Another day with endometriosis
by Sarah Bearman
(Bellevue, Wa USA)
I am sitting at home again today because I have endometriosis and I hate to feel like I do today.
I can normally find ways to feel happy and accept my circumstance but today is not one of those days.
My boyfriend went to his friends house without me because I do not feel good and I want to go too. I feel in these moments like the life I want to live is passing me by and I can't catch up even if I want to, that's just the way it is. I wish I could go to the doctor and have them cut it all out and then maybe just maybe I can be symptom free for a while.
I'm pretty sure I have endometriosis on my bowel and really everywhere, and yet the doctors kinda just let me educate them on what is wrong with me not the other way around. I find bits of info on sites that I visit and finally know enough to know that I want to have an excision done.
I do not want to be on the side lines of life, I want to run and play with everyone else. I want to work my butt off and have tons of money. I hope to do that someday and so I am taking college classes online to prepare myself. But I don't want to be living for tomorrow I want some enjoyment now.
Title: Disgusted with lack of help from doctors
Such a shame that so many woman are having to suffer like this. Actually it is more than such a shame - it is an absolute disgrace ..... I am positive that there must be more that can be done.
It also shocks and disgusts me that I know more about endometriosis than the more than ten different doctors I have spoken to. Thank goodness for every woman who has spoken out and told their story - it's the only way I have been able to work out what has been going on with my body and it helps me to know I am not alone.
Hopefully one day some sort of cure will be established ....... just hope that happens before I get too much older - my life is just passing me by while I sit on the side-lines munching painkillers and trying to organise everything around my period.
I was diagnosed only because a young african student realised that what I was explaining to her was certainly not normal ... the experienced consultant told me to take the pill despite the fact I had already been on most pills and probably the oestrogen pills have made my condition worse - what a complete incompetent moron!!
He also told me I did not have endometriosis and then after the lap operation told me I was riddled with it as he ran away from the side of my bed. That was it .... I got diagnosis and was then left to it ...... what a fantastic way to conduct medical care.
I am angry that in a time when we can transplant hearts and various other organs not to mention the rest of medical advances we have achieved and discovered ... that no one has found a way to deal with endometriosis .... ARE YOU KIDDING ME?!
I want to know WHY I am having to constantly suffer along with millions of other women ..... Medical people - you are at it!! You must know how to deal with this - well you would if you could actually be bothered looking into it I suppose!!
Good luck and best wishes to everyone - if anyone finds a cure or a decent pain relief ... please let me know.
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