Endometriosis story

  These stories can help other women so they do not feel so alone when trying to cope with effects of this disease.

29 year endometriosis survivor

by Debbe

I am going to be 42 years old this year & I've been battling severe endometriosis for 29 years. Actually it's all that I know.

When I was younger, I allowed myself to be the "guinea pig", but after all of their medications, procedures & 5 surgeries by the age of 23 I stopped.

After 2 years, I agreed to a complete hysterectomy (no children). The only good that came from that is that I was no longer bleeding to death (would soak tampon & pad in 10 minutes if I was standing up & 30 minutes if I was laying down with my feet elevated), & no more bursting cysts (blew out one of my fallopian tubes & needed emergency surgery for that one).

In 2 years time I needed another laser surgery & emergency surgery to remove my gall bladder. Directly after that, my blood work showed first stage liver failure. I abandoned all doctors at this point.

My symptoms grew more & more until I thought what the heck do I have to lose? I started seeing an acupuncturist & was with him for 5 years. He truly helped me & if I had the money, then I would still be with him.

He said he couldn't cure me, but could reduce my symptoms & my pain levels. He did everything he promised me. Since seeing him, my endometriosis has spread to my bladder. The so-called level 4 stage for endometriosis is a joke to me. I had reached that level at 17 years old.

I have all 4 types: red, white, chocolate & microscopic. I'm in constant pain, but I hide 90% of it (used to be 98% so I guess I'm slipping). Every once in a blue moon I look up the endometriosis sites just to see what is out there. As far as my opinion, nothing has changed & this disease will take my life.

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