Endometriosis story

  These stories can help other women so they do not feel so alone when trying to cope with effects of this disease.

Cervix left behind after endometriosis surgery

by Karen Fisher
(Norman, Oklahoma)

Wow. Where to began? I guess I have to start at the beginning. I started my periods at age 15. About half of the girls in my 6th grade class had already started. It wasn't long after this that I started having severe pain, nausea, cold sweats and eventually vomiting.

Now this was around 1972-73. I remember telling my mom and wanting to stay curled up in my bed instead of going to school. She was livid. She said absolutely not. That was when I knew that life for me was not going to be easy.

In the 7 years to follow I got married at 17 and suffered many miscarriages. At age 25 I adopted my son and continued to suffer more miscarriages. At age 27 I became pregnant again and gave birth to a beautiful baby girl!!!

I continued to suffer every month year after year with no diagnosis or treatment. At the age of 37 I started bleeding so bad that I had to stand in the shower and just bleed. At the point of getting faint I told my husband to get me to the ER. I was white as a ghost.

The ER did nothing. I was even passing clots the size of an orange. I took one of those in for them to see. They scheduled me to see a GYN doc the next morning and sent me home. My blood count was low but not low enough for them to be concerned.

The GYN doc did a DNC on me right in his office with no Anaesthesia. It felt like my insides were being sucked out. They sent me home and told me to take iron. The bleeding slowed down but never really stopped.

After a month I found a group in Calif that only dealt with female issues. I thought, "Okay. Relief is on the way". How could this group allow this to continue? Surprise!!! They did do and US and said I had Fibroids.

Two ablations followed within the next few years and the suffering continued. At age 50 I had enough. I found a female GYN and told her I had enough. In 2008 she removed all but my Cervix. It was attached to my bowels by Endo.

The surgeon came out and ask me if anyone had ever told me I had Endo? She said it was the worst case she had ever seen. My tubes and ovaries were completely engulfed and grown to the side of my Uterus. The surgery ran longer than planned because there were so many lesions to remove. No female should have to go through that many years of pain and suffering. 36 years to be exact!!!

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