Endometriosis story

  These stories can help other women so they do not feel so alone when trying to cope with effects of this disease.

Life better after laparoscopy

by Amy Northcutt
(Nuevo, Ca)

Major evidence of endometriosis found during surgery.

I am a 40 year old marathoner runner & had been sick for 8 months. Very Sick. I thought I would die.

It started last year with me getting shingles. Then I had so much pain in my lower pelvic area especially on the left. I could eat & lost 20 pounds. I was near death.

I had colonoscopies, endoscopes, pelvic exams, biopsies, mri cat scans. All showed MINOR ovarian cysyts & fibroids. But each Dr said something different. I found 1 doctor who said I needed a hysterectomy.

I finally scheduled it & had to wait 2 months in severe pain. When I stood up it felt like my uterus would blow out. When they did a biopsy I screamed like I was having a baby.

The most frustrating part was most health professionals would say you have a cyst but it shouldn't hurt that bad. Anyway I had laparoscopy surgery monday 10-29 & I feel like 100 bucks.

The pathology came back - left ovary endometriosis, multiple paratubal cysts on both fallopian tubes, major fibroids mostly on left side, chronic inflamed cervix, & some other stuff I can't understand.

OMG no wonder I couldn't even walk. Now my doctor understands. See ladies we KNOW our bodies! Don't be pushed away. Its our life & we must fight for it!

I am one of the lucky ones because I have insurance. I wish everyone luck. The bottom line ENDOMETRIOSIS IS PAINFUL!!!!!!!!


Name: Anonymous

Title: Having a hysterectomy soon and I am very scared

Hi I am 40 and I have endometriosis too. Doctor thinks because I already have two kids and don't
want more, and because we tried the pill which didn't work, it is better to have a total
hysterectomy which is due next week.

I am not scared about the surgery, it is concern about the after-effects and the side effects, and about hormonal patch therapy. I cry every day because I don't want to gain weight.

I took a lot of time off work just to be where I am now. Every article says that no matter what,
you will gain weight, is this true?

Please help.

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