Endometriosis story

  These stories can help other women so they do not feel so alone when trying to cope with effects of this disease.

3 years and 4 Doctors later to get my diagnosis.

by Simone
(New Iberia, La )

I was recently diagnosed with Endo after switching to my 4th Doctor. My first doctor told me I had ovarian cysts. My second Doctor told me that my husband and I weren’t doing enough “four play” before sex. My third Doctor told me I had an undeveloped uterus and a blockage in my Fallopian tubes.

Out of all the medications and diagnosis’ I was given nothing worked. So I finally switched to a female Doctor because who knows a woman’s body better than a woman! She gave me the answer to ALL of the problems I was having. Although it wasn’t the answer I was hoping to get.

I am 26 years old going on 27, I do not have any children although I think we have had a miscarriage at one point. My husband and I do not have protected sex “so why am I not getting pregnant?”.

I try to be as supportive and excited for my friends around me who are all getting pregnant as I possibly can but it still hurts that I’m not joining this new journey that they are on. I almost cried in my doctor’s office when they told me they were going to put me on birth control for my flare ups but my doctor assured me that once coming off of it I will be more fertile and that I am young and I have plenty of time still. This doesn’t help my “want” for a family now.

Although I have my mom, two sisters in law, and my husband for support I don’t have anyone to talk to who completely understand what I am going through and who can give me advice. There are so many questions that I have.

*How do I manage the pain during sex, when will it feel normal again, what do I tell my husband in the mean time?
*I am so self-conscious of my bloated belly; how do I make it go down in size or even back too normal?
*What is the best treatment that manage pain, problems with IBS, and fertility?
*What do I tell family and friends who ask when we will have a baby without telling them I have this invisible disease that they can’t see and know nothing of? And to top it off I told them I had all these other issues and problems that different doctors told ME that I had when really it was endometriosis this whole time, I feel like they will think I’m making this all up for attention or something when really it was just miss diagnosis time and time again.
*When will this all go away?!

So this is my story, I have Endometriosis. But as confused and depressed I get at times, I won’t let this stop me from what I desire the most, A FAMILY!

I have faith in God, and I believe my God answers prayers, and for each woman going through this I will pray for you all! My pastor always says “God never gives us what we can’t handle.”

Join in and write your own page! It's easy to do. How? Simply click here to return to Your length of time for diagnosis of endometriosis.

You might like these

As featured in: