying she was lying.

My gyno eventually put me on the pill which was amazing for 6 months then suddenly I wouldn’t stop bleeding for 6 weeks and ended up going on a heavy prescription to stop it. Then I went on a stronger dose of oestrogen which has been working so far. Earlier this year when I was 13 I went to a gp who specialises in pelvic pain and she instantly told me I had endometriosis and prescribed me amitriptline to help with the chronic pain and referred me to a laparoscopic surgeon.

The only problem is that my mum doesn’t want me taking the meds as they can cause fatigue and I’m already tired enough but she also says a laparoscopy is too invasive for someone my age even though I want to have it done to help solve the pain. I’ve convinced her to let me see the surgeon who would preform the surgery but the pain in meantime is horrible even if I only have a period every 6 months.

Feb 28, 2017
I don't know yet
by: Anonymous

I'm a little scared. I have 3 aunts with endometriosis and I'm having the same trouble. I'm 14 years old right now and I'm in pain all the time. I don't know yet if I have it, but if I do what is the most appropriate thing to do?

Sep 11, 2015
Endo at 13
by: Anonymous

My daughters period started at 9 and each year pains got worse. Finally at 13 did the outpatient laparoscopy and he found Endo. Treated on site that was almost 7 months ago. Her pain is back more serve. She takes pills so no cycle that did not help. No period but all the same pain, legs numb, burning when she pee, upset stomach, loose stool, stabbing pains lower stomach and back.

Last month she had 9 days out of 31 pain free. We are going to see Paediatric Gynaecologist Tuesday to try and stop this pain, can't take pain medication and function at school. Sharing to help others I feel helpless moms stay on doctors.

Aug 17, 2014
Do I have endometriosis?
by: Anonymous

I'm 14 turning 15 in a week. For about 3 years I get excrutiating pain I'm my lower stomach. I've only gotten my period twice about a year apart. I get these pains all month long, and my friend suggested it be something very serious after I got it at the beach and couldn't even move. My moms taking me to the gynecologist this week. Could this be endometriosis?

Sep 29, 2013
Young with endometriosis
by: Anonymous

At age 12 when I first experienced pain I was running between doctors at least once a week. 6 months ago I went to a gyno who suggested endometriosis but refused to operate and just gave me new injections.

Well, the pain symptoms was non stop for a month! After going back to her 2 months ago she FINALLY agreed to a laparoscopy that she'd been refusing to do since we first saw her.

I'm glad to know that I'm not the only one suffering from endometriosis this early in life.

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