Endometriosis story

  These stories can help other women so they do not feel so alone when trying to cope with effects of this disease.

Another day with endometriosis

by Sarah Bearman
(Bellevue, Wa USA)

I am sitting at home again today because I have endometriosis and I hate to feel like I do today.

I can normally find ways to feel happy and accept my circumstance but today is not one of those days.

My boyfriend went to his friends house without me because I do not feel good and I want to go too. I feel in these moments like the life I want to live is passing me by and I can't catch up even if I want to, that's just the way it is. I wish I could go to the doctor and have them cut it all out and then maybe just maybe I can be symptom free for a while.

I'm pretty sure I have endometriosis on my bowel and really everywhere, and yet the doctors kinda just let me educate them on what is wrong with me not the other way around. I find bits of info on sites that I visit and finally know enough to know that I want to have an excision done.

I do not want to be on the side lines of life, I want to run and play with everyone else. I want to work my butt off and have tons of money. I hope to do that someday and so I am taking college classes online to prepare myself. But I don't want to be living for tomorrow I want some enjoyment now.


Name: Anonymous

Title: Disgusted with lack of help from doctors

Such a shame that so many woman are having to suffer like this. Actually it is more than such a shame - it is an absolute disgrace ..... I am positive that there must be more that can be done.

It also shocks and disgusts me that I know more about endometriosis than the more than ten different doctors I have spoken to. Thank goodness for every woman who has spoken out and told their story - it's the only way I have been able to work out what has been going on with my body and it helps me to know I am not alone.

Hopefully one day some sort of cure will be established ....... just hope that happens before I get too much older - my life is just passing me by while I sit on the side-lines munching painkillers and trying to organise everything around my period.

I was diagnosed only because a young african student realised that what I was explaining to her was certainly not normal ... the experienced consultant told me to take the pill despite the fact I had already been on most pills and probably the oestrogen pills have made my condition worse - what a complete incompetent moron!!

He also told me I did not have endometriosis and then after the lap operation told me I was riddled with it as he ran away from the side of my bed. That was it .... I got diagnosis and was then left to it ...... what a fantastic way to conduct medical care.

I am angry that in a time when we can transplant hearts and various other organs not to mention the rest of medical advances we have achieved and discovered ... that no one has found a way to deal with endometriosis .... ARE YOU KIDDING ME?!

I want to know WHY I am having to constantly suffer along with millions of other women ..... Medical people - you are at it!! You must know how to deal with this - well you would if you could actually be bothered looking into it I suppose!!

Good luck and best wishes to everyone - if anyone finds a cure or a decent pain relief ... please let me know.

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