Many women with endometriosis have found support from talking to others with the disease, especially through online support groups. It has helped them learn from their experiences, understand treatments and coping methods, and subsequently get a better understanding of endometriosis.
Most women feel totally isolated and alone when they are first diagnosed. But when they find there are millions of others around the world who also suffer this dreadful disease, their isolation is greatly reduced as they know there are many others who are suffering just like them.
There are support groups in many countries, and they are there to support, advice, and provide information for women with endometriosis and their families. Here is a list of support groups for different countries around the world:
Global Support
www.endometriosis.org - the global forum for news and information.
The website serves women across the world, is updated with news about support groups and research on a monthly basis, and has peer-reviewed information about treatment for endometroisis, as well as a long list of articles written to support women with endometriosis.
It also hosts the ESHRE guideline for the diagnosis and management of endometriosis.
Argentina
Endometriosis Group Argentina
Av. Santa Fe 1675 2º A CP 1060
Capital Federal, Buenos Aires
ARGENTINA
t/f: +54 11 4815 4802
infoendo@fibertel.com.ar
www.endometriosisgroup.com.ar
Australia
Endometriosis Association (Qld) Inc
PO Box 39
Red Hill
Queensland 4059
AUSTRALIA
www.qendo.org.au
Austria
Oesterreichische Endometriose Vereinigung
Obere Augartenstrasse 26-28
1020 Wien
AUSTRIA
t: +43 (0)676 4447344
office@endometriose-wien.at
www.endometriose-wien.at
Brazil
ABEND - Associação Brasileira de Endometriose
Rua Claro de Camargo Sobrinho, 89
Vila Pouso Alegre – Barueri
SP Cep 06402-050
BRAZIL
t: +55 11 4198 7456
f: +55 11 4163 5086
abend@abend.org.br www.abend.org.br
Denmark
Endometriose Foreningen Denmark
Kvorupvej 1, Åsted
DK-6800 Varde
DENMARK
t: +45 2172 4300
f: +45 7525 4455
info@endo.dk
www.endo.dk
Finland
Endometrioosiyhdistys Finland
PL 142
00531 Helsinki
FINLAND
t/f: +358 (0)50 380 6715
endo@endometrioosiyhdistys.fi
www.endometrioosiyhdistys.fi
France
Association EndoFrance
17, allée des Eguerêts
F-95280 Jouy le Moutier
FRANCE
contact@endofrance.org
www.endofrance.org
Germany
Endometriose-Vereinigung Deutschland e.V.
Counselling centre Leipzig
Bernhard-Göring-Str. 152
04277 Leipzig
GERMANY
t: +49 (0)341 3 06 53 04
(Monday to Thursday 9-12 am, Thursday 1-6 pm)
info@endometriose-vereinigung.de
www.endometriose-vereinigung.de
India
Endometriosis Society India
6A & 6F Needlamber
28B Shakespeare Sarani
Kolkata 700 017
INDIA
t: +91 (0)33 2240 4463 / +91 (0)33 2865 0364
f: +91 (0)33 2281 1639
mail@endosocindia.org
www.endosocindia.org
Ireland
Endometriosis Association of Ireland
Carmichael Centre
North Brunswick Street
Dublin 7
IRELAND
t: +353 1 8735702
f: +353 1 8735737
info@endo.ie
www.endo.ie
Italy
Associazione Italiana Endometriosi Onlus (AIE)
Casella Postale 114
I-20014 Nerviano (MI)
ITALY
t/f: +39 0331 589800
info@endoassoc.it
www.endoassoc.it
Japan
Japan Endometriosis Association (JEMA)
1-5-10-1012 Shimo-Ochiai
Shinjuku-ku
Tokyo 168-0082
JAPAN
info-1@jemanet.org
www.jemanet.org
Malta
Endometriosis Support Malta
E mail: endosupport@gmail.com
Contact: Anita Portelli
Our meetings are held at the
Health Promotion Unit
37/39 Triq D' Argens
Msida
Malta Europe
Mexico
Associación de Endometriosis Capitulo Mexicano
t: +52 55 51 490468
mexendometriosis@yahoo.com.mx
www.mexendometriosis.com
The Netherlands
Endometriose Stichting
Antwoordnummer 1789
2000 VC Haarlem
THE NETHERLANDS
t: +31 72 581 5320
(Monday between 19.00 and 22.00 and Wednesday between 9.00 and 12.00)
f: +31 72 581 5207
info@endometriose.nl
www.endometriose.nl
New Zealand
Endometriosis New Zealand
PO Box 1673
Christchurch
NEW ZEALAND
t: +64 (0)3 379 7959
Support Line: 0800 733277 (New Zealand callers only
www.nzendo.co.nz email: info@nzendo.co.nz
Norway
Endometrioseforeningen
Postboks 4391 Lura
N-4301 Sandnes
NORWAY
endonorge@yahoo.com
www.endonorge.org
Singapore
Website: www.shineworldwide.com/seas.html
EMAIL: seas@shineworldwide.com
Contact No: +65 8399 7942 Or +65 6388 7731 (Singapore Time : 9am - 9pm)
SHINE Endometriosis Association (S) - SEAS is the non-profit Support Group, dedicated to educating & supporting women & their families on Endometriosis & Menstrual Health. As a support group based in Singapore, we provide holistic approaches to helping women on this condition, by being constantly updated through collaboration with Endometriosis Organisations & support Groups, globally.
We're available for on-line & telephone support / help for women & their families in Asia & Globally. Constant activities are being organised to provide a communication platform for women in Singapore, which we look to expand throughout Asia. We commit to giving quality information on Women Health & Endometriosis!
SEAS ... Conquering the Endo Dis-Ease!
Spain
Asociacion de Endometriosis Española (AEE)
Calle Mayor, 29
E - 17455 Caldes de Malavella
SPAIN
info@endoinfo.org
www.endoinfo.org
Sweden
Svenska Endometriosföreningen
Box 14087
S-167 14 Bromma
SWEDEN
info@endometriosforeningen.se
www.endometriosforeningen.se
Föreningen EndoLiv
Neglingev 45
S-133 34 Saltsjöbaden
SWEDEN
info@endoliv.se
www.endoliv.se
Switzerland
Selbsthilfegruppe Endometriose Zürich
SWITZERLAND
info@endo-shg.ch
www.endo-shg.ch
United Kingdom
National Endometriosis Society
50 Westminster Palace Gardens
Artillery Row
London SW1P 1RL
UNITED KINGDOM
t: +44 (0)20 7222 2781
Freephone Helpline: 0808 808 2227
nes@endo.org.uk
www.endo.org.uk
United States
Endometriosis Association
8585 N. 75 th Place
Milwaukee , WI 53223
USA
t: +1 414 355 2200
f: +1 414 355 6065
endo@endometriosisassn.org
www.endometriosisassn.org
Endometriosis Research Center
International Headquarters
630 Ibis Drive
Delray Beach, FL 33444
USA
t: +1 561 274 7442
f: +1 561 274 9117
www.endocenter.org
Mental health support
There is a support group specifically for Endo and its impact on our mental health.
https://www.facebook.com/groups/215876632543129