No diagnosis for endometriosis despite many tests

Mattae started having pains from a young age, had many tests but not confirmed with endometriosis despite the pain she feels 

This is Mattea’s story …..

When I was 13 years old I started having severe pains on my lower right side. I went into my doctor and had a few tests done. My doctor was almost positive that it was appendicitis. I was sent to see a specialist to confirm this and had my first ultrasound. The specialist told me that there was no possible way that it was but it was just constipation because a substantial amount of stool was found.

I started taking miralax which didn’t help at all. All is did was make me nauseous and have diarrhoea. I did it for about 4 months and finally went back to the doctor as the pain continued. I did several tests. I then went to an allergist and tested for an allergy to many things including dairy.


The results came back negative but I decided to try going dairy free for a while. I did this for about a month and it didn’t help at all. I then went to see a GI. I had an upper-GI series done, which didn’t show anything. The GI doctor thought it could possibly be crohns disease.


I had a colonoscopy. I was 14 at the time! We didn’t find anything from that but still thought crohns was a possibility and could develop over time. I then lived with the pain for the next few months and wasn’t sure what to do from there.


In November, I was at water polo practice when I got out of the pool to go to the bathroom because I wasn’t feeling well. I was in that horrible pain. I had awful diarrhoea. I was rolling on the floor because the agony I felt was so bad. I then threw up 8 times.


I went to the emergency room and took a urine test and blood work. The ER doctor said that it was either a cyst on my ovaries or ovarian contortion. I had an ultrasound. They weren’t going to check my appendix until my parents asked them to.


Sure enough, I was in surgery twenty minutes later to have my appendix removed. They also found three cysts on my right ovary.


But then I started having pains in January. I had an ultrasound done again with it not showing anything bad. I went to see a gynaecologist and was put on birth control.


I am doing birth control for three months and so I have a follow up at the end of June. We are thinking it is endometriosis and as I read more about endometriosis it starts to make more sense. I just really hope I figure out what my problems are caused by.


I had pain again yesterday and it is during my period. The thing that scares me the most is not being able to have children. It’s so ridiculous that I’m 15 now and worrying about having children! Well it helps to just talk about everything and let it all out.


Also, I hope that people that have gone through about the same thing that I have, read this, and know that they aren’t alone. Well I’ll let everyone know what happens after my appointment. Pray for me 

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