These stories can help other women so they do not feel so alone when trying to cope with effects of this disease.
11 years later will my endometriosis ever end
At age 27 in 2005 I was diagnosed finally with endometriosis after thinking that I was going crazy and having people not believe me. My symptoms were horrendous and I was in excruciating pain. I've had numerous laparoscopy surgeries along with waking from surgery only to have my c-section scar is reopened because the endometriosis is so bad.
I did a few more surgeries and received 6 month injection of Lupron. After going to a fertility doctor because we were trying to get pregnant was when I learned I had adenomyosis. They stated that I should have hysterectomy but because I wanted one more child I refused.
After a few years I finally gave up and in 2010 ended up pregnant and my symptoms after a while we're relieved, however on the day my son was born via C-section the doctor informed us that my uterus was paper thin, they could actually see through it and see our son while doing the C-section procedure.
Needless to say a few months later I had a hysterectomy and everything was taken including cervix, uterus, my left ovary and the only thing that was left is my right ovary. Fast forward 6 years later and I am in excruciating pain. I feel like my insides have been beaten with a razor blade or baseball bat.
I have no energy, I can't function and I've lost a bunch of weight. Going to work is difficult, being home is difficult, being a mom is difficult. I cannot find any relief in anything I do and the only thing that feels OK and bearable is the heating pad which has now become my best friend.
I currently am undergoing just two months of Lupron injections and I feel like this time around it has completely knocked me down. I am up and down all over the road. I'm sad I have no energy I don't want to get out of bed and I am in more pain now than ever. I feel like there's no light at the end of the tunnel.
I was told after being ill for the last year and not thinking that it was my endometriosis, finally after seeing a urologist they stated that they had seen kidney stones along with what seemed to be endometriosis on my remaining ovary, and there is question about it being on some other organs.
My gynecologist who is a specialist in Endo states that he will be doing surgery to take out most likely the right ovary. I am not sure how I feel about any of this. I feel like there's no hope and then pain, so much pain, I can't describe it other than I feel like I have been beaten with a baseball bat in the kidneys, in my pelvis area and everything hurts.
I hate not being able to function as a human or as a mother, as a wife. No one seems to understand how painful this disease is and I am so mad and frustrated that 6 years ago I didn't know that leaving it could lead to the endometriosis still continuing to grow. I would have had them take it out because this is not the life I want to live I am tired.
Join in and write your own page! It's easy to do. How? Simply click here to return to Your hysterectomy experience.
As featured in: