Endometriosis story


  These stories can help other women so they do not feel so alone when trying to cope with effects of this disease.





Edometriosis sucks !!!!!!!!!!!!!

by Angelina
(California)

After suffering since age 9 with excruciating cramps my Dr finally decided to look into why I'm constantly in so much pain. I am now 19 and was diagnosed with Endometriosis 2 weeks ago after having a laparoscopy.


My Dr wants to put me on Lupron and put in a Mirena but I am very skeptical about the Lupron injections. Can anyone give me some feedback if you've tried it did it help any side affects?
ALSO has anyone tried Endovan ??


I've always known something was wrong with me it didn't make sense why my friends had 3 days of spotting and I would have 7 to 10 days sometimes a full 2 weeks of nonstop bleeding and the most painful pelvic pain, backaches, thigh aches, and headaches. I like pain I can handle it, I've got tattoos and piercings but this pain is different I can't handle the pain I'm in while on my period and even before I'm on my period . I'm constantly bloated and my stomach is always so tender I wouldn't wish this pain on my worse enemy.


Finding this website brought tears to my eyes good and bad . It is very comforting knowing I'm not the only one who goes through this but its also so heart breaking .. My Dr told me it might be very difficult for me to have children later on maybe even ever ... All I have ever wanted was to be a Mommy I couldn't imagine not being able to have kids.


I am really trying to stay positive about this whole thing but it is so difficult I don't know what to do for the pain NO ONE understands. They say they do but they don't.


My heating pad is my best friend I take it with me everywhere I go. My mom makes me warm milk with nutmeg and cinnamon which sometimes helps its more of a comfort thing. Hitting my lower back with a fist helps I know it sounds weird but it works for me and I would literally do anything to make this pain go away.

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