Endometriosis support groups around the world
Many women with endometriosis have found that talking to others with the disease has helped them learn from their experiences, understand treatments and coping methods, and subsequently get a better understanding of endometriosis.
Many women feel totally isolated and alone when they are first diagnosed with endometriosis. But when they find there are millions of others around the world who also suffer this dreadful disease, their isolation is greatly reduced as they know there are many others who are suffering just like them.
There are support groups in many countries, and they are there to support, advice, and provide information for women with endometriosis and their families. Here is a list of support groups for different countries around the world:
Global Support
www.endometriosis.org - the global forum for news and information.
The website serves women across the world, is updated with news about supportgroups and research on a monthly basis, and has peer-reviewed information abouttreatment for endometroisis, as well as a long list of articles written tosupport women with endometriosis.
It also hosts the ESHRE guideline for the diagnosis and management ofendometriosis.
Argentina
Endometriosis Group Argentina Av. Santa Fe 1675 2º A CP 1060 Capital Federal, Buenos Aires ARGENTINA t/f: +54 11 4815 4802 infoendo@fibertel.com.ar www.endometriosisgroup.com.ar
Australia
Endometriosis Association (Qld) Inc PO Box 39 Red Hill Queensland 4059 AUSTRALIA www.qendo.org.au
Austria
Oesterreichische Endometriose Vereinigung Obere Augartenstrasse 26-28 1020 Wien AUSTRIA t: +43 (0)676 4447344 office@endometriose-wien.at www.endometriose-wien.at
Brazil
ABEND - Associação Brasileira de Endometriose Rua Claro de Camargo Sobrinho, 89 Vila Pouso Alegre – Barueri SP Cep 06402-050 BRAZIL t: +55 11 4198 7456 f: +55 11 4163 5086 abend@abend.org.br www.abend.org.br
Denmark
Endometriose Foreningen Denmark Kvorupvej 1, Åsted DK-6800 Varde DENMARK t: +45 2172 4300 f: +45 7525 4455 info@endo.dk www.endo.dk
Finland
Endometrioosiyhdistys Finland PL 142 00531 Helsinki FINLAND t/f: +358 (0)50 380 6715 endo@endometrioosiyhdistys.fi www.endometrioosiyhdistys.fi
France
Association EndoFrance 17, allée des Eguerêts F-95280 Jouy le Moutier FRANCE contact@endofrance.org www.endofrance.org
Germany
Endometriose-Vereinigung Deutschland e.V. Counselling centre Leipzig Bernhard-Göring-Str. 152 04277 Leipzig GERMANY t: +49 (0)341 3 06 53 04 (Monday to Thursday 9-12 am, Thursday 1-6 pm) info@endometriose-vereinigung.de www.endometriose-vereinigung.de
India
Endometriosis Society India 6A & 6F Needlamber 28B Shakespeare Sarani Kolkata 700 017 INDIA t: +91 (0)33 2240 4463 / +91 (0)33 2865 0364 f: +91 (0)33 2281 1639 mail@endosocindia.org www.endosocindia.org
Ireland
Endometriosis Association of Ireland Carmichael Centre North Brunswick Street Dublin 7 IRELAND t: +353 1 8735702 f: +353 1 8735737 info@endo.ie www.endo.ie
Italy
Associazione Italiana Endometriosi Onlus (AIE) Casella Postale 114 I-20014 Nerviano (MI) ITALY t/f: +39 0331 589800 info@endoassoc.it www.endoassoc.it
Japan
Japan Endometriosis Association (JEMA) 1-5-10-1012 Shimo-Ochiai Shinjuku-ku Tokyo 168-0082 JAPAN info-1@jemanet.org www.jemanet.org
Malta
Endometriosis Support Malta
E mail: endosupport@gmail.com Contact: Anita Portelli
Our meetings are held at the Health Promotion Unit 37/39 Triq D' Argens Msida Malta Europe
Mexico
Associación de Endometriosis Capitulo Mexicano t: +52 55 51 490468 mexendometriosis@yahoo.com.mx www.mexendometriosis.com
ALSO Mexican website run by two endometriosis sufferers at: Endometriosis Mexico
The Netherlands
Endometriose Stichting Antwoordnummer 1789 2000 VC Haarlem THE NETHERLANDS t: +31 72 581 5320 (Monday between 19.00 and 22.00 and Wednesday between 9.00 and 12.00) f: +31 72 581 5207 info@endometriose.nl www.endometriose.nl
New Zealand
New Zealand Endometriosis Foundation Inc. PO Box 1673 Christchurch NEW ZEALAND t: +64 (0)3 379 7959 f: +64 (0)3 379 7969 Support Line: 0800 733277 (New Zealand callers only) nzendo@xtra.co.nz www.nzendo.co.nz
Norway
Endometrioseforeningen Postboks 4391 Lura N-4301 Sandnes NORWAY endonorge@yahoo.com www.endonorge.org
Portugal
Associação Portuguesa de Endometriose Rua Vicente Dias, 5 1400-358 Lisboa PORTUGAL t: +351 96 90 80 192 f: +351 21 796 76 49 aspoendo@netcabo.pt
Singapore
Website: www.shineworldwide.com/seas.html
EMAIL: seas@shineworldwide.com
Contact No: +65 8399 7942 Or +65 6388 7731 (Singapore Time : 9am - 9pm)
SHINE Endometriosis Association (S) - SEAS is the non-profit Support Group, dedicated to educating & supporting women & their families on Endometriosis & Menstrual Health. As a support group based in Singapore, we provide holistic approaches to helping women on this condition, by being constantly updated through collaboration with Endometriosis Organisations & support Groups, globally. We're available for on-line & telephone support / help for women & their families in Asia & Globally. Constant activities are being organised to provide a communication platform for women in Singapore, which we look to expand throughout Asia. We commit to giving quality information on Women Health & Endometriosis! SEAS ... Conquering the Endo Dis-Ease!
Spain
Asociacion de Endometriosis Española (AEE) Calle Mayor, 29 E - 17455 Caldes de Malavella SPAIN info@endoinfo.org www.endoinfo.org
South Africa
South Africa Endometriosis Support Group
Contact person: Coty Suiza Mobile number 082 882 7722 Based in Milnerton, Cape Town, South Africa Email: Coty@webmail.co.za
Sweden
Svenska Endometriosföreningen Box 14087 S-167 14 Bromma SWEDEN info@endometriosforeningen.se www.endometriosforeningen.se
Föreningen EndoLiv Neglingev 45 S-133 34 Saltsjöbaden SWEDEN info@endoliv.se www.endoliv.se
Switzerland
Selbsthilfegruppe Endometriose Zürich SWITZERLAND info@endo-shg.ch www.endo-shg.ch
United Kingdom
National Endometriosis Society 50 Westminster Palace Gardens Artillery Row London SW1P 1RL UNITED KINGDOM t:+44 (0)20 7222 2781 Freephone Helpline: 0808 808 2227 nes@endo.org.uk www.endo.org.uk
United States
Endometriosis Association 8585 N. 75 th Place Milwaukee , WI 53223 USA t: +1 414 355 2200 f: +1 414 355 6065 endo@endometriosisassn.org www.endometriosisassn.org
Endometriosis Research Center International Headquarters 630 Ibis Drive Delray Beach, FL 33444 USA t: +1 561 274 7442 f: +1 561 274 9117 www.endocenter.org
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